{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,5]],"date-time":"2026-09-05T11:39:01Z","timestamp":1788608341142,"version":"build-2803163510"},"reference-count":34,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2023,5,22]],"date-time":"2023-05-22T00:00:00Z","timestamp":1684713600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Aging Neurosci."],"abstract":"<jats:sec><jats:title>Background<\/jats:title><jats:p>Social alarms are considered an appropriate technology to ensure the safety and independence of older adults, but limited research has been conducted on their actual use. We, therefore, explored the access, experiences, and use of social alarms among home-bound people with dementia and their informal caregivers (dyads).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>From May 2019 to October 2021, the LIVE@Home.Path mixed-method intervention trial collected data from semi-quantitative questionnaires and qualitative interviews conducted among home-dwelling people with dementia and their informal caregivers in Norway. The study focused on data from the final assessment at 24 months.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total of 278 dyads were included, and 82 participants reached the final assessment. The mean age of the patients was 83 years; 74.6% were female; 50% lived alone; and 58% had their child as a caregiver. A total of 62.2% of subjects had access to a social alarm. Caregivers were more likely to answer that the device was not in use (23.6%) compared to patients (14%). Qualitative data revealed that approximately 50% of the patients were not aware of having such an alarm. Regression analyses assessed that access to a social alarm was associated with increasing age (86\u201397 years, <jats:italic>p<\/jats:italic>\u2009=\u20090.005) and living alone (<jats:italic>p<\/jats:italic>\u2009&amp;lt;\u20090.001). Compared to their caregivers, people with dementia were more likely to answer that the device gave them a false sense of security (28% vs. 9.9%), while caregivers were more likely to answer that the social alarm was of no value (31.4% vs.14.0%). The number of social alarms installed increased from 39.5% at baseline to 68% at 24 months. The frequency of unused social alarms increased from 12 months (17.7%) to 24 months (23.5%), and patients were less likely to feel safe during this period (60.8% vs. 70%).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Depending on their living situation, patients and family members experienced the installed social alarm differently. There is a gap between access to and the use of social alarms. The results indicate an urgent need for better routines in municipalities with regard to the provision and follow-up of existing social alarms. To meet the users\u2019 changing needs and abilities, passive monitoring may help them adapt to declining cognitive abilities and increase their safety.<\/jats:p><jats:p><jats:bold>Clinical Trial Registration<\/jats:bold>: <jats:ext-link>https:\/\/ClinicalTrials.gov<\/jats:ext-link>, NCT04043364.<\/jats:p><\/jats:sec>","DOI":"10.3389\/fnagi.2023.1167616","type":"journal-article","created":{"date-parts":[[2023,5,22]],"date-time":"2023-05-22T04:50:17Z","timestamp":1684731017000},"update-policy":"https:\/\/doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":14,"title":["Access to, use of, and experiences with social alarms in home-living people with dementia: results from the LIVE@Home.Path trial"],"prefix":"10.3389","volume":"15","author":[{"given":"Nathalie Genevieve S\u00f8yland","family":"Puaschitz","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Frode Fadnes","family":"Jacobsen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Line Iden","family":"Berge","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bettina Sandgathe","family":"Husebo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1965","published-online":{"date-parts":[[2023,5,22]]},"reference":[{"key":"ref1","doi-asserted-by":"publisher","first-page":"CD010783-CD","DOI":"10.1002\/14651858.CD010783.pub2","article-title":"Mini-mental state examination (MMSE) for the detection of Alzheimer's disease and other dementias in people with mild cognitive impairment (MCI)","volume":"3","author":"Arevalo-Rodriguez","year":"2015","journal-title":"Cochrane Database Syst. Rev."},{"key":"ref2","doi-asserted-by":"publisher","first-page":"172","DOI":"10.1258\/135763307780908058","article-title":"A systematic review of the benefits of home telecare for frail elderly people and those with long-term conditions","volume":"13","author":"Barlow","year":"2007","journal-title":"J. Telemed. Telecare"},{"key":"ref3","doi-asserted-by":"publisher","first-page":"2055668317693737","DOI":"10.1177\/2055668317693737","article-title":"Telecare \u2013 where, when, why and for whom does it work? A realist evaluation of a Norwegian project","volume":"4","author":"Berge","year":"2017","journal-title":"J. Rehabil. Assist. Technol. Eng."