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This model is founded upon the use of music therapy in light of Stern\u2019s proposal of subjective experience and affect attunement; it also refers to Rosenbaum\u2019s family-centered rehabilitation medicine perspective. This study both describes the theory behind this intervention and presents a newly developed outcome measure. This novel tool may have future clinical and research applications. Music therapy for patients with RTT has not been well researched yet, and, as a result, is not universally recommended. However this study\u2019s findings suggest that music therapy is an important component of multidisciplinary therapy. Further collaborative research should be encouraged in order to study and implement the use of music therapy in the treatment of severe disabilities. Projects such as the Enablin+ program with the support from the European Commission constitute fundamental tools in promoting integrative medical research and international networks.<\/jats:p>","DOI":"10.3233\/prm-200736","type":"journal-article","created":{"date-parts":[[2022,1,4]],"date-time":"2022-01-04T11:55:04Z","timestamp":1641297304000},"page":"323-334","source":"Crossref","is-referenced-by-count":2,"title":["A semi-standardized music therapy intervention for girls with Rett syndrome: A descriptive essay"],"prefix":"10.1177","volume":"15","author":[{"given":"Marina Luisa Rodocanachi","family":"Roidi","sequence":"first","affiliation":[{"name":"IRCCS Fondazione Don Carlo Gnocchi, Milano, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kumiko","family":"Toshimori","sequence":"additional","affiliation":[{"name":"IRCCS Fondazione Don Carlo Gnocchi, Milano, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angelo","family":"Colletti","sequence":"additional","affiliation":[{"name":"IRCCS Fondazione Don Carlo Gnocchi, Milano, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Enrico","family":"Ripamonti","sequence":"additional","affiliation":[{"name":"Milan Center for Neuroscience, University of Milan-Bicocca, Milan, Italy"},{"name":"Department of Economics and Management, University of Brescia, Brescia, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ivana","family":"Olivieri","sequence":"additional","affiliation":[{"name":"IRCCS Fondazione Don Carlo Gnocchi, Milano, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","reference":[{"issue":"4","key":"10.3233\/PRM-200736_ref1","doi-asserted-by":"publisher","first-page":"296","DOI":"10.3109\/13668250903285648","article-title":"Interaction between persons with profound intellectual and multiple disabilities and their partners: A literature review","volume":"34","author":"Hostyn","year":"2009","journal-title":"J Intellect Dev Disabil"},{"issue":"5","key":"10.3233\/PRM-200736_ref2","doi-asserted-by":"publisher","first-page":"873","DOI":"10.1016\/j.ridd.2008.12.005","article-title":"Focus on interaction: The use of an individualized support program for persons with profound intellectual and multiple disabilities","volume":"30","author":"Vlaskamp","year":"2009","journal-title":"Res Dev Disabil"},{"key":"10.3233\/PRM-200736_ref3","doi-asserted-by":"crossref","first-page":"83","DOI":"10.1111\/j.1741-1130.2007.00104.x","article-title":"A need for a taxonomy for profound intellectual and multiple disabilities","volume":"4","author":"Nakken","year":"2007","journal-title":"J Policy Pract Intellect Disabil"},{"issue":"3","key":"10.3233\/PRM-200736_ref4","doi-asserted-by":"publisher","first-page":"282","DOI":"10.1002\/mds.22851","article-title":"Stereotypical hand movements in 144 subjects with Rett syndrome from the population-based Australian database","volume":"25","author":"Carter","year":"2010","journal-title":"Mov Disord"},{"issue":"15","key":"10.3233\/PRM-200736_ref5","doi-asserted-by":"publisher","first-page":"1183","DOI":"10.1212\/01.wnl.0000259086.34769.78","article-title":"Stereotypies in Rett syndrome: analysis of 83 patients with and without detected MECP2 mutations","volume":"68","author":"Temudo","year":"2007","journal-title":"Neurology"},{"issue":"7","key":"10.3233\/PRM-200736_ref6","doi-asserted-by":"publisher","first-page":"481","DOI":"10.1177\/08830738030180070201","article-title":"Hand preference, extent of laterality, and functional hand use in Rett syndrome","volume":"18","author":"Umansky","year":"2003","journal-title":"J Child Neurol"},{"issue":"4","key":"10.3233\/PRM-200736_ref7","doi-asserted-by":"publisher","first-page":"340","DOI":"10.1111\/j.1469-8749.1993.tb11646.x","article-title":"Emotional and behavioural aspects of Rett syndrome","volume":"35","author":"Sansom","year":"1993","journal-title":"Dev Med Child Neurol"},{"issue":"1","key":"10.3233\/PRM-200736_ref8","doi-asserted-by":"publisher","first-page":"11","DOI":"10.1186\/s11689-015-9104-y","article-title":"A national survey of Rett syndrome: behavioural characteristics","volume":"7","author":"Cianfaglione","year":"2015","journal-title":"J Neurodev Disord"},{"issue":"8","key":"10.3233\/PRM-200736_ref9","doi-asserted-by":"publisher","first-page":"1099","DOI":"10.1111\/1469-7610.00236","article-title":"The Rett Syndrome Behaviour Questionnaire (RSBQ): refining the behavioural phenotype of Rett syndrome","volume":"43","author":"Mount","year":"2002","journal-title":"J Child Psychol Psychiatry"},{"key":"10.3233\/PRM-200736_ref10","unstructured":"World Health Organization. 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