{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,2]],"date-time":"2026-05-02T01:59:18Z","timestamp":1777687158161,"version":"3.51.4"},"reference-count":17,"publisher":"SAGE Publications","issue":"4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JHD"],"published-print":{"date-parts":[[2016,12,15]]},"DOI":"10.3233\/jhd-160218","type":"journal-article","created":{"date-parts":[[2016,12,17]],"date-time":"2016-12-17T00:37:25Z","timestamp":1481935045000},"page":"379-387","source":"Crossref","is-referenced-by-count":5,"title":["Important but not Enough \u2013 Information about HD Related Topics and Peer and\u00a0Professional Support for Young Adults from HD Families"],"prefix":"10.1177","volume":"5","author":[{"given":"Ulrike","family":"Braisch","sequence":"first","affiliation":[{"name":"Institute of Epidemiology and Medical Biometry, Ulm University, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Saul","family":"Martinez-Horta","sequence":"additional","affiliation":[{"name":"Biomedical Research Institute Sant Pau (IIB-Sant Pau). Movement Disorders Group. Hospital de la Santa Creu i Sant Pau, Barcelona, Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marcy","family":"MacDonald","sequence":"additional","affiliation":[{"name":"Center for Human Genetic Research, Massachusetts General Hospital, Boston, MA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael","family":"Orth","sequence":"additional","affiliation":[{"name":"Department of Neurology, Ulm University, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","reference":[{"issue":"1","key":"10.3233\/JHD-160218_ref1","doi-asserted-by":"crossref","first-page":"83","DOI":"10.1016\/S1474-4422(10)70245-3","article-title":"Huntington\u2019s disease: From molecular pathogenesis to clinical treatment","volume":"10","author":"Ross","year":"2011","journal-title":"Lancet Neurol"},{"issue":"5","key":"10.3233\/JHD-160218_ref2","doi-asserted-by":"crossref","first-page":"400","DOI":"10.1176\/appi.psy.48.5.400","article-title":"The impact of Huntington\u2019s disease on family life","volume":"48","author":"Vamos","year":"2007","journal-title":"Psychosomatics"},{"issue":"2","key":"10.3233\/JHD-160218_ref3","doi-asserted-by":"crossref","first-page":"120","DOI":"10.1111\/j.1399-0004.2006.00702.x","article-title":"Young people\u2019s experiences of growing up in a family affected by Huntington\u2019s disease","volume":"71","author":"Forrest Keenan","year":"2007","journal-title":"Clin Genet"},{"key":"10.3233\/JHD-160218_ref4","volume-title":"R Foundation for Statistical Computing","author":"Team"},{"issue":"1","key":"10.3233\/JHD-160218_ref5","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1111\/nan.12102","article-title":"Environmental enrichment and brain repair: Harnessing the therapeutic effects of cognitive stimulation and physical activity to enhance experience-dependent plasticity","volume":"40","author":"Hannan","year":"2014","journal-title":"Neuropathol Appl Neurobiol"},{"issue":"14","key":"10.3233\/JHD-160218_ref6","doi-asserted-by":"crossref","first-page":"1279","DOI":"10.1056\/NEJMoa1200303","article-title":"Primary prevention of cardiovascular disease with a Mediterranean diet","volume":"368","author":"Estruch","year":"2013","journal-title":"N Engl J Med"},{"issue":"3","key":"10.3233\/JHD-160218_ref7","doi-asserted-by":"crossref","first-page":"397","DOI":"10.1212\/WNL.57.3.397","article-title":"A randomized placebo-controlled trial of coenzyme Q10 and remacemide in Huntington\u2019s disease","volume":"57","author":"Huntington Study Group","year":"2001","journal-title":"Neurology"},{"issue":"10","key":"10.3233\/JHD-160218_ref8","doi-asserted-by":"crossref","first-page":"1426","DOI":"10.1002\/mds.26308","article-title":"Ethyl-eicosapentaenoic