{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,19]],"date-time":"2026-09-19T19:04:50Z","timestamp":1789844690909,"version":"4.0.1"},"reference-count":83,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2023,12,26]],"date-time":"2023-12-26T00:00:00Z","timestamp":1703548800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["PRM"],"published-print":{"date-parts":[[2023,12,26]]},"abstract":"<jats:p>PURPOSE: This article provides an update to the 2018 Spina Bifida Association\u2019s Transition to Adult Care Guidelines. METHODS: A workgroup of topic experts was convened including authors from the initial guideline workgroup. The workgroup reviewed and updated the primary, secondary, and tertiary outcome goals, clinical questions, and guideline recommendations based on a literature review. RESULTS: Twenty-two additional articles were identified from the literature search. Updated references included observational studies describing transition to adult care outcomes, transition care model initiatives, and a validated self-management assessment tool. CONCLUSION: Structured transition initiatives increase the likelihood of establishing with adult care, decrease acute care use for young adults with spina bifida, and have the potential to improve quality of life and optimize chronic condition management. However, there is still a need to implement structure transition practices more broadly for this population using these recommended guidelines.<\/jats:p>","DOI":"10.3233\/prm-230052","type":"journal-article","created":{"date-parts":[[2023,12,29]],"date-time":"2023-12-29T12:25:52Z","timestamp":1703852752000},"page":"583-593","source":"Crossref","is-referenced-by-count":7,"title":["2023 updates to the spina bifida transition to adult care guidelines1"],"prefix":"10.1177","volume":"16","author":[{"given":"Ellen","family":"Fremion","sequence":"first","affiliation":[{"name":"Departments of Internal Medicine and Pediatrics, Baylor College of Medicine, Houston, TX, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melissa","family":"Kaufman","sequence":"additional","affiliation":[{"name":"Department of Urology, Vanderbilt University Medical Center, Nashville, TN, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shubhra","family":"Mukherjee","sequence":"additional","affiliation":[{"name":"Department of Physical Medicine and Rehabilitation, Shriners Children\u2019s Chicago, Chicago, IL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela","family":"Murphy","sequence":"additional","affiliation":[{"name":"District Medical Group Children\u2019s Rehabilitative Services, Phoenix, AZ, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathryn","family":"Smith","sequence":"additional","affiliation":[{"name":"Department of Clinical Pediatrics, Keck School of Medicine University of Southern California, Los Angeles, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","reference":[{"key":"10.3233\/PRM-230052_ref1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.110.S3.1304"},{"issue":"6","key":"10.3233\/PRM-230052_ref2","doi-asserted-by":"publisher","first-page":"627","DOI":"10.1016\/j.pedhc.2017.04.015","article-title":"Developing a Transition Care Coordination Program for Youth with Spina Bifida","volume":"31","author":"Seeley","year":"2017","journal-title":"J Pediatr Health Care"},{"issue":"4","key":"10.3233\/PRM-230052_ref3","doi-asserted-by":"publisher","first-page":"323","DOI":"10.3233\/PRM-180548","article-title":"The development of a lifetime care model in comprehensive spina bifida care","volume":"11","author":"Hopson","year":"2018","journal-title":"J Pediatr Rehabil Med"},{"issue":"2","key":"10.3233\/PRM-230052_ref4","doi-asserted-by":"publisher","first-page":"203","DOI":"10.1111\/cch.12303","article-title":"Implementation of an inter-agency transition model for youth with spina bifida","volume":"42","author":"Lindsay","year":"2016","journal-title":"Child Care Health Dev"},{"issue":"2","key":"10.3233\/PRM-230052_ref5","doi-asserted-by":"publisher","first-page":"198","DOI":"10.1111\/jnu.12626","article-title":"The Transition to Adult Health Care in Youth with Spina Bifida: Theory, Measurement, and Interventions","volume":"53","author":"Holmbeck","year":"2021","journal-title":"J Nurs Scholarsh"},{"issue":"4","key":"10.3233\/PRM-230052_ref6","doi-asserted-by":"publisher","first-page":"7","DOI":"10.3171\/2019.7.FOCUS19425","article-title":"Development of an evidence-based individualized transition plan for spina bifida","volume":"47","author":"Hopson","year":"2019","journal-title":"Neurosurg Focus"},{"issue":"3-4","key":"10.3233\/PRM-230052_ref7","doi-asserted-by":"publisher","first-page":"243","DOI":"10.3233\/PRM-170451","article-title":"A chronic care model for spina bifida transition","volume":"10","author":"Fremion","year":"2017","journal-title":"J Pediatr Rehabil Med"},{"issue":"4","key":"10.3233\/PRM-230052_ref8","doi-asserted-by":"publisher","first-page":"393","DOI":"10.3233\/PRM-180578","article-title":"An exploratory study of adolescents and emerging adults with spina bifida knowledge of their individual education program: Implications for health care transition planning","volume":"12","author":"Betz","year":"2019","journal-title":"J Pediatr Rehabil Med"},{"issue":"2","key":"10.3233\/PRM-230052_ref9","doi-asserted-by":"publisher","first-page":"155","DOI":"10.1310\/sci2302-155","article-title":"Care for Adults with Spina Bifida: Current State and Future Directions","volume":"23","author":"Mukherjee","year":"2017","journal-title":"Top Spinal Cord Inj Rehabil"},{"issue":"8","key":"10.3233\/PRM-230052_ref11","doi-asserted-by":"publisher","first-page":"1064","DOI":"10.1016\/j.apmr.2007.04.018","article-title":"What do we really know about the transition to adult-centered health care? 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