{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T09:50:48Z","timestamp":1777888248581,"version":"3.51.4"},"reference-count":34,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2023,12,26]],"date-time":"2023-12-26T00:00:00Z","timestamp":1703548800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["PRM"],"published-print":{"date-parts":[[2023,12,26]]},"abstract":"<jats:p>PURPOSE: This pilot study aimed to determine the parent\/caregiver\u2019s role in nutrition\/eating habits, physical activity behaviors, and food access among children diagnosed with spina bifida (SB). METHODS: Parents\/caregivers of children with SB were asked to participate at a single, outpatient SB clinic. Demographic, biomedical data, parent\/caregiver nutrition knowledge, family nutrition and physical activity (FNPA), and food security survey scores were compared. Descriptive, regression, and correlational statistics were conducted for analysis via SPSS 29. RESULTS: Of the 117 parents\/caregivers surveyed, completed data suggested most were overweight\/obese (average body mass index [BMI] of 30.63\u200akg\/m2\u00b18.40; n\u200a=\u200a99) with an average nutrition knowledge score of 71% (17.83\u00b13.33). As FNPA scores decreased, the patient\/child\u2019s maximum BMI z scores increased (\u03b2=\u200a\u20130.043; confidence interval \u20130.079, \u20130.007; p\u200a=\u200a0.020), suggesting the less active and\/or less healthy eating habits, the higher body mass was noted for the child. Forty four percent of children (n\u200a=\u200a99) were in the overweight\/obese weight range based on maximum BMI z score. CONCLUSION: These findings suggest there is a need for parental\/caregiver nutrition education to assist children with SB with meal and activity planning to achieve optimal health.<\/jats:p>","DOI":"10.3233\/prm-230016","type":"journal-article","created":{"date-parts":[[2023,12,29]],"date-time":"2023-12-29T12:02:38Z","timestamp":1703851358000},"page":"639-647","source":"Crossref","is-referenced-by-count":4,"title":["Parent\/caregiver\u2019s role in nutrition, physical activity, and food access among children diagnosed with spina bifida"],"prefix":"10.1177","volume":"16","author":[{"given":"JoAnne L.","family":"Whelan","sequence":"first","affiliation":[{"name":"Indiana University \u2013 Indianapolis, Indianapolis, IN, USA"},{"name":"Indiana University Health \u2013 Riley Hospital for Children, Indianapolis, IN, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cheryl L.H.","family":"Armstrong","sequence":"additional","affiliation":[{"name":"Indiana University \u2013 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