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Fourteen United States-based articles were included. All studies cited &gt;70% White participants with the majority having few racial minority participants. Enrollment of Black\/African American individuals was particularly limited (&lt;5% in all but one study), and Hispanic\/Latino participants ranged from 3.3\u2013 26.5% of cohorts. These results suggest a need for effective strategies to recruit, enroll, and retain racially and ethnically diverse populations into observational research in DMD.<\/jats:p>","DOI":"10.3233\/jnd-190447","type":"journal-article","created":{"date-parts":[[2020,1,17]],"date-time":"2020-01-17T09:31:22Z","timestamp":1579253482000},"page":"167-173","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":6,"title":["Characterizing Enrollment in Observational Studies of Duchenne Muscular Dystrophy by Race and Ethnicity"],"prefix":"10.1177","volume":"7","author":[{"given":"Alison M.","family":"Barnard","sequence":"first","affiliation":[{"name":"Department of Physiology and Functional Genomics, University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Samuel L.","family":"Riehl","sequence":"additional","affiliation":[{"name":"Department of Physical Therapy, University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebecca J.","family":"Willcocks","sequence":"additional","affiliation":[{"name":"Department of Physical Therapy, University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Glenn A.","family":"Walter","sequence":"additional","affiliation":[{"name":"Department of Physiology and Functional Genomics, University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amber M.","family":"Angell","sequence":"additional","affiliation":[{"name":"Department of Occupational Therapy, University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Krista","family":"Vandenborne","sequence":"additional","affiliation":[{"name":"Department of Physical Therapy, University of Florida, Gainesville, FL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2020,1,7]]},"reference":[{"key":"ref001","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(18)30024-3"},{"key":"ref002","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(16)30035-7"},{"key":"ref003","doi-asserted-by":"publisher","DOI":"10.1016\/j.nmd.2018.08.005"},{"key":"ref004","doi-asserted-by":"publisher","DOI":"10.1002\/mus.23807"},{"key":"ref005","doi-asserted-by":"publisher","DOI":"10.1159\/000312871"},{"key":"ref006","doi-asserted-by":"publisher","DOI":"10.1007\/s10903-018-0729-2"},{"key":"ref007","doi-asserted-by":"publisher","DOI":"10.1016\/S1047-2797(01)00265-4"},{"key":"ref008","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pmed.0030019"},{"key":"ref009","doi-asserted-by":"publisher","DOI":"10.1007\/BF02129596"},{"key":"ref010","unstructured":"Jacs\u00f3P. 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