{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,8]],"date-time":"2026-10-08T00:26:17Z","timestamp":1791419177035,"version":"4.3.3"},"reference-count":62,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2020,9,18]],"date-time":"2020-09-18T00:00:00Z","timestamp":1600387200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2020,9,18]],"date-time":"2020-09-18T00:00:00Z","timestamp":1600387200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Rehabilitation Medicine"],"published-print":{"date-parts":[[2020,12,22]]},"abstract":"<jats:p>Spina bifida\u2019s (SB) impact on cognitive, physical, and psychosocial functioning places individuals at risk for mental health concerns. This article discusses the SB Mental Health Guidelines from the 2018 Spina Bifida Association\u2019s Fourth Edition of the Guidelines for the Care of People with Spina Bifida and reviews evidence-based directions with the intention of helping individuals with SB achieve optimal mental health throughout the lifespan. Guidelines address clinical questions pertaining to the psychosocial impact of SB on mental health and adaptation, domains of mental health that are affected in individuals with SB, areas of resilience, common maladaptive behaviors that may impact people with SB, and resources or practices that are helpful in mitigating mental health issues in this population. Gaps in the research and future directions are discussed.<\/jats:p>","DOI":"10.3233\/prm-200719","type":"journal-article","created":{"date-parts":[[2020,9,22]],"date-time":"2020-09-22T19:34:35Z","timestamp":1600803275000},"page":"525-534","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":13,"title":["Mental health guidelines for the care of people with spina bifida"],"prefix":"10.1177","volume":"13","author":[{"given":"Tessa K.","family":"Kritikos","sequence":"first","affiliation":[{"name":"Loyola University Chicago","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathryn","family":"Smith","sequence":"additional","affiliation":[{"name":"Children\u2019s Hospital Los Angeles, Los Angeles, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Grayson N.","family":"Holmbeck","sequence":"additional","affiliation":[{"name":"Loyola University Chicago","place":["USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2020,9,18]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/17.2.133"},{"key":"e_1_3_3_3_2","unstructured":"ThompsonRJ Jr GustafsonKE. Adaptation to chronic childhood illness. American Psychological Association; 1996."},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1023\/A:1026211028595"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/22.5.707"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1038\/nrdp.2015.7"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsu098"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1053\/apmr.2002.34599"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejogrb.2014.07.048"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1002\/ddrr.96"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jss095"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsp094"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1037\/hea0000050"},{"key":"e_1_3_3_14_2","unstructured":"BreiTJ SawinKJ WebbT Others. Testing a model predicting health related quality of life in a multi-site study of adolescents & young adults with spina bifida. Scientific abstracts: the future is now. In: First World Congress on Spina Bifida Research and Care Orlando (FL): Spina Bifida Association. 2009."},{"key":"e_1_3_3_15_2","first-page":"1","article-title":"Individual and family factors associated with health-related quality of life in adolescents and young adults with spina bifida","volume":"23","author":"Sawin KJ","year":"2007","unstructured":"SawinKJ, BuranCF, BreiTJ, CashinSE. Individual and family factors associated with health-related quality of life in adolescents and young adults with spina bifida. SCI Nurs. 2007; 23: 1\u201316.","journal-title":"SCI Nurs"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.1136\/adc.83.4.293"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.2003.029058"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsm042"},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsu075"},{"issue":"2","key":"e_1_3_3_20_2","first-page":"280","article-title":"Family and peer issues among adolescents with spina bifida and cerebral palsy","volume":"88","author":"Blum RW","year":"1991","unstructured":"BlumRW, ResnickMD, NelsonR, St GermaineA. Family and peer issues among adolescents with spina bifida and cerebral palsy. Pediatrics. 