{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T04:13:14Z","timestamp":1787026394294,"version":"build-2736575974"},"reference-count":53,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2023,3,17]],"date-time":"2023-03-17T00:00:00Z","timestamp":1679011200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100004319","name":"Pfizer","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100004319","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Endocrinol."],"abstract":"<jats:sec>\n                    <jats:title>Purpose<\/jats:title>\n                    <jats:p>To explore caregiving burden, health-related quality of life (HRQOL), stress, and individual resources of parents in the care of children with isolated growth hormone deficiency (IGHD) or idiopathic short stature (ISS).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      Focused interview analysis of previously, within the\n                      <jats:italic>Quality of Life in Short Stature Youth<\/jats:italic>\n                      (\n                      <jats:italic>QoLISSY<\/jats:italic>\n                      ) project, conducted structured focus group discussions (n=7) with parents (n=33) of children with IGHD\/ISS aged 4 to 18 years were performed.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>26 out of the 33 parents reported mental stress due to their child\u2019s growth disorder. Social pressure and stigmatization were also mentioned as being demanding. Some parents reported having trouble with human growth hormone (hGH) treatment. Several parents wished for parent support groups with other like-minded parents of short-statured children.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>For physicians, it is essential to understand the parents\u2019 caregiving burden, stress, and individual resources in caring for IGHD\/ISS children. If an impaired HRQOL is detected, psychological intervention for these parents may be scheduled, and coping mechanisms may be discussed. Furthermore, it seems essential for parents to be educated by their healthcare provider about the possible side effects of hGH treatment or to know where to find evidence-based information about it.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.3389\/fendo.2023.1093983","type":"journal-article","created":{"date-parts":[[2023,3,17]],"date-time":"2023-03-17T09:23:55Z","timestamp":1679045035000},"update-policy":"https:\/\/doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":9,"title":["Caregiving burden and special needs of parents in the care of their short-statured children \u2013 a qualitative approach"],"prefix":"10.3389","volume":"14","author":[{"given":"Lea","family":"Lackner","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julia Hannah","family":"Quitmann","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefanie","family":"Witt","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1965","published-online":{"date-parts":[[2023,3,17]]},"reference":[{"key":"B1","doi-asserted-by":"publisher","DOI":"10.1159\/000184851","article-title":"Towards a consensus on the definition of idiopathic short stature","author":"Ranke","year":"1996","journal-title":"Horm Res"},{"key":"B2","doi-asserted-by":"publisher","DOI":"10.1159\/000236082","article-title":"Diagnostic approach in children with short stature","volume":"72","author":"Oostdijk","year":"2009","journal-title":"Horm Res"},{"key":"B3","volume-title":"Height assessment","author":"Warrier","year":"2022"},{"key":"B4","doi-asserted-by":"publisher","DOI":"10.13109\/prkk.2014.63.8.635","article-title":"[How do affected children and adolescents experience their short stature, and what is the point of view of their parents?]","volume":"63","author":"Quitmann","year":"2014","journal-title":"Prax Kinderpsychol Kinderpsychiatr."},{"key":"B5","unstructured":"Zweite revision der leitlinie diagnostik des wachstumshormonmangels im kindes- und jugendalter. 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