{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T04:13:55Z","timestamp":1747196035914,"version":"3.40.5"},"reference-count":0,"publisher":"IOS Press","isbn-type":[{"value":"9781643685946","type":"electronic"}],"license":[{"start":{"date-parts":[[2025,5,12]],"date-time":"2025-05-12T00:00:00Z","timestamp":1747008000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,5,12]]},"abstract":"<jats:p>Patient-accessible electronic health records (PAEHRs) are regarded as a means to empower patients, especially those with chronic conditions, to take greater responsibility for their own health. However, clinicians often express concerns that PAEHRs may negatively impact their work and patient care, particularly if patients misinterpret their data. We investigated how clinicians working in home dialysis care for patients with chronic kidney disease experienced PAEHRs. Eleven clinicians participated in semi-structured interviews. The effects of PAEHRs varied depending on the patient and their circumstances. When the patient was knowledgeable and motivated, PAEHRs were seen to reduce clinicians\u2019 workload and improve communication. Conversely, the impacts were negative with patients who were already anxious or otherwise had challenges in understanding their data. Although home dialysis patients are generally considered more capable of taking responsibility for their own health than the average patient, the challenges reported by clinicians were similar to those observed in previous studies involving other patient groups. PAEHRs should be examined from a socio-technical systems perspective, taking into account patients\u2019 situations, capabilities, and experiences, and the communication between patients and clinicians. Further research is needed to explore the socio-technical aspects that influence the impact of PAEHRs on clinicians\u2019 work with individuals who have chronic conditions requiring significant patient involvement, such as home dialysis.<\/jats:p>","DOI":"10.3233\/shti250246","type":"book-chapter","created":{"date-parts":[[2025,5,13]],"date-time":"2025-05-13T09:08:24Z","timestamp":1747127304000},"source":"Crossref","is-referenced-by-count":0,"title":["Clinician Experiences of Patient Access to Health Records \u2013 An Interview Study in Home Dialysis Care"],"prefix":"10.3233","author":[{"ORCID":"https:\/\/orcid.org\/0009-0008-0605-5957","authenticated-orcid":false,"given":"Anna","family":"Aspelund","sequence":"first","affiliation":[{"name":"Aalto University, Department of Computer Science, Finland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6659-5022","authenticated-orcid":false,"given":"Johanna","family":"Viitanen","sequence":"additional","affiliation":[{"name":"Aalto University, Department of Computer Science, Finland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-8877-7079","authenticated-orcid":false,"given":"Henna","family":"H\u00e4m\u00e4l\u00e4inen","sequence":"additional","affiliation":[{"name":"Abdominal Center, Helsinki University Hospital, Finland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0239-2661","authenticated-orcid":false,"given":"Virpi","family":"Rauta","sequence":"additional","affiliation":[{"name":"Abdominal Center, Helsinki University Hospital, Finland"},{"name":"Strategy and Development, Helsinki University Hospital, Finland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4124-6667","authenticated-orcid":false,"given":"Tinja","family":"L\u00e4\u00e4veri","sequence":"additional","affiliation":[{"name":"Aalto University, Department of Computer Science, Finland"},{"name":"Inflammation Center, Helsinki University Hospital, Finland"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"7437","container-title":["Studies in Health Technology and Informatics","Context Sensitive Health Informatics: AI for Social Good"],"original-title":[],"link":[{"URL":"https:\/\/ebooks.iospress.nl\/pdf\/doi\/10.3233\/SHTI250246","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,5,13]],"date-time":"2025-05-13T09:08:24Z","timestamp":1747127304000},"score":1,"resource":{"primary":{"URL":"https:\/\/ebooks.iospress.nl\/doi\/10.3233\/SHTI250246"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,5,12]]},"ISBN":["9781643685946"],"references-count":0,"URL":"https:\/\/doi.org\/10.3233\/shti250246","relation":{},"ISSN":["0926-9630","1879-8365"],"issn-type":[{"value":"0926-9630","type":"print"},{"value":"1879-8365","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,5,12]]}}}