{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,7,30]],"date-time":"2025-07-30T15:50:28Z","timestamp":1753890628392,"version":"3.41.2"},"reference-count":36,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2025,6,18]],"date-time":"2025-06-18T00:00:00Z","timestamp":1750204800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100014013","name":"UK Research and Innovation","doi-asserted-by":"publisher","award":["MR\/W029766\/1"],"award-info":[{"award-number":["MR\/W029766\/1"]}],"id":[{"id":"10.13039\/100014013","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Big Data"],"abstract":"<jats:sec><jats:title>Introduction<\/jats:title><jats:p>Long COVID, or Post-Acute Sequelae of SARS-CoV-2 infection (PASC), is a complex condition characterized by a wide range of persistent symptoms that can significantly impact an individual's quality of life and mental health. This study explores public perspectives on the mental health impact of Long COVID and the use of dietary supplements for recovery, drawing on social media content. It uniquely addresses how individuals with Long COVID discuss supplement use in the absence of public health recommendations.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>The study employs the LISTEN method (\u201cCollaborative and Digital Analysis of Big Qual Data in Time Sensitive Contexts\u201d), an interdisciplinary approach that combines human insight and digital analysis software. Social media data related to Long COVID, mental health, and supplement use were collected using the Pulsar Platform. Data were analyzed using the free-text discourse analysis tool Infranodus and collaborative qualitative analysis methods.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The findings reveal key themes, including the impact of Long COVID on mental health, occupational health, and the use of food supplements. Analysis of attitudes toward supplement use highlights the prevalence of negative emotions and experiences among Long COVID patients. The study also identifies the need for evidence-based recommendations and patient education regarding supplement use.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion<\/jats:title><jats:p>The findings contribute to a better understanding of the complex nature of Long COVID and inform the development of comprehensive, patient-centered care strategies addressing both physical and mental health needs.<\/jats:p><\/jats:sec>","DOI":"10.3389\/fdata.2025.1539724","type":"journal-article","created":{"date-parts":[[2025,6,18]],"date-time":"2025-06-18T05:41:44Z","timestamp":1750225304000},"update-policy":"https:\/\/doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":0,"title":["LISTEN: lived experiences of Long COVID: a social media analysis of mental health and supplement use"],"prefix":"10.3389","volume":"8","author":[{"given":"Sam","family":"Martin","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maya","family":"Janse Van Rensburg","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Huong Thien","family":"Le","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Charlie","family":"Firth","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Abinaya","family":"Chandrasekar","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sigr\u00fan Eyr\u00fanard\u00f3ttir","family":"Clark","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Samantha","family":"Vanderslott","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cecilia","family":"Vindrola-Padros","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Norha","family":"Vera San Juan","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"1965","published-online":{"date-parts":[[2025,6,18]]},"reference":[{"key":"B1","doi-asserted-by":"publisher","DOI":"10.1108\/S2398-601820180000002004","article-title":"\u201cUsing Twitter as a data source: an overview of ethical, legal, and methodological challenges,\u201d","author":"Ahmed","year":"2017","journal-title":"The Ethics of Online Research"},{"key":"B2","doi-asserted-by":"publisher","first-page":"3441","DOI":"10.3390\/jcm10153441","volume":"10","author":"Ali Awan","year":"2021"},{"key":"B3","doi-asserted-by":"publisher","first-page":"491","DOI":"10.1126\/science.abg7113","article-title":"The road to addressing Long COVID","volume":"373","author":"Alwan","year":"2021","journal-title":"Science"},{"key":"B4","doi-asserted-by":"publisher","first-page":"30","DOI":"10.1038\/s41746-018-0036-2","article-title":"Don't quote me: reverse identification of research participants in social media studies","volume":"1","author":"Ayers","year":"2018","journal-title":"NPJ Digital Med."},{"key":"B5","doi-asserted-by":"publisher","first-page":"452","DOI":"10.1016\/S0140-6736(22)01214-4","article-title":"Persistence of somatic symptoms after COVID-19 in the Netherlands: an observational cohort study","volume":"400","author":"Ballering","year":"2022","journal-title":"Lancet"},{"key":"B6","doi-asserted-by":"publisher","first-page":"113426","DOI":"10.1016\/j.socscimed.2020.113426","article-title":"How and why patients made Long COVID","volume":"268","author":"Callard","year":"2021","journal-title":"Soc. 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