{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,2]],"date-time":"2026-05-02T01:53:03Z","timestamp":1777686783664,"version":"3.51.4"},"reference-count":9,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2022,12,16]],"date-time":"2022-12-16T00:00:00Z","timestamp":1671148800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JHD"],"published-print":{"date-parts":[[2022,12,16]]},"abstract":"<jats:p>This article describes how the author, a Huntington\u2019s disease (HD) gene expansion carrier and long-time advocate, has helped give voice to the HD community through his blog, At Risk for Huntington\u2019s Disease. Since 2005, the 321 articles have helped document the new and harrowing experience of living in the gray zone between a genetic test result and disease onset. At Risk for HD has explored major challenges for the HD community, has become a key reference for HD families, and has chronicled the quest to defeat the disease. This article analyzes the blog\u2019s thematic impact.<\/jats:p>","DOI":"10.3233\/jhd-220551","type":"journal-article","created":{"date-parts":[[2022,12,6]],"date-time":"2022-12-06T13:12:50Z","timestamp":1670332370000},"page":"369-371","source":"Crossref","is-referenced-by-count":1,"title":["Striving for a Realistic and Unapologetic View of Huntington\u2019s Disease"],"prefix":"10.1177","volume":"11","author":[{"given":"Kenneth P.","family":"Serbin","sequence":"first","affiliation":[{"name":"Department of History, University of San Diego, San Diego, CA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","reference":[{"key":"10.3233\/JHD-220551_ref1","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1177\/2055207618772669","article-title":"Seeking virtual social support through blogging: A content analysis of published blog posts written by people with chronic pain","volume":"4","author":"Tsai","year":"2018","journal-title":"Digital Health"},{"issue":"7","key":"10.3233\/JHD-220551_ref4","doi-asserted-by":"publisher","first-page":"632","DOI":"10.1016\/S1474-4422(22)00120-X","article-title":"A biological classification of Huntington\u2019s disease: The Integrated Staging System","volume":"21","author":"Tabrizi","year":"2022","journal-title":"Lancet Neurol"},{"key":"10.3233\/JHD-220551_ref5","doi-asserted-by":"publisher","first-page":"231","DOI":"10.3233\/JHD-200418","article-title":"Psychological interventions for people with Huntington\u2019s disease: A call to arms","volume":"9","author":"Zarotti","year":"2020","journal-title":"J Huntingtons Dis"},{"key":"10.3233\/JHD-220551_ref8","doi-asserted-by":"publisher","first-page":"139","DOI":"10.3233\/JHD-129007","article-title":"Eugenics, heredity, and huntington\u2019s disease: A brief historical perspective","volume":"1","author":"Wexler","year":"2012","journal-title":"J Huntingtons Dis"},{"key":"10.3233\/JHD-220551_ref13","doi-asserted-by":"publisher","first-page":"33","DOI":"10.3233\/JHD-160230","article-title":"Stewarding hope: The evolving landscape of Huntington\u2019s disease science communications","volume":"6","author":"Yohrling","year":"2017","journal-title":"J Huntingtons Dis"},{"issue":"9","key":"10.3233\/JHD-220551_ref14","doi-asserted-by":"publisher","first-page":"e023851","DOI":"10.1371\/journal.pone.0238512","article-title":"Development of a knowledge translation platform for ataxia: Impact on readers and volunteer contributors","volume":"15","author":"Stuart","year":"2020","journal-title":"PLoS One"},{"key":"10.3233\/JHD-220551_ref15","unstructured":"Wexler A . Mapping Fate: A Memoir of Family, Risk, and Genetic Research. Berkeley: University of California Press, 1995."},{"key":"10.3233\/JHD-220551_ref16","unstructured":"Wexler A . The Woman who Walked into the Sea: Huntington\u2019s and the Making of a Genetic Disease. New Haven; Yale University Press, 2008."},{"key":"10.3233\/JHD-220551_ref17","doi-asserted-by":"publisher","first-page":"3","DOI":"10.3233\/JHD-2012-129002","article-title":"Huntington\u2019s disease \u2013a brief historical perspective","volume":"1","author":"Wexler","year":"2012","journal-title":"J Huntingtons Dis"}],"container-title":["Journal of Huntington's Disease"],"original-title":[],"link":[{"URL":"https:\/\/content.iospress.com\/download?id=10.3233\/JHD-220551","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T08:56:11Z","timestamp":1777452971000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/full\/10.3233\/JHD-220551"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,12,16]]},"references-count":9,"journal-issue":{"issue":"4"},"URL":"https:\/\/doi.org\/10.3233\/jhd-220551","relation":{},"ISSN":["1879-6397","1879-6400"],"issn-type":[{"value":"1879-6397","type":"print"},{"value":"1879-6400","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,12,16]]}}}