{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T13:53:37Z","timestamp":1785419617697,"version":"3.56.0"},"reference-count":26,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2024,1,13]],"date-time":"2024-01-13T00:00:00Z","timestamp":1705104000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Parkinson\u2019s Disease"],"published-print":{"date-parts":[[2024,1,23]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>There is significant unmet need for effective and efficiently delivered care for people with Parkinson\u2019s disease (PwP). We undertook a service improvement initiative to co-develop and implement a new care pathway, Home Based Care (HBC), based on supported self-management, remote monitoring and the ability to trigger a healthcare contact when needed.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>To evaluate feasibility, acceptability and safety of Home Based Care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>We evaluated data from the first 100 patients on HBC for 6 months. Patient monitoring, performed at baseline and 6-monthly, comprised motor (MDS-UPDRS II and accelerometer), non-motor (NMSQ, PDSS-2, HADS) and quality of life (PDQ) measures. Care quality was audited against Parkinson\u2019s UK national audit standards. Process measures captured feasibility. Acceptability was assessed using a mixed-methods approach comprising questionnaires and semi-structured interviews.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Between October 2019 and January 2021, 108 PwP were enrolled onto HBC, with data from 100 being available at 6 months. Over 90% of all questionnaires were returned, 97% were complete or had &lt;\u200a3 missing items. Reporting and communications occurred within agreed timeframes. Compared with baseline, after 6m on HBC, PD symptoms were stable; more PwP felt listened to (90% vs. 79%) and able to seek help (79% vs. 68%). HBC met 93% of national audit criteria. Key themes from the interviews included autonomy and empowerment.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>We have demonstrated acceptability, feasibility and safety of our novel remotely delivered Parkinson\u2019s care pathway. Ensuring scalability will widen its reach and realize its benefits for underserved communities, enabling formal comparisons with standard care and cost-effectiveness evaluation.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.3233\/jpd-230205","type":"journal-article","created":{"date-parts":[[2024,1,16]],"date-time":"2024-01-16T11:12:05Z","timestamp":1705403525000},"page":"197-208","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":19,"title":["Real-World Evaluation of the Feasibility, Acceptability and Safety of a Remote, Self-Management Parkinson\u2019s Disease Care Pathway: A Healthcare Improvement Initiative"],"prefix":"10.1177","volume":"14","author":[{"given":"Angie A.","family":"Kehagia","sequence":"first","affiliation":[{"name":"School of Biomedical Engineering and Imaging Sciences, King\u2019s Technology Evaluation Centre, King\u2019s College London, UK"},{"name":"University of Plymouth, Plymouth, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Chowienczyk","sequence":"additional","affiliation":[{"name":"University of Plymouth, Plymouth, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michelle","family":"Helena van Velthoven","sequence":"additional","affiliation":[{"name":"Dutches Consulting Ltd, Cambridge, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emma","family":"King","sequence":"additional","affiliation":[{"name":"University Hospitals Plymouth NHS Trust, Plymouth, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tracie","family":"North","sequence":"additional","affiliation":[{"name":"Fre-est Ltd, Truro, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Deb","family":"Shenton","sequence":"additional","affiliation":[{"name":"University of Plymouth, Plymouth, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jane","family":"Abraham","sequence":"additional","affiliation":[{"name":"Flourish Workplace Ltd, Callington, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joseph","family":"Langley","sequence":"additional","affiliation":[{"name":"Sheffield Hallam University, Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebecca","family":"Partridge","sequence":"additional","affiliation":[{"name":"Sheffield Hallam University, Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ursula","family":"Ankeny","sequence":"additional","affiliation":[{"name":"Sheffield Hallam University, Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Terry","family":"Gorst","sequence":"additional","affiliation":[{"name":"South West Academic Health Science Network, Exeter, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emma","family":"Edwards","sequence":"additional","affiliation":[{"name":"Livewell Southwest, Plymouth, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sue","family":"Whipps","sequence":"additional","affiliation":[{"name":"Experts by Experience, Devon, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martha","family":"Batup","sequence":"additional","affiliation":[{"name":"Experts by Experience, Devon, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jane","family":"Rideout","sequence":"additional","affiliation":[{"name":"Experts by