1991 Aug; 88(2): 280\u20135.","journal-title":"Pediatrics"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1037\/0022-006x.71.4.782"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1037\/a0019599"},{"key":"e_1_3_3_23_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsr075"},{"key":"e_1_3_3_24_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsu101"},{"key":"e_1_3_3_25_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2009.02.065"},{"key":"e_1_3_3_26_2","doi-asserted-by":"publisher","DOI":"10.2340\/16501977-1863"},{"key":"e_1_3_3_27_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejogrb.2012.04.003"},{"key":"e_1_3_3_28_2","doi-asserted-by":"publisher","DOI":"10.1037\/a0014279"},{"key":"e_1_3_3_29_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/27.2.177"},{"key":"e_1_3_3_30_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.dhjo.2012.12.003"},{"key":"e_1_3_3_31_2","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCOUTCOMES.118.005263"},{"key":"e_1_3_3_32_2","doi-asserted-by":"publisher","DOI":"10.1067\/mpd.2001.119991"},{"key":"e_1_3_3_33_2","doi-asserted-by":"publisher","DOI":"10.1080\/16501970310012400"},{"key":"e_1_3_3_34_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1651-2227.2009.01410.x"},{"key":"e_1_3_3_35_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2009.03293.x"},{"key":"e_1_3_3_36_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.dhjo.2014.06.008"},{"key":"e_1_3_3_37_2","doi-asserted-by":"publisher","DOI":"10.1007\/s13679-017-0254-y"},{"key":"e_1_3_3_38_2","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.34383"},{"key":"e_1_3_3_39_2","doi-asserted-by":"publisher","DOI":"10.1080\/09638280802356476"},{"key":"e_1_3_3_40_2","doi-asserted-by":"publisher","DOI":"10.1080\/10790268.2016.1195071"},{"key":"e_1_3_3_41_2","doi-asserted-by":"publisher","unstructured":"Stiles-ShieldsC HolmbeckGN. Health behaviors and disordered eating in adolescents and young adults with spina bifida: results from a national survey. Disabil Rehabil. 2019 Apr 12; 1\u20137. doi: 10.1080\/09638288.2019.1575483.","DOI":"10.1080\/09638288.2019.1575483"},{"key":"e_1_3_3_42_2","doi-asserted-by":"publisher","DOI":"10.1097\/PHM.0b013e31829e780e"},{"key":"e_1_3_3_43_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsy097"},{"key":"e_1_3_3_44_2","doi-asserted-by":"publisher","DOI":"10.1097\/01.ajp.0000210929.43192.5d"},{"key":"e_1_3_3_45_2","doi-asserted-by":"publisher","DOI":"10.1017\/S0012162206000569"},{"key":"e_1_3_3_46_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsq093"},{"key":"e_1_3_3_47_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2011.04.011"},{"key":"e_1_3_3_48_2","doi-asserted-by":"publisher","DOI":"10.3233\/PRM-170455"},{"key":"e_1_3_3_49_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsq075"},{"key":"e_1_3_3_50_2","doi-asserted-by":"publisher","DOI":"10.3233\/PRM-2008-00047"},{"key":"e_1_3_3_51_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2214.2011.01299.x"},{"key":"e_1_3_3_52_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.dhjo.2013.06.005"},{"key":"e_1_3_3_53_2","doi-asserted-by":"publisher","DOI":"10.3233\/PRM-170466"},{"key":"e_1_3_3_54_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2018.02.3101"},{"key":"e_1_3_3_55_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.dhjo.2019.06.005"},{"key":"e_1_3_3_56_2","unstructured":"Spina Bifida Association. Guidelines for the care of people with spina bifida. 2018. Available at https:\/\/www.spinabifidaassociation.org\/guidelines\/."},{"key":"e_1_3_3_57_2","doi-asserted-by":"publisher","DOI":"10.1002\/ddrr.90"},{"key":"e_1_3_3_58_2","doi-asserted-by":"publisher","DOI":"10.1080\/09638280802358282"},{"key":"e_1_3_3_59_2","doi-asserted-by":"publisher","DOI":"10.2340\/16501977-0239"},{"key":"e_1_3_3_60_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsj097"},{"key":"e_1_3_3_61_2","doi-asserted-by":"publisher","unstructured":"American Academy of Pediatrics Council on Communications and Media. Media Use in School-Aged Children and Adolescents. Pediatrics. 2016 Nov; 138(5): e20162592. doi: 10.1542\/peds.2016-2592.","DOI":"10.1542\/peds.2016-2592"},{"key":"e_1_3_3_62_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/"},{"key":"e_1_3_3_63_2","doi-asserted-by":"publisher","DOI":"10.1097\/PHM.0b013e31818de070"}],"container-title":["Journal of Pediatric Rehabilitation Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.3233\/PRM-200719","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.3233\/PRM-200719","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.3233\/PRM-200719","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T04:36:54Z","timestamp":1777610214000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.3233\/PRM-200719"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,9,18]]},"references-count":62,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2020,12,22]]}},"alternative-id":["10.3233\/PRM-200719"],"URL":"https:\/\/doi.org\/10.3233\/prm-200719","relation":{},"ISSN":["1874-5393","1875-8894"],"issn-type":[{"value":"1874-5393","type":"print"},{"value":"1875-8894","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,9,18]]}}}