{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,27]],"date-time":"2026-04-27T00:34:15Z","timestamp":1777250055184,"version":"3.51.4"},"reference-count":14,"publisher":"XMLink","issue":"16","license":[{"start":{"date-parts":[[2026,1,1]],"date-time":"2026-01-01T00:00:00Z","timestamp":1767225600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["jkms.org"],"crossmark-restriction":false},"short-container-title":["J Korean Med Sci"],"DOI":"10.3346\/jkms.2026.41.e132","type":"journal-article","created":{"date-parts":[[2026,4,1]],"date-time":"2026-04-01T02:23:54Z","timestamp":1775010234000},"update-policy":"https:\/\/doi.org\/10.3346\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Patient-Centric Approach to Improve the Quality of Life and Healing Efficacy for Patients With Fabry Disease: A Grounded Theory-Based Analysis"],"prefix":"10.3346","volume":"41","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5550-4156","authenticated-orcid":false,"given":"Seo-Yeon","family":"Gwak","sequence":"first","affiliation":[{"name":"Division of Cardiology, Severance Cardiovascular Hospital, Yonsei University College of Medicine, Seoul, Korea."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3567-2347","authenticated-orcid":false,"given":"Ha Jeong","family":"Lim","sequence":"additional","affiliation":[{"name":"Division of Cardiology, CHA Bundang Medical Center, CHA University, Seongnam, Korea."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5927-5410","authenticated-orcid":false,"given":"Iksung","family":"Cho","sequence":"additional","affiliation":[{"name":"Division of Cardiology, Severance Cardiovascular Hospital, Yonsei University College of Medicine, Seoul, Korea."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6136-0136","authenticated-orcid":false,"given":"Chi Young","family":"Shim","sequence":"additional","affiliation":[{"name":"Division of Cardiology, Severance Cardiovascular Hospital, Yonsei University College of Medicine, Seoul, Korea."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3632-0183","authenticated-orcid":false,"given":"Kyu","family":"Kim","sequence":"additional","affiliation":[{"name":"Division of Cardiology, Severance Cardiovascular Hospital, Yonsei University College of Medicine, Seoul, Korea."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7498-0705","authenticated-orcid":false,"given":"Hyun-Jung","family":"Lee","sequence":"additional","affiliation":[{"name":"Division of Cardiology, Severance Cardiovascular Hospital, Yonsei University College of Medicine, Seoul, Korea."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8109-5018","authenticated-orcid":false,"given":"Jang-Won","family":"Son","sequence":"additional","affiliation":[{"name":"Division of Cardiology, Department of Internal Medicine, Yeungnam University Medical Center, Daegu, Korea."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4981-3304","authenticated-orcid":false,"given":"Geu-Ru","family":"Hong","sequence":"additional","affiliation":[{"name":"Division of Cardiology, Severance Cardiovascular Hospital, Yonsei University College of Medicine, Seoul, Korea."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"18617","published-online":{"date-parts":[[2026]]},"reference":[{"issue":"4","key":"10.3346\/jkms.2026.41.e132_ref1","doi-asserted-by":"crossref","first-page":"317","DOI":"10.1023\/A:1015511908710","volume":"11","author":"Gold","year":"2002","journal-title":"Qual Life Res"},{"issue":"1","key":"10.3346\/jkms.2026.41.e132_ref2","doi-asserted-by":"crossref","first-page":"181","DOI":"10.1186\/s13023-024-03131-y","volume":"19","author":"Jovanovic","year":"2024","journal-title":"Orphanet J Rare Dis"},{"issue":"4","key":"10.3346\/jkms.2026.41.e132_ref3","doi-asserted-by":"crossref","first-page":"426","DOI":"10.21037\/cdt-22-215","volume":"12","author":"Andonian","year":"2022","journal-title":"Cardiovasc Diagn