{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,2]],"date-time":"2026-05-02T01:53:03Z","timestamp":1777686783504,"version":"3.51.4"},"reference-count":13,"publisher":"SAGE Publications","issue":"4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JHD"],"published-print":{"date-parts":[[2022,12,16]]},"abstract":"<jats:p>Background: The coronavirus pandemic saw technology evolve as outpatient clinics faced restriction of in-person visits. Reliance on telemedicine using two-way audio-video communication significantly increased. Telemedicine was observed to be convenient, cost-effective, reduced no-show rates, and fostered sustained engagement. Enhanced flexibility from short notice scheduling benefitted patients and their caregivers. Greater time value was perceived by patients, and reduced reliance on caregivers. Disadvantages included barriers of access to internet connectivity or equipment. Objective: We aimed to retrospectively survey patients with Huntington\u2019s disease (HD) seen via telehealth in our HDSA Center for Excellence Multidisciplinary clinic. We evaluated usability, learnability, interface quality, reliability, and future use. Methods: This qualitative survey used the 21-item Telehealth Usability Questionnaire. Close-ended responses ranged from strongly disagree to strongly agree scored on Likert scale (1 through 7). Averages were calculated to examine attitudes towards telemedicine. Spearman correlation test was performed to detect attitude biases between patients and caregivers. Results: Respondents were more likely than not to strongly agree with survey statements. Average attitude score of 5.92 (range 2.95-7.00) suggested favorability and improved convenience when telehealth was used in complement to in-person visits, without detriment to patient-provider communication. Spearman correlation coefficient between patient and family\/caregiver groups was 0.023, which is below the cutoff of 0.344 for a\u200a=\u200a0.05 at N\u200a=\u200a24. This suggests there was no bias between patient and caregiver attitudes. Conclusion: This study demonstrated telehealth is favored by caregivers and patients with HD. This population with specific physical, cognitive and psychiatric needs can benefit from adaptive systems that enhance compliance.<\/jats:p>","DOI":"10.3233\/jhd-220547","type":"journal-article","created":{"date-parts":[[2022,8,12]],"date-time":"2022-08-12T10:58:02Z","timestamp":1660301882000},"page":"415-419","source":"Crossref","is-referenced-by-count":4,"title":["Patient and Caregiver Perspectives on Telehealth Use in a Multidisciplinary Huntington\u2019s Disease Clinic: A Single-Institution Experience"],"prefix":"10.1177","volume":"11","author":[{"given":"Diksha","family":"Mohanty","sequence":"first","affiliation":[{"name":"University of Louisville School of Medicine, Louisville, KY, USA"},{"name":"University of Louisville Health, Frazier Rehabilitation Institute, Louisville, KY, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Philipp","family":"Schmitt","sequence":"additional","affiliation":[{"name":"University of Louisville School of Medicine, Louisville, KY, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laura","family":"Dixon","sequence":"additional","affiliation":[{"name":"University of Louisville School of Medicine, Louisville, KY, USA"},{"name":"University of Louisville Health, Frazier Rehabilitation Institute, Louisville, KY, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Victoria","family":"Holiday","sequence":"additional","affiliation":[{"name":"University of Louisville School of Medicine, Louisville, KY, USA"},{"name":"University of Louisville Health, Frazier Rehabilitation Institute, Louisville, KY, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Peter","family":"Hedera","sequence":"additional","affiliation":[{"name":"University of Louisville School of Medicine, Louisville, KY, USA"},{"name":"University of Louisville Health, Frazier Rehabilitation Institute, Louisville, KY, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","reference":[{"issue":"1","key":"10.3233\/JHD-220547_ref1","doi-asserted-by":"crossref","first-page":"1193","DOI":"10.1186\/s12889-020-09301-4","article-title":"The role of telehealth during COVID-19 outbreak: a systematic review