{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T09:50:56Z","timestamp":1777888256393,"version":"3.51.4"},"reference-count":6,"publisher":"SAGE Publications","issue":"s1","license":[{"start":{"date-parts":[[2023,6,12]],"date-time":"2023-06-12T00:00:00Z","timestamp":1686528000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["PRM"],"published-print":{"date-parts":[[2023,6,12]]},"abstract":"<jats:p>As with the wide range in spina bifida (SB) incidence rates across nations, there is also wide variance in topics encountered by clinicians today. Both the wide variance in SB incidence rates and the wide diversity of topics to be addressed provide the backdrop for any dialogue among professionals serving this population. On the international stage, the World Congress on Spina Bifida Research and Care has been the only conference dedicated solely to research, practical challenges, and real-life solutions for those living with SB, their families, and caregivers. As a conference with a clear sense of the growing global village, the 2023 congress showcased innovative research from junior to preeminent investigators. Topical areas included urology, neurosurgery, global health, prenatal surgery, and transition to adult care amid others. Ultimately, through the dissemination of a compendium of conference abstracts, we hope that professionals will be aided and inspired to continue to improve the education, advocacy, and care among the many communities of individuals affected by SB globally.<\/jats:p>","DOI":"10.3233\/prm-239016","type":"journal-article","created":{"date-parts":[[2023,5,30]],"date-time":"2023-05-30T11:31:47Z","timestamp":1685446307000},"page":"S1-S2","source":"Crossref","is-referenced-by-count":3,"title":["International collaborations on advocacy, education, and research: Broad-spectrum thematic diversity catalyzes multidisciplinary spina bifida care"],"prefix":"10.1177","volume":"16","author":[{"given":"Jonathan","family":"Castillo","sequence":"first","affiliation":[{"name":"Department of Pediatrics, Developmental and Behavioral Pediatrics, Texas Children\u2019s Hospital and the Baylor College of Medicine, Houston, TX, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Judy K.","family":"Thibadeau","sequence":"additional","affiliation":[{"name":"Spina Bifida Association, Arlington, VA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tim","family":"Brei","sequence":"additional","affiliation":[{"name":"Spina Bifida Association, Arlington, VA, USA"},{"name":"Department of Pediatrics, Division of Developmental Medicine, Seattle Children\u2019s Hospital and the University of Washington School of Medicine, Seattle, WA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Heidi","family":"Castillo","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Developmental and Behavioral Pediatrics, Texas Children\u2019s Hospital and the Baylor College of Medicine, Houston, TX, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","reference":[{"issue":"4","key":"10.3233\/PRM-239016_ref1","doi-asserted-by":"publisher","first-page":"545","DOI":"10.3233\/PRM-220126","article-title":"From autism to zoom\u00a0\u00ae: Spina bifida advocacy, care, education, and research in a changing word","volume":"15","author":"Castillo","year":"2022","journal-title":"J Pediatr Rehabil Med"},{"issue":"Suppl 3","key":"10.3233\/PRM-239016_ref2","doi-asserted-by":"publisher","first-page":"4","DOI":"10.1046\/j.1528-1157.44.s3.2.x","article-title":"Epidemiology of neural tube defects","volume":"44","author":"Frey","year":"2003","journal-title":"Epilepsia"},{"issue":"4","key":"10.3233\/PRM-239016_ref3","doi-asserted-by":"publisher","first-page":"1041","DOI":"10.1016\/j.pcl.2010.07.020","article-title":"Gaps and opportunities: An agenda for further research, services, and program development in spina bifida","volume":"57","author":"Sawin","year":"2010","journal-title":"Pediatr Clin North Am"},{"issue":"4","key":"10.3233\/PRM-239016_ref4","doi-asserted-by":"publisher","first-page":"213","DOI":"10.3233\/PRM-180484","article-title":"Social determinants of health and spina bifida care: Immigrant and minority health in an era of quality of life and multicenter comparative analysis","volume":"11","author":"Castillo","year":"2018","journal-title":"J Pediatr Rehabil Med"},{"issue":"6","key":"10.3233\/PRM-239016_ref5","doi-asserted-by":"publisher","first-page":"800.e1","DOI":"10.1016\/j.jpurol.2022.06.014","article-title":"Establishing the first community-centered Spina Bifida research agenda","volume":"18","author":"Struwe","year":"2022","journal-title":"J Pediatr Urol"},{"issue":"3","key":"10.3233\/PRM-239016_ref6","doi-asserted-by":"publisher","first-page":"E14","DOI":"10.3171\/2019.12.FOCUS19448","article-title":"Neurosurgical training and global health education: Systematic review of challenges and benefits of in-country programs in the care of neural tube defects","volume":"48","author":"Gandy","year":"2020","journal-title":"Neurosurg Focus"}],"container-title":["Journal of Pediatric Rehabilitation Medicine"],"original-title":[],"link":[{"URL":"https:\/\/content.iospress.com\/download?id=10.3233\/PRM-239016","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T04:40:50Z","timestamp":1777610450000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/full\/10.3233\/PRM-239016"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,6,12]]},"references-count":6,"journal-issue":{"issue":"s1"},"URL":"https:\/\/doi.org\/10.3233\/prm-239016","relation":{},"ISSN":["1874-5393","1875-8894"],"issn-type":[{"value":"1874-5393","type":"print"},{"value":"1875-8894","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,6,12]]}}}