{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,2]],"date-time":"2026-05-02T01:54:39Z","timestamp":1777686879732,"version":"3.51.4"},"reference-count":21,"publisher":"SAGE Publications","issue":"3","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JHD"],"published-print":{"date-parts":[[2024,9,10]]},"abstract":"<jats:p>Background: Clinical guidelines recommend that people with Huntington\u2019s disease (HD) should exercise to maintain\/improve fitness and motor function, yet physical activity levels remain low in this group. Promotion of physical activity is often via care partners with little evidence that they are supported in this role. Objective: The aim was to co-design a resource for care partners of people with HD to support promotion of physical activity. Methods: A four-step co-design approach was used to develop a care partner resource. Five care partners took part in an online workshop exploring experiences and the knowledge, support and skills needed by care partners to promote physical activity. A co-design team (n\u200a=\u200a7) developed a prototype that was user tested by three people who had attended the workshop. Findings from user testing were used to develop the final resource. Results: An easy to read, image-based prototype was developed that contained tips on planning activity, safety and activity examples. User testing identified the need for grouping of activities suitable for 10, 20, and 30 minutes of available time, information on maintaining and improving activity and re-organization of information to support engagement of activity. Conclusions: A resource for care partners that has been translated into seven languages was developed to promote physical activity. User testing indicated confidence in using the resource and appreciation of the autonomy provided to the person with HD to plan activities. Further work is needed to evaluate the impact of the resource in promotion of physical activity and the impact on care partner burden.<\/jats:p>","DOI":"10.3233\/jhd-240014","type":"journal-article","created":{"date-parts":[[2024,7,19]],"date-time":"2024-07-19T11:53:32Z","timestamp":1721390012000},"page":"375-383","source":"Crossref","is-referenced-by-count":1,"title":["Promoting Physical Activity in Huntington\u2019s Disease: Co-Design of a Care Partner Resource"],"prefix":"10.1177","volume":"13","author":[{"given":"Una","family":"Jones","sequence":"first","affiliation":[{"name":"School of Healthcare Sciences, Cardiff University, Cardiff, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Katy","family":"Hamana","sequence":"additional","affiliation":[{"name":"School of Healthcare Sciences, Cardiff University, Cardiff, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Monica","family":"Busse","sequence":"additional","affiliation":[{"name":"Centre for Trials Research, Cardiff University, Cardiff, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","reference":[{"key":"10.3233\/JHD-240014_ref1","doi-asserted-by":"crossref","first-page":"585","DOI":"10.1183\/13993003.02215-2015","article-title":"Respiratory decline is integral to disease progression in Huntington\u2019s disease","volume":"48","author":"Jones","year":"2016","journal-title":"Eur Respir J"},{"key":"10.3233\/JHD-240014_ref2","doi-asserted-by":"crossref","first-page":"217","DOI":"10.1212\/WNL.0000000000008887","article-title":"Clinical recommendations to guide physical therapy practice for Huntington disease","volume":"94","author":"Quinn","year":"2020","journal-title":"Neurology"},{"key":"10.3233\/JHD-240014_ref3","doi-asserted-by":"crossref","first-page":"1565","DOI":"10.1080\/09638288.2019.1671501","article-title":"An exploration of physical activity experiences throughout the Huntington\u2019s disease journey: supporting development of theoretically underpinned complex interventions","volume":"43","author":"Hamana","year":"2021","journal-title":"Disabil Rehabil"},{"key":"10.3233\/JHD-240014_ref4","doi-asserted-by":"crossref","first-page":"4358","DOI":"10.3390\/ijerph17124358","article-title":"Physical activity promotion: a systematic review of the perceptions of healthcare professionals","volume":"17","author":"Albert","year":"2020","journal-title":"Int J Environ Res Public Health"},{"key":"10.3233\/JHD-240014_ref5","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1186\/s13023-023-02622-8","article-title":"What we don\u2019t need to prove but need to do in multidisciplinary treatment and care in Huntington\u2019s disease: a position paper","volume":"18","author":"M\u00fchlb\u00e4ck","year":"2023","journal-title":"Orphanet J Rare Dis"},{"key":"10.3233\/JHD-240014_ref6","doi-asserted-by":"crossref","first-page":"54","DOI":"10.12968\/ijtr.2017.24.2.54","article-title":"Augmenting home exercise programmes in multiple sclerosis with \u2018exercise buddies\u2019: A pilot study","volume":"24","author":"Toomey","year":"2017","journal-title":"Int J Ther Rehabil"},{"key":"10.3233\/JHD-240014_ref7","doi-asserted-by":"crossref","first-page":"e014650","DOI":"10.1136\/bmjopen-2016-014650","article-title":"What outcomes are associated with developing and implementing co-produced interventions in acute healthcare settings? 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