based on current evidence","volume":"20","author":"Monaghesh","year":"2020","journal-title":"BMC Public Health"},{"issue":"1","key":"10.3233\/JHD-220547_ref2","doi-asserted-by":"crossref","first-page":"e54","DOI":"10.7861\/fhj.2020-0139","article-title":"Teleophthalmology and COVID- the patient perspective","volume":"8","author":"Golash","year":"2021","journal-title":"Future Healthc J"},{"issue":"12","key":"10.3233\/JHD-220547_ref3","doi-asserted-by":"crossref","first-page":"1409","DOI":"10.1089\/tmj.2021.0002","article-title":"Reduced no-show rates and sustained patient satisfaction of telehealth during the COVID-19 pandemic","volume":"27","author":"Drerup","year":"2021","journal-title":"Telemed J E Health"},{"issue":"2","key":"10.3233\/JHD-220547_ref4","doi-asserted-by":"crossref","first-page":"e28589","DOI":"10.2196\/28589","article-title":"Patient satisfaction and trust in telemedicine during the COVID-19 pandemic: retrospective observational study","volume":"8","author":"Orrange","year":"2021","journal-title":"JMIR Hum Factors"},{"key":"10.3233\/JHD-220547_ref5","doi-asserted-by":"crossref","unstructured":"Bell S , Karamchandani U , Malcolmson K , Moosajee M , Acceptability of telegenetics for families with genetic eye diseases, Genes (Basel) 2021;12(2).","DOI":"10.3390\/genes12020276"},{"issue":"12","key":"10.3233\/JHD-220547_ref6","doi-asserted-by":"crossref","first-page":"1372","DOI":"10.1089\/tmj.2020.0468","article-title":"Outpatient virtual visits and the \u201cright\u201d amount of telehealth going forward","volume":"27","author":"Thomson","year":"2021","journal-title":"Telemed J E Health"},{"key":"10.3233\/JHD-220547_ref7","unstructured":"Section 1: Clinical Aspect of Huntington\u2019s Disease. In: Gillian Bates ST, Lesley Jones, editor. Huntington\u2019s Disease: Oxford University Press; 2014."},{"key":"10.3233\/JHD-220547_ref9","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1186\/1750-1172-6-77","article-title":"Coordinated multidisciplinary care for ambulatory Huntington\u2019s disease patients","volume":"6","author":"Veenhuizen","year":"2011","journal-title":"Evaluation of 18 months of implementation. Orphanet J Rare Dis"},{"issue":"2","key":"10.3233\/JHD-220547_ref11","doi-asserted-by":"crossref","first-page":"313","DOI":"10.3233\/JHD-200460","article-title":"Healthcare delivery and Huntington\u2019s disease during the time of COVID-19","volume":"10","author":"Pfalzer","year":"2021","journal-title":"J Huntingtons Dis"},{"issue":"1","key":"10.3233\/JHD-220547_ref12","doi-asserted-by":"crossref","first-page":"70","DOI":"10.1002\/ajmg.c.31876","article-title":"Transition to virtual clinic: Experience in a multidisciplinary clinic for Down syndrome","volume":"187","author":"Santoro","year":"2021","journal-title":"Am J Med Genet C Semin Med Genet"},{"issue":"1","key":"10.3233\/JHD-220547_ref14","doi-asserted-by":"crossref","first-page":"3","DOI":"10.5195\/ijt.2016.6196","article-title":"Development of the Telehealth Usability Questionnaire (TUQ).","volume":"8","author":"Parmanto","year":"2016","journal-title":"Int J Telerehabil"},{"key":"10.3233\/JHD-220547_ref17","first-page":"21","article-title":"User interface and patient involvement","volume":"190","author":"Andreassen","year":"2013","journal-title":"Stud Health Technol Inform"},{"key":"10.3233\/JHD-220547_ref18","doi-asserted-by":"crossref","first-page":"103215","DOI":"10.1016\/j.apergo.2020.103215","article-title":"The development of a mobile user interface ability evaluation system for the elderly","volume":"89","author":"Lin","year":"2020","journal-title":"Appl Ergon"}],"container-title":["Journal of Huntington's Disease"],"original-title":[],"link":[{"URL":"https:\/\/content.iospress.com\/download?id=10.3233\/JHD-220547","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T08:56:11Z","timestamp":1777452971000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/full\/10.3233\/JHD-220547"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,12,16]]},"references-count":13,"journal-issue":{"issue":"4"},"URL":"https:\/\/doi.org\/10.3233\/jhd-220547","relation":{},"ISSN":["1879-6397","1879-6400"],"issn-type":[{"value":"1879-6397","type":"print"},{"value":"1879-6400","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,12,16]]}}}