acid treatment in Huntington\u2019s disease: A placebo-controlled clinical trial","volume":"30","author":"Ferreira","year":"2015","journal-title":"Mov Disord"},{"issue":"10","key":"10.3233\/JHD-160218_ref9","doi-asserted-by":"crossref","first-page":"1444","DOI":"10.1002\/mds.23108","article-title":"A retrospective study of the impact of lifestyle on age at onset of Huntington disease","volume":"25","author":"Trembath","year":"2010","journal-title":"Mov Disord"},{"issue":"5","key":"10.3233\/JHD-160218_ref10","doi-asserted-by":"crossref","first-page":"411","DOI":"10.1016\/j.jacc.2014.11.023","article-title":"Dose of jogging and long-term mortality: The Copenhagen City Heart Study","volume":"65","author":"Schnohr","year":"2015","journal-title":"J Am Coll Cardiol"},{"issue":"3","key":"10.3233\/JHD-160218_ref11","doi-asserted-by":"crossref","first-page":"221","DOI":"10.1111\/j.1399-0004.2012.01900.x","article-title":"Recommendations for the predictive genetic test in Huntington\u2019s disease","volume":"83","author":"MacLeod","year":"2013","journal-title":"Clin Genet"},{"key":"10.3233\/JHD-160218_ref12","unstructured":"Helliwell J , Layard R , Sachs J . World Happiness Report. Columbia University Earth Institute 2015."},{"issue":"7593","key":"10.3233\/JHD-160218_ref13","doi-asserted-by":"crossref","first-page":"141","DOI":"10.1038\/531141a","article-title":"Support communities involved in disease studies","volume":"531","author":"Munoz-Sanjuan","year":"2016","journal-title":"Nature"},{"issue":"6","key":"10.3233\/JHD-160218_ref14","doi-asserted-by":"crossref","first-page":"462","DOI":"10.1034\/j.1399-0004.2003.00093.x","article-title":"Predictive, pre-natal and diagnostic genetic testing for Huntington\u2019s disease: The experience in Canada from 1987 to 2000","volume":"63","author":"Creighton","year":"2003","journal-title":"Clin Genet"},{"issue":"11","key":"10.3233\/JHD-160218_ref15","doi-asserted-by":"crossref","first-page":"1434","DOI":"10.1002\/mds.26007","article-title":"Targets for future clinical trials in Huntington\u2019s disease: What\u2019s in the pipeline?","volume":"29","author":"Wild","year":"2014","journal-title":"Mov Disord"},{"issue":"12","key":"10.3233\/JHD-160218_ref16","doi-asserted-by":"crossref","first-page":"1193","DOI":"10.1016\/S1474-4422(14)70238-8","article-title":"Prediction of manifest Huntington\u2019s disease with clinical and imaging measures: A prospective observational study","volume":"13","author":"Paulsen","year":"2014","journal-title":"Lancet Neurol"},{"issue":"7","key":"10.3233\/JHD-160218_ref17","doi-asserted-by":"crossref","first-page":"637","DOI":"10.1016\/S1474-4422(13)70088-7","article-title":"Predictors of phenotypic progression and disease onset in premanifest and early-stage Huntington\u2019s disease in the TRACK-HD study: Analysis of 36-month observational data","volume":"12","author":"Tabrizi","year":"2013","journal-title":"Lancet Neurol"}],"container-title":["Journal of Huntington's Disease"],"original-title":[],"link":[{"URL":"https:\/\/content.iospress.com\/download?id=10.3233\/JHD-160218","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T08:57:13Z","timestamp":1777453033000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/full\/10.3233\/JHD-160218"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2016,12,15]]},"references-count":17,"journal-issue":{"issue":"4"},"URL":"https:\/\/doi.org\/10.3233\/jhd-160218","relation":{},"ISSN":["1879-6397","1879-6400"],"issn-type":[{"value":"1879-6397","type":"print"},{"value":"1879-6400","type":"electronic"}],"subject":[],"published":{"date-parts":[[2016,12,15]]}}}