Ther"},{"issue":"4","key":"10.3346\/jkms.2026.41.e132_ref4","doi-asserted-by":"crossref","first-page":"72","DOI":"10.3390\/diseases9040072","volume":"9","author":"Polistena","year":"2021","journal-title":"Diseases"},{"issue":"1","key":"10.3346\/jkms.2026.41.e132_ref5","doi-asserted-by":"crossref","first-page":"284","DOI":"10.1186\/s13023-019-1254-7","volume":"14","author":"No\u00ebl","year":"2019","journal-title":"Orphanet J Rare Dis"},{"key":"10.3346\/jkms.2026.41.e132_ref6","volume-title":"Qualitative Inquiry and Research Design","author":"Creswell","year":"2007"},{"key":"10.3346\/jkms.2026.41.e132_ref7","volume-title":"Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory","author":"Corbin","year":"2014","edition":"4"},{"key":"10.3346\/jkms.2026.41.e132_ref8","first-page":"31","volume-title":"Doing Qualitative Research","author":"Kuzel","year":"1992"},{"key":"10.3346\/jkms.2026.41.e132_ref9","doi-asserted-by":"crossref","first-page":"114523","DOI":"10.1016\/j.socscimed.2021.114523","volume":"292","author":"Hennink","year":"2022","journal-title":"Soc Sci Med"},{"issue":"2","key":"10.3346\/jkms.2026.41.e132_ref10","doi-asserted-by":"crossref","first-page":"201","DOI":"10.1016\/j.ymgme.2013.03.008","volume":"109","author":"Bouwman","year":"2013","journal-title":"Mol Genet Metab"},{"issue":"2","key":"10.3346\/jkms.2026.41.e132_ref11","doi-asserted-by":"crossref","first-page":"373","DOI":"10.1007\/s10897-015-9879-8","volume":"25","author":"Lisi","year":"2016","journal-title":"J Genet Couns"},{"issue":"3","key":"10.3346\/jkms.2026.41.e132_ref12","doi-asserted-by":"crossref","first-page":"631","DOI":"10.1038\/s41436-018-0129-y","volume":"21","author":"Wasserstein","year":"2019","journal-title":"Genet Med"},{"issue":"5","key":"10.3346\/jkms.2026.41.e132_ref13","doi-asserted-by":"crossref","first-page":"1085","DOI":"10.1007\/s10897-016-9941-1","volume":"25","author":"von der Lippe","year":"2016","journal-title":"J Genet Couns"},{"key":"10.3346\/jkms.2026.41.e132_ref14","unstructured":"Ministry of Health and Welfare (KR). Article 14 (Designation of Rare Disease Specialized Institutions, etc.). Rare Disease Management Act. Updated 2023. Accessed July 22, 2024.  https:\/\/www.law.go.kr\/%EB%B2%95%EB%A0%B9\/%ED%9D%AC%EA%B7%80%EC%A7%88%ED%99%98%EA%B4%80%EB%A6%AC%EB%B2%95\/%EC%A0%9C14%EC%A1%B0"}],"container-title":["Journal of Korean Medical Science"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/jkms.org\/pdf\/10.3346\/jkms.2026.41.e132","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/jkms.org\/DOIx.php?id=10.3346\/jkms.2026.41.e132","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/jkms.org\/DOIx.php?id=10.3346\/jkms.2026.41.e132","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,26]],"date-time":"2026-04-26T23:40:45Z","timestamp":1777246845000},"score":1,"resource":{"primary":{"URL":"https:\/\/jkms.org\/DOIx.php?id=10.3346\/jkms.2026.41.e132"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026]]},"references-count":14,"journal-issue":{"issue":"16","published-online":{"date-parts":[[2026]]}},"URL":"https:\/\/doi.org\/10.3346\/jkms.2026.41.e132","relation":{},"ISSN":["1011-8934","1598-6357"],"issn-type":[{"value":"1011-8934","type":"print"},{"value":"1598-6357","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026]]},"assertion":[{"value":"2024-12-24","name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-08-18","name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-03-31","name":"published_online","label":"Published online","group":{"name":"publication_history","label":"Publication History"}},{"value":"\u00a9 2026 The Korean Academy of Medical Sciences.","name":"copyright","label":"Copyright","group":{"name":"Copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/) which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.","name":"license","label":"License","explanation":{"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},"group":{"name":"Copyright_and_licensing","label":"Copyright and Licensing"}}],"article-number":"e132"}}