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Diagnosis and contact information are collected across all diseases and detailed prospective data is collected for 5 specific diseases: Amyotrophic Lateral Sclerosis (ALS), Duchenne Muscular Dystrophy (DMD), Myotonic Dystrophy (DM), Limb Girdle Muscular Dystrophy (LGMD), and Spinal Muscular Atrophy (SMA). Since 2010, the CNDR has registered 4306 patients (1154 pediatric and 3148 adult) with 91 different neuromuscular diagnoses and has facilitated 125 projects (73 academic, 3 not-for-profit, 3 government, and 46 commercial) using registry data. In conclusion, the CNDR is an effective and productive pan-neuromuscular registry that has successfully facilitated a substantial number of studies over the past 10 years.<\/jats:p>","DOI":"10.3233\/jnd-200538","type":"journal-article","created":{"date-parts":[[2020,9,8]],"date-time":"2020-09-08T10:35:26Z","timestamp":1599561326000},"page":"53-61","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":25,"title":["The Canadian Neuromuscular Disease Registry 2010\u20132019: A Decade of Facilitating Clinical Research Througha Nationwide, Pan-NeuromuscularDisease Registry"],"prefix":"10.1177","volume":"8","author":[{"given":"V.","family":"Hodgkinson","sequence":"first","affiliation":[{"name":"Department of Clinical Neurosciences, and Hotchkiss Brain Institute, University of Calgary, Calgary, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J.","family":"Lounsberry","sequence":"additional","affiliation":[{"name":"Department of Clinical Neurosciences, and Hotchkiss Brain Institute, University of Calgary, Calgary, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S.","family":"M\u2019Dahoma","sequence":"additional","affiliation":[{"name":"Department of Clinical Neurosciences, and Hotchkiss Brain Institute, University of Calgary, Calgary, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Russell","sequence":"additional","affiliation":[{"name":"Department of Clinical Neurosciences, and Hotchkiss Brain Institute, University of Calgary, Calgary, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"G.","family":"Jewett","sequence":"additional","affiliation":[{"name":"Department of Clinical Neurosciences, and Hotchkiss Brain Institute, University of Calgary, Calgary, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"T.","family":"Benstead","sequence":"additional","affiliation":[{"name":"Division of Neurology, Dalhousie University, Halifax, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"B.","family":"Brais","sequence":"additional","affiliation":[{"name":"Montreal Neurological Institute and Hospital, Montreal, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C.","family":"Campbell","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Children\u2019s Health Research Institute, London Health Sciences Centre, Western University, London, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"W.","family":"Johnston","sequence":"additional","affiliation":[{"name":"Division of Neurology, Department of Medicine, Faculty of Medicine, University of Alberta, Edmonton, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"H.","family":"Lochm\u00fcller","sequence":"additional","affiliation":[{"name":"Children\u2019s Hospital of Eastern Ontario, University of Ottawa, Ottawa, Canada"},{"name":"Department of Medicine, The Ottawa Hospital and Brain and Mind Research Institute, University of Ottawa, Ottawa, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"McCormick","sequence":"additional","affiliation":[{"name":"Children\u2019s Hospital of Eastern Ontario, University of Ottawa, Ottawa, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C. 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