{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,3]],"date-time":"2026-06-03T23:55:00Z","timestamp":1780530900362,"version":"3.54.1"},"reference-count":12,"publisher":"SAGE Publications","issue":"1","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JHD"],"published-print":{"date-parts":[[2023,5,2]]},"abstract":"<jats:p>Advance care planning (ACP) is a useful tool that benefits adult patients, care providers, and surrogate decision makers, through providing opportunities for patients to consider, express, and formalize their beliefs, preferences, and wishes pertaining to decisions regarding future medical care at a time when they retain decision-making capacity. Early and timely consideration of ACP discussions is paramount in Huntington\u2019s disease (HD) given the potential challenges in ascertaining decision-making capacity in the advanced stages of the disease. ACP helps to empower and extend patient autonomy, providing clinicians and surrogate decision makers with reassurance that management is consistent with a patient\u2019s expressed wishes. Regular follow up is vital to establish consistency of decisions and wishes. We outline the framework of the dedicated ACP clinic integrated within our HD service to highlight the importance of a patient-centred and tailored care plan that fulfils the patient\u2019s expressed goals, preferences, and values.<\/jats:p>","DOI":"10.3233\/jhd-220559","type":"journal-article","created":{"date-parts":[[2023,3,24]],"date-time":"2023-03-24T12:33:55Z","timestamp":1679661235000},"page":"77-82","source":"Crossref","is-referenced-by-count":7,"title":["Advance Care Planning in Huntington\u2019s Disease"],"prefix":"10.1177","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0679-0117","authenticated-orcid":false,"given":"Mena","family":"Farag","sequence":"first","affiliation":[{"name":"Huntington\u2019s Disease Centre, UCL Queen Square Institute of Neurology, University College London, London, UK"},{"name":"The National Hospital for Neurology and Neurosurgery (NHNN), London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Desiree M.","family":"Salanio","sequence":"additional","affiliation":[{"name":"Huntington\u2019s Disease Centre, UCL Queen Square Institute of Neurology, University College London, London, UK"},{"name":"The National Hospital for Neurology and Neurosurgery (NHNN), London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cara","family":"Hearst","sequence":"additional","affiliation":[{"name":"Huntington\u2019s Disease Centre, UCL Queen Square Institute of Neurology, University College London, London, UK"},{"name":"The National Hospital for Neurology and Neurosurgery (NHNN), London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniela","family":"Rae","sequence":"additional","affiliation":[{"name":"Huntington\u2019s Disease Centre, UCL Queen Square Institute of Neurology, University College London, London, UK"},{"name":"The National Hospital for Neurology and Neurosurgery (NHNN), London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah J.","family":"Tabrizi","sequence":"additional","affiliation":[{"name":"Huntington\u2019s Disease Centre, UCL Queen Square Institute of Neurology, University College London, London, UK"},{"name":"The National Hospital for Neurology and Neurosurgery (NHNN), London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","reference":[{"issue":"7","key":"10.3233\/JHD-220559_ref1","doi-asserted-by":"publisher","first-page":"645","DOI":"10.1016\/S1474-4422(22)00121-1","article-title":"Potential disease-modifying therapies for Huntington\u2019s disease: Lessons learned and future opportunities","volume":"21","author":"Tabrizi","year":"2022","journal-title":"Lancet Neurol"},{"issue":"5","key":"10.3233\/JHD-220559_ref2","doi-asserted-by":"publisher","first-page":"821","DOI":"10.1016\/j.jpainsymman.2016.12.331","article-title":"Defining advance care planning for adults: A consensus definition from a 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