{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T09:50:51Z","timestamp":1777888251575,"version":"3.51.4"},"reference-count":30,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2024,11,1]],"date-time":"2024-11-01T00:00:00Z","timestamp":1730419200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2024,11,1]],"date-time":"2024-11-01T00:00:00Z","timestamp":1730419200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Rehabilitation Medicine"],"published-print":{"date-parts":[[2024,11]]},"abstract":"<jats:sec specific-use=\"heading-level-1\">\n                    <jats:title>Purpose:<\/jats:title>\n                    <jats:p>This paper describes the development and characteristics of a multi-disciplinary spina bifida clinic in Qatar considering the recently revised and globally available Guidelines for the Care of People with Spina Bifida (GCPSB).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec specific-use=\"heading-level-1\">\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>A retrospective chart review was performed on individuals in Sidra\u2019s multidisciplinary spina bifida clinic database from January 2019 to June 2020. Their electronic health records were reviewed for demographics, as well as neurosurgical, urologic, rehabilitation, and orthopedic interventions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec specific-use=\"heading-level-1\">\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>There were 127 patients in the database; 117 met inclusion criteria for diagnoses of myelomeningocele, meningocele, sacral agenesis\/caudal regression, and\/or spinal lipoma. Generally, Qatar is following GCPSB recommendations for multidisciplinary care. Consanguineous relationships, difficulties with access to urological and rehabilitation supplies and equipment, school access, and variable timing of neurosurgical closure were areas that demonstrated differences from GCPSB recommendations due to barriers in implementation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec specific-use=\"heading-level-1\">\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>The GCPSB recommendations are applicable in an international setting such as Qatar. Despite a few barriers in implementing some of the recommendations, this new multi-disciplinary spina bifida clinic demonstrates alignment with many of the GCPSB guidelines.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.3233\/prm-230034","type":"journal-article","created":{"date-parts":[[2024,8,27]],"date-time":"2024-08-27T10:10:56Z","timestamp":1724753456000},"page":"403-413","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Analysis of a newly developed multidisciplinary program in the Middle East informed by the recently revised spina bifida guidelines"],"prefix":"10.1177","volume":"17","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6057-4688","authenticated-orcid":false,"given":"Talia","family":"Collier","sequence":"first","affiliation":[{"name":"University of Texas Southwestern","place":["USA"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jonathan","family":"Castillo","sequence":"additional","affiliation":[{"name":"Texas Children\u2019s Hospital\/Baylor College of Medicine","place":["USA"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lisa","family":"Thornton","sequence":"additional","affiliation":[{"name":"Sidra Medicine","place":["Qatar"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Santiago","family":"Vallasciani","sequence":"additional","affiliation":[{"name":"Sidra Medicine","place":["Qatar"]}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Heidi","family":"Castillo","sequence":"additional","affiliation":[{"name":"Texas Children\u2019s Hospital\/Baylor College of Medicine","place":["USA"]}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2025,3,17]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0151586"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.3233\/JPN-2012-0567"},{"key":"e_1_3_3_4_2","unstructured":"Guidelines for the care of people with spina bifida. 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