{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,28]],"date-time":"2026-08-28T06:17:53Z","timestamp":1787897873229,"version":"build-2784847793"},"reference-count":17,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2026,8,28]],"date-time":"2026-08-28T00:00:00Z","timestamp":1787875200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100020780","name":"Lucile Packard Foundation for Children's Health","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100020780","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Digit. Health"],"abstract":"<jats:p>Generation Patient, a global advocacy organization led by young adults with chronic and rare medical conditions, convened a Roundtable in December 2025 to explore the potential and realized impacts of increased AI use in patient care. Across two hours, fifteen participants with a blend of lived, scholarly, and professional expertise engaged in a semi-structured focus group on the benefits and drawbacks of using AI to meet their healthcare needs within and beyond the clinic. Reflexive thematic analysis of the Roundtable transcript shed light on AI's promise to ease the administrative and emotional burden for young adults with complex conditions transitioning into adult care. However, increased use of AI for clinical administrative support raises concerns about patient data protection, stewardship, and equity. The Roundtable also extensively discussed the \u201cdouble edged sword\u201d of generative and conversational AI's tendency to affirm users' inputs, particularly in the case of mental health companion chatbots. Committed to translating these insights into actionable steps, participants recommended that AI developers and distributors adopt a DesignJustice approach\u2014modeled by the Roundtable itself\u2014to collaboratively build AI tools with end users and health equity experts who can support the creation of ethical standards, marketing strategies, and impact evaluations that focus on reducing harm and maximizing social good. At a policy level, broadening definitions of what constitutes a \u201cmedical device\u201d to any AI tool with the capability of processing health-related data will increase the scope of the federal government's obligation and ability to protect patients.<\/jats:p>","DOI":"10.3389\/fdgth.2026.1891178","type":"journal-article","created":{"date-parts":[[2026,8,28]],"date-time":"2026-08-28T05:33:52Z","timestamp":1787895232000},"update-policy":"https:\/\/doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":0,"title":["Managing vulnerability: cross-sector reflections on the ethics and equity implications of AI use among young adults with chronic conditions"],"prefix":"10.3389","volume":"8","author":[{"given":"MacKenzie","family":"Isaac","sequence":"first","affiliation":[{"name":"Nuffield Department of Population Health, Medical Sciences Division, University of Oxford","place":["Oxford, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sneha","family":"Dave","sequence":"additional","affiliation":[{"name":"Generation Patient , , IN","place":["Indianapolis, United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Terry","family":"Adirim","sequence":"additional","affiliation":[{"name":"Departments of Pediatrics and Preventative Medicine and Statistics, Uniformed Services University of the Health Sciences, Bethesda, MD","place":["United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1965","published-online":{"date-parts":[[2026,8,28]]},"reference":[{"key":"B1","doi-asserted-by":"crossref","DOI":"10.7551\/mitpress\/12255.001.0001","volume-title":"Design Justice: Community-led Practices to Build the Worlds We Need","author":"Costanza-Chock","year":"2020"},{"key":"B2","doi-asserted-by":"publisher","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qual Res Psychol"},{"key":"B3","doi-asserted-by":"publisher","first-page":"241","DOI":"10.1080\/0142159x.2022.2057287","article-title":"A practical guide to reflexivity in qualitative research: AMEE guide no. 149","volume":"45","author":"Olmos-Vega","year":"2022","journal-title":"Med Teach"},{"key":"B4","doi-asserted-by":"publisher","DOI":"10.1177\/16094069241301383","article-title":"To member check or not to member check? 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