{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,3]],"date-time":"2025-10-03T06:10:11Z","timestamp":1759471811743,"version":"build-2065373602"},"reference-count":55,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2025,10,3]],"date-time":"2025-10-03T00:00:00Z","timestamp":1759449600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Digit. Health"],"abstract":"<jats:sec><jats:title>Introduction<\/jats:title><jats:p>Digital tools such as the self-administered Multiple Sclerosis Performance Test (MSPT) support structured monitoring of multiple sclerosis (MS) through standardized assessments of motor, visual, and cognitive functions. Despite clinical validity and adoption, real-world data on long-term user experiences and the consequences of discontinuing MSPT-based monitoring in routine care are lacking.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>This study aimed to assess multi-year user experiences with the MSPT among patients and neurologists, investigate patient perceptions following its discontinuation from clinical care, and evaluate preferences for future MSPT-like digital tools.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This observational, repeated cross-sectional study involved three questionnaire-based surveys. In 2020, separate surveys of patients and neurologists (combined <jats:italic>n<\/jats:italic>\u2009=\u2009210) evaluated sustained MSPT use in routine care. Following the cessation of funding and subsequent discontinuation of MSPT from clinical workflows in 2023, a patient survey was conducted in 2024 (<jats:italic>n<\/jats:italic>\u2009=\u2009144) to evaluate the impact of this withdrawal and preferences for future digital monitoring tools. Quantitative analyses included frequency distributions, Net Promoter Score (NPS) categorization, correlational analyses, and descriptive data visualization.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Patients reported high satisfaction with MSPT usability, utility for disease monitoring, administration frequency, time efficiency, physical and cognitive demands, and suitability for unsupervised tablet-based use. Most viewed discontinuation from their clinical care negatively and favored reintroducing similar tools, either in clinic (85.5%) or at home (78.6%). Those who dissented cited time savings and sufficient physician feedback.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion<\/jats:title><jats:p>Prolonged MSPT use is associated with strong patient and clinician acceptance. Findings support the continued integration of digital monitoring tools into MS care and emphasize the importance of patient perspectives in their design.<\/jats:p><\/jats:sec>","DOI":"10.3389\/fdgth.2025.1672732","type":"journal-article","created":{"date-parts":[[2025,10,3]],"date-time":"2025-10-03T05:29:09Z","timestamp":1759469349000},"update-policy":"https:\/\/doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":0,"title":["From implementation to discontinuation: multi-year experience with the multiple sclerosis performance test as a digital monitoring tool"],"prefix":"10.3389","volume":"7","author":[{"given":"Dirk","family":"Schriefer","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anja","family":"Dillenseger","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yassin","family":"Atta","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hernan","family":"Inojosa","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tjalf","family":"Ziemssen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"1965","published-online":{"date-parts":[[2025,10,3]]},"reference":[{"key":"B1","doi-asserted-by":"publisher","first-page":"169","DOI":"10.1056\/NEJMra1401483","article-title":"Multiple sclerosis","volume":"378","author":"Reich","year":"2018","journal-title":"N Engl J Med"},{"key":"B2","doi-asserted-by":"publisher","first-page":"177","DOI":"10.1080\/14737167.2022.1987218","article-title":"Cost of illness in multiple sclerosis by disease characteristics - a review of reviews","volume":"22","author":"Schriefer","year":"2022","journal-title":"Expert Rev Pharmacoecon Outcomes Res"},{"key":"B3","doi-asserted-by":"publisher","first-page":"81","DOI":"10.1186\/s12916-016-0627-1","article-title":"The importance of collecting structured clinical information on multiple sclerosis","volume":"14","author":"Ziemssen","year":"2016","journal-title":"BMC Med"},{"key":"B4","doi-asserted-by":"publisher","first-page":"183","DOI":"10.1016\/S0140-6736(23)01473-3","article-title":"Multiple sclerosis","volume":"403","author":"Jakimovski","year":"2024","journal-title":"Lancet"},{"key":"B5","doi-asserted-by":"publisher","first-page":"17562864211066751","DOI":"10.1177\/17562864211066751","article-title":"Smouldering multiple sclerosis: the \u2018real MS\u2019","volume":"15","author":"Giovannoni","year":"2022","journal-title":"Ther Adv Neurol Disord"},{"key":"B6","doi-asserted-by":"publisher","first-page":"23","DOI":"10.1038\/s41746-023-00767-1","article-title":"Evidence from ClinicalTrials.gov on the growth of digital health technologies in neurology trials","volume":"6","author":"Masanneck","year":"2023","journal-title":"NPJ Digit Med"},{"key":"B7","doi-asserted-by":"publisher","first-page":"1514813","DOI":"10.3389\/fimmu.2025.1514813","article-title":"Digital remote monitoring of people with multiple sclerosis","volume":"16","author":"Dini","year":"2025","journal-title":"Front Immunol"},{"key":"B8","doi-asserted-by":"publisher","first-page":"e5","DOI":"10.2196\/rehab.7805","article-title":"The use of digital and remote communication technologies as a tool for multiple sclerosis management: narrative review","volume":"5","author":"Marziniak","year":"2018","journal-title":"JMIR Rehabil Assist Technol"},{"key":"B9","doi-asserted-by":"publisher","first-page":"e16363","DOI":"10.1111\/ene.16363","article-title":"Scoping review of clinical decision support systems for multiple sclerosis management: leveraging information technology and massive health data","volume":"32","author":"Demuth","year":"2025","journal-title":"Eur J Neurol"},{"key":"B10","doi-asserted-by":"publisher","first-page":"1519","DOI":"10.3390\/brainsci11111519","article-title":"Digital biomarkers in multiple sclerosis","volume":"11","author":"Dillenseger","year":"2021","journal-title":"Brain Sci"},{"key":"B11","doi-asserted-by":"crossref","first-page":"e44428","DOI":"10.2196\/44428","article-title":"Wearable sensor technologies to assess motor functions in people with multiple sclerosis. 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