{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T17:15:14Z","timestamp":1777396514256,"version":"3.51.4"},"reference-count":55,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2024,5,14]],"date-time":"2024-05-14T00:00:00Z","timestamp":1715644800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JAD"],"published-print":{"date-parts":[[2024,5,14]]},"abstract":"<jats:p>Background: The healthcare needs of People living with Dementia (PlwD) (such as Alzheimer\u2019s disease) are often unmet. Information about the needs of community-dwelling PlwD and their association with sociodemographic and clinical characteristics is needed to fill the knowledge gap regarding factors influencing unmet needs among PlwD and to conduct a comprehensive needs assessment to develop tailored interventions. Objective: To describe sociodemographic and clinical characteristics of the InDePendent study population with particular reference to determinants of unmet needs. Methods: We analyzed baseline data of the multi-centre cluster-randomized controlled trial (InDePendent) using descriptive statistics to describe patients\u2019 sociodemographic and clinical characteristics and Poisson regression models to predict unmet needs, separated by sex. Data were collected personally via face-to-face interviews. Results: Most of the n\u200a=\u200a417 participating PlwD were mild to moderately cognitively impaired, were not depressed, had an average of 10.8 diagnoses, took 6.7 medications, and had, on average, 2.4 unmet needs (62% of PlwD had at least one unmet need) measured by the Camberwell Assessment of Need for the Elderly (CANE). Low social support, a high body-mass-index, a lower education, functional impairment, and worse health status were associated with more unmet needs, regardless of sex. In women, higher unmet needs were associated with more depressive symptoms, a poor financial situation, living alone and not being recently treated by a general practitioner. In males, unmet needs increased with the number of medications taken. Conclusions: PlwD had a broad array of unmet healthcare needs, indicating primary healthcare provision improvement potentials. The results underscore the significance of early assessment of patient\u2019s clinical characteristics and unmet needs as a basis for individualized gender-sensible intervention strategies.\u2225ClinicalTrials.gov Identifier: NCT04741932, Registered on February 5, 2021<\/jats:p>","DOI":"10.3233\/jad-231173","type":"journal-article","created":{"date-parts":[[2024,4,26]],"date-time":"2024-04-26T14:03:32Z","timestamp":1714140212000},"page":"559-575","source":"Crossref","is-referenced-by-count":2,"title":["Sociodemographic and Clinical Characteristics of People Living with Dementia and Their Associations with Unmet Healthcare Needs: Insights from the Baseline Assessment of the InDePendent Study"],"prefix":"10.1177","volume":"99","author":[{"given":"Annelie","family":"Scharf","sequence":"first","affiliation":[{"name":"Deutsches Zentum f\u00fcr Neurodegenerative Erkrankungen (DZNE), Rostock\/Greifswald, Greifswald, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fabian","family":"Kleinke","sequence":"additional","affiliation":[{"name":"Department of Epidemiology of Health Care and Community Health, Institute for Community Medicine, University Medicine Greifswald, Greifswald, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Bernhard","family":"Michalowsky","sequence":"additional","affiliation":[{"name":"Deutsches Zentum f\u00fcr Neurodegenerative Erkrankungen (DZNE), Rostock\/Greifswald, Greifswald, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anika","family":"R\u00e4dke","sequence":"additional","affiliation":[{"name":"Deutsches Zentum f\u00fcr Neurodegenerative Erkrankungen (DZNE), Rostock\/Greifswald, Greifswald, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stefanie","family":"Pfitzner","sequence":"additional","affiliation":[{"name":"Department of Epidemiology of Health Care and Community Health, Institute for Community Medicine, University Medicine Greifswald, Greifswald, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Franka","family":"M\u00fchlichen","sequence":"additional","affiliation":[{"name":"Deutsches Zentum f\u00fcr Neurodegenerative Erkrankungen (DZNE), Rostock\/Greifswald, Greifswald, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maresa","family":"Buchholz","sequence":"additional","affiliation":[{"name":"Deutsches Zentum f\u00fcr Neurodegenerative Erkrankungen (DZNE), Rostock\/Greifswald, Greifswald, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Neeltje","family":"van den Berg","sequence":"additional","affiliation":[{"name":"Deutsches Zentum f\u00fcr Neurodegenerative Erkrankungen (DZNE), Rostock\/Greifswald, Greifswald, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Wolfgang","family":"Hoffmann","sequence":"additional","affiliation":[{"name":"Deutsches Zentum f\u00fcr Neurodegenerative Erkrankungen (DZNE), Rostock\/Greifswald, Greifswald, Germany"},{"name":"Department of Epidemiology of Health Care and Community Health, Institute for Community Medicine, University Medicine Greifswald, Greifswald, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","reference":[{"key":"10.3233\/JAD-231173_ref1","first-page":"470","article-title":"Demenz in Deutschland: Epidemiologie und pr\u00e4ventionspotenzial","volume":"120","author":"Blotenberg","year":"2023","journal-title":"Dtsch Arztebl Int"},{"key":"10.3233\/JAD-231173_ref4","doi-asserted-by":"crossref","first-page":"e16852","DOI":"10.1371\/journal.pone.0016852","article-title":"Prediction of dementia in primary care patients","volume":"6","author":"Jessen","year":"2011","journal-title":"PLoS One"},{"key":"10.3233\/JAD-231173_ref5","doi-asserted-by":"crossref","first-page":"609","DOI":"10.3233\/JAD-151076","article-title":"Community-dwelling people screened positive for dementia in primary care: A comprehensive, multivariate descriptive analysis using data from the DelpHi-Study","volume":"52","author":"Thyrian","year":"2016","journal-title":"J Alzheimers Dis"},{"key":"10.3233\/JAD-231173_ref6","doi-asserted-by":"crossref","first-page":"538","DOI":"10.2174\/1567205011666140618100727","article-title":"Does an interdisciplinary network improve dementia care? 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