{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,12]],"date-time":"2026-09-12T06:15:46Z","timestamp":1789193746882,"version":"build-2803163510"},"reference-count":14,"publisher":"SAGE Publications","issue":"3-4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["PRM"],"published-print":{"date-parts":[[2017,12,11]]},"DOI":"10.3233\/prm-170466","type":"journal-article","created":{"date-parts":[[2017,11,7]],"date-time":"2017-11-07T12:13:02Z","timestamp":1510056782000},"page":"335-343","source":"Crossref","is-referenced-by-count":43,"title":["Bowel management and continence in adults with spina bifida: Results from the National Spina Bifida Patient Registry 2009\u201315"],"prefix":"10.1177","volume":"10","author":[{"given":"John S.","family":"Wiener","sequence":"first","affiliation":[{"name":"Division of Urologic Surgery, Duke University Medical Center, Durham, NC, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristina D.","family":"Suson","sequence":"additional","affiliation":[{"name":"Department of Urology, Children\u2019s Hospital of Michigan, Detroit, MI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jonathan","family":"Castillo","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Baylor College of Medicine, Houston, TX, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jonathan C.","family":"Routh","sequence":"additional","affiliation":[{"name":"Division of Urologic Surgery, Duke University Medical Center, Durham, NC, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stacy","family":"Tanaka","sequence":"additional","affiliation":[{"name":"Department of Urology, Vanderbilt University, Nashville, TN, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tiebin","family":"Liu","sequence":"additional","affiliation":[{"name":"Centers for Disease Control and Prevention, Atlanta, GA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elisabeth","family":"Ward","sequence":"additional","affiliation":[{"name":"Carter Consulting, Inc., Consultant to CDC, Atlanta, GA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Judy","family":"Thibadeau","sequence":"additional","affiliation":[{"name":"Centers for Disease Control and Prevention, Atlanta, GA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Joseph","sequence":"additional","affiliation":[{"name":"Department of Urology, University of Alabama at Birmingham, Birmingham, AL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"National\u00a0Spina\u00a0Bifida\u00a0Patient","family":"Registry","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","reference":[{"issue":"12","key":"10.3233\/PRM-170466_ref1","doi-asserted-by":"crossref","first-page":"1008","DOI":"10.1002\/bdra.20735","article-title":"Updated National Birth Prevalence estimates for selected birth defects in the United States, 2004-2006","volume":"88","author":"Parker","year":"2010","journal-title":"Birth Defects Res A Clin Mol Teratol."},{"issue":"7","key":"10.3233\/PRM-170466_ref2","doi-asserted-by":"crossref","first-page":"552","DOI":"10.1002\/bdra.20360","article-title":"Health care expenditures of children and adults with spina bifida in a privately insured US population","volume":"79","author":"Ouyang","year":"2007","journal-title":"Birth Defects Res A Clin Mol Teraol."},{"issue":"2","key":"10.3233\/PRM-170466_ref3","first-page":"144","article-title":"Assessing health-related quality of life in children with spina bifida","volume":"15","author":"Rocque","year":"2015","journal-title":"Journal of Neurosurgery: Pediatrics."},{"issue":"2","key":"10.3233\/PRM-170466_ref4","doi-asserted-by":"crossref","first-page":"44","DOI":"10.1016\/j.urology.2014.03.041","article-title":"Urologic problems in spina bifida patients transitioning to adult care","volume":"84","author":"Summers","year":"2014","journal-title":"Urology."