{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T09:49:00Z","timestamp":1777888140813,"version":"3.51.4"},"reference-count":10,"publisher":"SAGE Publications","issue":"4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["PRM"],"published-print":{"date-parts":[[2020,12,22]]},"abstract":"<jats:p>\u201cGuidelines for the Care of People with Spina Bifida\u201d provide the best, most up-to-date recommendations for care across the lifespan, from newborn to adult. This special issue of the Journal of Pediatric Rehabilitation Medicine is a collection of key sections of the 2018 Guidelines. The sections of the Guidelines published herein have been expanded from their original format to include more background information about key topics and why they are important in the care of people with SB. It is the hope of SBA that these and future Guidelines will promote and standardize best practice regardless of the characteristics of individuals with SB or where their care was received. It is through providing better care that we will ultimately achieve a better future for all those living with SB.<\/jats:p>","DOI":"10.3233\/prm-200691","type":"journal-article","created":{"date-parts":[[2020,9,22]],"date-time":"2020-09-22T19:33:25Z","timestamp":1600803205000},"page":"457-459","source":"Crossref","is-referenced-by-count":3,"title":["Preface to the special issue for the guidelines for the care of people with spina bifida"],"prefix":"10.1177","volume":"13","author":[{"given":"Brad E.","family":"Dicianno","sequence":"first","affiliation":[{"name":"Spina Bifida Association, Arlington, VA, USA"},{"name":"Department of Physical Medicine and Rehabilitation, University of Pittsburgh School of Medicine, Pittsburgh, PA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nienke","family":"Dosa","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Patricia","family":"Beierwaltes","sequence":"additional","affiliation":[{"name":"School of Nursing, Minnesota State University e Mankato, Mankato, MN, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","reference":[{"issue":"2","key":"10.3233\/PRM-200691_ref2","doi-asserted-by":"publisher","first-page":"100816","DOI":"10.1016\/j.dhjo.2019.06.005","article-title":"Scientific methodology of the development of the guidelines for the care of people with spina bifida: An initiative of the spina bifida association","volume":"13","author":"Dicianno","year":"2020","journal-title":"Disabil Health J"},{"key":"10.3233\/PRM-200691_ref3","doi-asserted-by":"publisher","first-page":"218","DOI":"10.1016\/j.urology.2018.01.005","article-title":"Spina bifida health-care guidelines for men\u2019s health","volume":"116","author":"Wiener","year":"2018","journal-title":"Urology"},{"issue":"4","key":"10.3233\/PRM-200691_ref4","doi-asserted-by":"publisher","first-page":"423","DOI":"10.3233\/PRM-190633","article-title":"Spina bifida transition to adult healthcare guidelines","volume":"12","author":"Fremion","year":"2019","journal-title":"J Pediatr Rehabil Med"},{"key":"10.3233\/PRM-200691_ref5","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2014-0318"},{"key":"10.3233\/PRM-200691_ref6","doi-asserted-by":"publisher","first-page":"S224","DOI":"10.1542\/peds.2017-1284G","article-title":"Care coordination for children with medical complexity: Whose care is it, anyway","volume":"141","author":"Kuo","year":"2018","journal-title":"Pediatrics"},{"issue":"6","key":"10.3233\/PRM-200691_ref7","doi-asserted-by":"publisher","first-page":"e20163021","DOI":"10.1542\/peds.2016-3021","article-title":"Recognition and management of medical complexity","volume":"138","author":"Kuo","year":"2016","journal-title":"Pediatrics"},{"issue":"2","key":"10.3233\/PRM-200691_ref8","doi-asserted-by":"publisher","first-page":"e20171489","DOI":"10.1542\/peds.2017-1489","article-title":"Guiding principles for team-based pediatric care","volume":"140","author":"Katkin","year":"2017","journal-title":"Pediatrics"},{"issue":"9","key":"10.3233\/PRM-200691_ref9","doi-asserted-by":"publisher","first-page":"1601","DOI":"10.1016\/j.apmr.2014.01.011","article-title":"21st century challenges to the provision of health care to adults with spina bifida: A rehabilitation approach","volume":"95","author":"Dicianno","year":"2014","journal-title":"Arch Phys Med Rehabil"},{"issue":"2","key":"10.3233\/PRM-200691_ref10","doi-asserted-by":"publisher","first-page":"100883","DOI":"10.1016\/j.dhjo.2019.100883","article-title":"Philosophy of care delivery for spina bifida","volume":"13","author":"Thibadeau","year":"2020","journal-title":"Disabil Health J"},{"issue":"2","key":"10.3233\/PRM-200691_ref11","doi-asserted-by":"publisher","first-page":"100","DOI":"10.1071\/PY14114","article-title":"Establishing components of cultural competence healthcare models to better cater for the needs of migrants with disability: A systematic review","volume":"22","author":"Olaussen","year":"2016","journal-title":"Aust J Prim Health"}],"container-title":["Journal of Pediatric Rehabilitation Medicine"],"original-title":[],"link":[{"URL":"https:\/\/content.iospress.com\/download?id=10.3233\/PRM-200691","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T04:36:43Z","timestamp":1777610203000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/full\/10.3233\/PRM-200691"}},"subtitle":[],"editor":[{"given":"Timothy","family":"Brei","sequence":"additional","affiliation":[],"role":[{"role":"editor","vocabulary":"crossref"}]},{"given":"Heidi","family":"Castillo","sequence":"additional","affiliation":[],"role":[{"role":"editor","vocabulary":"crossref"}]},{"given":"Jonathan","family":"Castillo","sequence":"additional","affiliation":[],"role":[{"role":"editor","vocabulary":"crossref"}]}],"short-title":[],"issued":{"date-parts":[[2020,12,22]]},"references-count":10,"journal-issue":{"issue":"4"},"URL":"https:\/\/doi.org\/10.3233\/prm-200691","relation":{},"ISSN":["1875-8894","1874-5393"],"issn-type":[{"value":"1875-8894","type":"electronic"},{"value":"1874-5393","type":"print"}],"subject":[],"published":{"date-parts":[[2020,12,22]]}}}