{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T04:05:05Z","timestamp":1787025905712,"version":"build-2736575974"},"reference-count":46,"publisher":"SAGE Publications","issue":"4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["PRM"],"published-print":{"date-parts":[[2021,12,23]]},"abstract":"<jats:p>PURPOSE: To determine characteristics associated with self-management independence and quality of life (QOL) among adolescents and young adults with spina bifida (AYASB) engaged in a spina bifida (SB) health care transition clinic. METHODS: During SB transition visits, Eighty-eight AYASB ages 14-20 completed the Adolescent\/Young Adult Self-management and Independence Scale II Self-Report\/SB (AMIS II-SR\/SB), scores ranging from 1\u20137 with 7 indicating full independence in activities, and the QUAlity of Life Assessment in Spina bifida for Teens (QUALAS-T), which has two subscales, family\/independence (QFI) and bowel\/bladder (QBB), with scores ranging from 0-100 with 100 indicating maximal QOL score. Demographic and clinical variables were collected from the electronic medical record. RESULTS: The baseline AMIS II-SR\/SB score was 3.3 (SD 1.0). Baseline scores for QUALAS-T QFI and QBB subscales were 73.8 (SD 19.9) and 63.8 (SD 25.8). Older age was associated with a higher baseline AMIS II-SR\/SB score (p\u200a=\u200a0.017). Over time, AMIS II-SR\/SB total significantly improved (p\u200a&lt;\u200a0.001), but QFI and QBB did not. AYASB not on chronic intermittent catheterization (CIC) and those using urethral CIC significantly improved in AMIS II-SR\/SB total scores (p\u200a=\u200a0.001), but those using abdominal channel CIC did not. CONCLUSION: Baseline bladder management method was associated with self-management improvement for AYASB engaged in a SB-specific transition clinic.<\/jats:p>","DOI":"10.3233\/prm-200758","type":"journal-article","created":{"date-parts":[[2021,10,13]],"date-time":"2021-10-13T19:08:31Z","timestamp":1634152111000},"page":"631-641","source":"Crossref","is-referenced-by-count":12,"title":["Factors associated with self-management independence and quality of life for adolescents and young adults with spina bifida engaged in a guideline-based transition clinic"],"prefix":"10.1177","volume":"14","author":[{"given":"Ellen","family":"Fremion","sequence":"first","affiliation":[{"name":"Transition Medicine, Department of Internal Medicine, Baylor College of Medicine, Houston, TX, USA"},{"name":"Spina Bifida Transition Clinic, Texas Children\u2019s Hospital, Houston, TX, 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