Experience, Devon, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mat","family":"Swabey","sequence":"additional","affiliation":[{"name":"University Hospitals Plymouth NHS Trust, Plymouth, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jemma","family":"Inches","sequence":"additional","affiliation":[{"name":"University Hospitals Plymouth NHS Trust, Plymouth, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sue","family":"Bentley","sequence":"additional","affiliation":[{"name":"University Hospitals Plymouth NHS Trust, Plymouth, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Georgina","family":"Gilbert","sequence":"additional","affiliation":[{"name":"University Hospitals Plymouth NHS Trust, Plymouth, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Camille","family":"Carroll","sequence":"additional","affiliation":[{"name":"University of Plymouth, Plymouth, UK"},{"name":"University Hospitals Plymouth NHS Trust, Plymouth, UK"},{"name":"Newcastle University Translational and Clinical Research Institute, Newcastle, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,1,13]]},"reference":[{"key":"ref001","unstructured":"National Institute for Health and Care Excellence, Parkinson\u2019s disease in adults. NICE guideline [NG71], https:\/\/www.nice.org.uk\/guidance\/ng71, Accessed 10\nMarch 2023."},{"key":"ref002","unstructured":"Parkinson\u2019s UK, Parkinson\u2019s UK Audit \u2013Transforming Care, https:\/\/www.parkinsons.org.uk\/media\/34696."},{"key":"ref003","unstructured":"Parkinson\u2019s UK (2022), Written evidence submitted by Parkinson\u2019s UK (RTR0067). https:\/\/committees.parliament.uk\/writtenevidence\/42721\/pdf\/."},{"key":"ref004","doi-asserted-by":"publisher","DOI":"10.1002\/mds.27302"},{"key":"ref005","unstructured":"NHS England, The NHS Long Term Plan., https:\/\/www.longtermplan.nhs.uk\/,"},{"key":"ref006","unstructured":"NHS England, Parkinson\u2019s patients benefit from revolutionary watch on the NHS to manage care at home, https:\/\/www.england.nhs.uk\/2022\/04\/parkinsons-patientsbenefit-from-revolutionary-watch-on-the-nhs-to-managecare-at-home\/, April 2022."},{"key":"ref007","doi-asserted-by":"crossref","unstructured":"LangleyJ, PartridgeR, AnkenyU, WheelerG, CarrollC (2022) Co-designing resources for knowledge-based selfreflection for people living with Parkinson\u2019s disease to better enable independent living. In Developments in Design Research and Practice, Duarte E, Rosa C, eds. Springer, pp. 237-251.","DOI":"10.1007\/978-3-030-86596-2_18"},{"key":"ref008","doi-asserted-by":"publisher","DOI":"10.1097\/NCQ.0000000000000153"},{"key":"ref009","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-2012-11071"},{"key":"ref010","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-202101"},{"key":"ref011","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.320.7227.114"},{"key":"ref012","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-5-63"},{"key":"ref013","doi-asserted-by":"publisher","DOI":"10.12968\/bjon.2002.11.2.9309"},{"key":"ref014","doi-asserted-by":"publisher","DOI":"10.1111\/ene.12544"},{"key":"ref015","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-015-7877-2"},{"key":"ref016","doi-asserted-by":"publisher","DOI":"10.1002\/mds.28097"},{"key":"ref017","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(20)30064-8"},{"key":"ref018","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-202126"},{"key":"ref019","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-181431"},{"key":"ref020","doi-asserted-by":"publisher","DOI":"10.1002\/mds.26744"},{"key":"ref021","doi-asserted-by":"publisher","DOI":"10.1016\/j.parkreldis.2021.05.008"},{"key":"ref022","unstructured":"NHS England, Digital Health Partnership Awards, NHS England Tranformation Directorate, https:\/\/transform.england.nhs.uk\/key-tools-and-info\/digital-health-partnership-award\/, Accessed November 22, 2023."},{"key":"ref023","doi-asserted-by":"publisher","DOI":"10.1111\/j.1742-1241.2011.02765.x"},{"key":"ref024","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2017.04.011"},{"key":"ref025","first-page":"6920943","volume":"2020","author":"Hellqvist C","year":"2020","journal-title":"Parkinsons Dis"},{"key":"ref026","unstructured":"McLennanD, NobleS, NobleM, PlunkettE, WrightG, GutackerN The English indices of deprivation 2019. 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Ministry of Housing Communities and Local Government. https:\/\/assets.publishing.service. gov.uk\/government\/uploads\/system\/uploads\/attachment_data\/file\/833951\/IoD2019_Technical_Report.pdf."}],"container-title":["Journal of Parkinson\u2019s Disease"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.3233\/JPD-230205","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.3233\/JPD-230205","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.3233\/JPD-230205","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T04:53:01Z","timestamp":1777611181000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.3233\/JPD-230205"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,1,13]]},"references-count":26,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2024,1,23]]}},"alternative-id":["10.3233\/JPD-230205"],"URL":"https:\/\/doi.org\/10.3233\/jpd-230205","relation":{},"ISSN":["1877-7171","1877-718X"],"issn-type":[{"value":"1877-7171","type":"print"},{"value":"1877-718X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,1,13]]}}}