{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T01:12:51Z","timestamp":1777857171737,"version":"3.51.4"},"reference-count":58,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2023,5,13]],"date-time":"2023-05-13T00:00:00Z","timestamp":1683936000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Neuromuscular Diseases"],"published-print":{"date-parts":[[2023,7,4]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>The management of tracheotomy at home can be very complex, affecting the patient\u2019s quality of life.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives:<\/jats:title>\n                    <jats:p>This case series study aimed to explore the experiences of patients affected by neuromuscular diseases (NMD) concerning tracheostomy and Invasive Mechanical Ventilation (IMV) management at home during the COVID-19 health emergency in Italy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Semi-structured interviews and the following instruments were used: Connor and Davidson Resilience Scale (CD-RISC-25); Acceptance and Action Questionnaire-II (AAQ-II); State-Trait Anxiety Inventory (STAI); Langer Mindfulness Scale (LMS). Descriptive analyses, correlations, and qualitative analyses were carried out.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>22 patients [50% female, mean age\u200a=\u200a50.2 (SD\u200a=\u200a21.2)] participated in the study. Participants who showed high levels of dispositional mindfulness in terms of novelty-seeking ( r\u200a=\u200a0.736, p\u200a=\u200a0.013) and novelty production ( r\u200a=\u200a0.644, p\u200a=\u200a0.033) were those with higher resilience. The main emotion that emerged was the fear of contagion (19 patients, 86.36%), due to the previous fragile condition, leading to a significant sense of abandonment. The tracheostomy\u2019s perception is seen in extremes as a lifesaver or a condemnation. The relationship with the health professionals moves from satisfaction to a feeling of abandonment with a lack of preparation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>The relationship between resilience, flexibility, state anxiety and dispositional mindfulness offers ways to reinforce tracheostomy management at home, even in critical periods when going to the hospital may be difficult.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.3233\/jnd-221597","type":"journal-article","created":{"date-parts":[[2023,5,16]],"date-time":"2023-05-16T11:24:51Z","timestamp":1684236291000},"page":"517-529","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Life Experiences in Neuromuscular Tracheotomized Patients in Times of Covid-19"],"prefix":"10.1177","volume":"10","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0266-6386","authenticated-orcid":false,"given":"Eleonora","family":"Volpato","sequence":"first","affiliation":[{"name":"Department of Psychology, Universit\u00e0 Cattolica del Sacro Cuore, Milan, Italy"},{"name":"IRCCS Fondazione Don Carlo Gnocchi, Milan, Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0201-0486","authenticated-orcid":false,"given":"Paola","family":"Pierucci","sequence":"additional","affiliation":[{"name":"Cardiothoracic Department, Respiratory and Critical care Unit Bari Policlinic University Hospital, B. Section of Respiratory Diseases, Department of Basic Medical Science Neuroscience and Sense Organs, University of Bari \u2018Aldo Moro\u2019, Bari, Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maria Luisa","family":"De Candia","sequence":"additional","affiliation":[{"name":"Cardiothoracic Department, Respiratory and Critical care Unit Bari Policlinic University Hospital, B. Section of Respiratory Diseases, Department of Basic Medical Science Neuroscience and Sense Organs, University of Bari \u2018Aldo Moro\u2019, Bari, Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Massimo","family":"Casparrini","sequence":"additional","affiliation":[{"name":"Cardiothoracic Department, Respiratory and Critical care Unit Bari Policlinic University Hospital, B. 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