},{"issue":"1","key":"10.3233\/PRM-170466_ref5","doi-asserted-by":"crossref","first-page":"36","DOI":"10.1002\/bdra.23094","article-title":"Testing the feasibility of a National Spina Bifida Patient Registry","volume":"97","author":"Thibadeau","year":"2013","journal-title":"Birth Defects Res A Clin Mol Teratol."},{"issue":"2","key":"10.3233\/PRM-170466_ref6","doi-asserted-by":"crossref","first-page":"444","DOI":"10.1016\/j.jpeds.2014.09.039","article-title":"The National Spina Bifida Patient Registry: profile of a large cohort of participants from the first 10 clinic","volume":"166","author":"Sawin","year":"2014","journal-title":"J Pediatr."},{"issue":"4","key":"10.3233\/PRM-170466_ref7","doi-asserted-by":"crossref","first-page":"e957","DOI":"10.1542\/peds.2014-2576","article-title":"Sociodemographic attributes and spina bifida outcomes","volume":"135","author":"Schechter","year":"2015","journal-title":"Pediatrics."},{"issue":"3","key":"10.3233\/PRM-170466_ref9","doi-asserted-by":"crossref","first-page":"885","DOI":"10.1016\/j.juro.2016.08.117","article-title":"All incontinence is not created equal: impact of urinary and fecal incontinence on quality of life in adults with spina bifida","volume":"197","author":"Szymanski","year":"2017","journal-title":"J. Urol."},{"issue":"1","key":"10.3233\/PRM-170466_ref10","first-page":"72","article-title":"A snapshot of the adult spina bifida patient \u2013 high incidence of urologic procedures","volume":"69","author":"Liu","year":"2016","journal-title":"Cent European J Urol."},{"issue":"3","key":"10.3233\/PRM-170466_ref11","doi-asserted-by":"crossref","first-page":"38","DOI":"10.1186\/s12875-016-0440-0","article-title":"The influence of gender and other patient characteristics on health care-seeking behavior: a QUALICOPC study","volume":"17","author":"Thompson","year":"2016","journal-title":"BMC Fam Pract."},{"issue":"9","key":"10.3233\/PRM-170466_ref12","doi-asserted-by":"crossref","first-page":"e14","DOI":"10.2105\/AJPH.2014.302098","article-title":"The association between race\/ethnicity and major birth defects in the United States, 1999-2007","volume":"104","author":"Canfield","year":"2014","journal-title":"Am J Pub Health."},{"issue":"8","key":"10.3233\/PRM-170466_ref13","doi-asserted-by":"crossref","first-page":"1435","DOI":"10.1016\/j.apmr.2015.02.029","article-title":"Factors associated with pressure sores in individual with spina bifida","volume":"96","author":"Kim","year":"2015","journal-title":"Arch Phys Med Rehabil."},{"issue":"3","key":"10.3233\/PRM-170466_ref14","doi-asserted-by":"crossref","first-page":"370","DOI":"10.1177\/0883073815596611","article-title":"Skin Ulcers and Mortality Among Adolescents and Young Adults With Spina Bifida in South Carolina During 2000-2010","volume":"31","author":"Cai","year":"2016","journal-title":"J Child Neurol."},{"issue":"7","key":"10.3233\/PRM-170466_ref15","first-page":"714","article-title":"Life course health and healthcare utilization among adults with spina bifida","volume":"58","author":"Litpak","year":"2015","journal-title":"Dev Med Child Neurol."}],"container-title":["Journal of Pediatric Rehabilitation Medicine"],"original-title":[],"link":[{"URL":"https:\/\/content.iospress.com\/download?id=10.3233\/PRM-170466","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T04:35:24Z","timestamp":1777610124000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/full\/10.3233\/PRM-170466"}},"subtitle":[],"editor":[{"given":"Timothy","family":"Brei","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"editor"}]},{"given":"Amy","family":"Houtrow","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"editor"}]}],"short-title":[],"issued":{"date-parts":[[2017,12,11]]},"references-count":14,"journal-issue":{"issue":"3-4"},"URL":"https:\/\/doi.org\/10.3233\/prm-170466","relation":{},"ISSN":["1875-8894","1874-5393"],"issn-type":[{"value":"1875-8894","type":"electronic"},{"value":"1874-5393","type":"print"}],"subject":[],"published":{"date-parts":[[2017,12,11]]}}}