},{"key":"ref4","volume-title":"Digital and mobile social alarm","year":"2023"},{"key":"ref5","doi-asserted-by":"publisher","first-page":"137","DOI":"10.1186\/s12913-016-1379-5","article-title":"Exploring the factors that influence the decision to adopt and engage with an integrated assistive telehealth and telecare service in Cambridgeshire, UK: a nested qualitative study of patient \u2018users\u2019 and \u2018non-users\u2019","volume":"16","author":"Cook","year":"2016","journal-title":"BMC Health Serv. Res."},{"key":"ref6","doi-asserted-by":"publisher","first-page":"1045","DOI":"10.1186\/s12913-020-05913-z","article-title":"The compound role of a coordinator for home-dwelling persons with dementia and their informal caregivers: qualitative study","volume":"20","author":"F\u00e6\u00f8","year":"2020","journal-title":"BMC Health Serv. Res."},{"key":"ref7","doi-asserted-by":"publisher","first-page":"237","DOI":"10.18261\/issn.0809-2052-2020-04-02","article-title":"Omsorgsbelastning for p\u00e5r\u00f8rende til hjemmeboende personer med demens","volume":"23","author":"Hagen","year":"2020","journal-title":"Tidsskrift velferdsforskning"},{"key":"ref8","doi-asserted-by":"publisher","first-page":"k1614","DOI":"10.1136\/bmj.k1614","article-title":"Reporting of stepped wedge cluster randomised trials: extension of the CONSORT 2010 statement with explanation and elaboration","volume":"363","author":"Hemming","year":"2018","journal-title":"BMJ"},{"key":"ref9","doi-asserted-by":"publisher","first-page":"510","DOI":"10.1186\/s13063-020-04414-y","article-title":"LIVE@Home.Path\u2014innovating the clinical pathway for home-dwelling people with dementia and their caregivers: study protocol for a mixed-method, stepped-wedge, randomized controlled trial","volume":"21","author":"Husebo","year":"2020","journal-title":"Trials"},{"key":"ref10","doi-asserted-by":"publisher","first-page":"1254","DOI":"10.1002\/nop2.328","article-title":"Safety for older adults using telecare: perceptions of homecare professionals","volume":"6","author":"Johannessen","year":"2019","journal-title":"Nurs. 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Public Health"},{"key":"ref14","year":"2023"},{"key":"ref15","doi-asserted-by":"publisher","first-page":"527","DOI":"10.1177\/001872089003200503","article-title":"Aging and performance of home tasks","volume":"32","author":"Lawton","year":"1990","journal-title":"Hum. Factors"},{"key":"ref16","doi-asserted-by":"publisher","first-page":"179","DOI":"10.1093\/geront\/9.3_Part_1.179","article-title":"Assessment of older people: self-maintaining and instrumental activities of daily Living1","volume":"9","author":"Lawton","year":"1969","journal-title":"Gerontologist"},{"key":"ref17","doi-asserted-by":"publisher","first-page":"e1","DOI":"10.2196\/rehab.6376","article-title":"Technologies to support community-dwelling persons with dementia: a position paper on issues regarding development, usability, effectiveness and cost-effectiveness, deployment, and ethics","volume":"4","author":"Meiland","year":"2017","journal-title":"JMIR Rehabil. Assist. Technol."},{"key":"ref18","volume-title":"How do we ensure that innovation in health service delivery and organization is implemented, sustained and spread?","author":"Nolte","year":"2018"},{"key":"ref19","volume-title":"Fact sheet: about demens","year":"2021"},{"key":"ref20","year":"2021"},{"key":"ref21","volume-title":"Social alarm and safety package","year":"2023"},{"key":"ref22","doi-asserted-by":"publisher","first-page":"125","DOI":"10.1007\/s40271-018-0334-4","article-title":"Development of an item pool for a needs-based measure of quality of life of carers of a family member with dementia","volume":"12","author":"Oyebode","year":"2019","journal-title":"Patient"},{"key":"ref23","doi-asserted-by":"publisher","first-page":"1311","DOI":"10.1177\/1049732303253340","article-title":"Moments of apprehension in the midst of a certainty: some frail older widows\u2019 lives with a personal emergency response system","volume":"13","author":"Porter","year":"2003","journal-title":"Qual. Health Res."},{"key":"ref24","doi-asserted-by":"publisher","first-page":"26","DOI":"10.3928\/0098-9134-20051001-07","article-title":"Wearing and using personal emergency response system buttons","volume":"31","author":"Porter","year":"2005","journal-title":"J. Gerontol. Nurs."},{"key":"ref25","doi-asserted-by":"publisher","first-page":"264","DOI":"10.1186\/s12911-021-01627-2","article-title":"Factors associated with access to assistive technology and telecare in home-dwelling people with dementia: baseline data from the LIVE@Home.Path trial","volume":"21","author":"Puaschitz","year":"2021","journal-title":"BMC Med. Inform. Decis. Mak."},{"key":"ref26","doi-asserted-by":"publisher","first-page":"860","DOI":"10.1016\/j.jamda.2017.05.012","article-title":"Randomized trial of intelligent sensor system for early illness alerts in senior housing","volume":"18","author":"Rantz","year":"2017","journal-title":"J. Am. Med. Dir. Assoc."},{"key":"ref27","doi-asserted-by":"publisher","first-page":"547","DOI":"10.1111\/bioe.13018","article-title":"Environmentally sustainable development and use of artificial intelligence in health care","volume":"36","author":"Richie","year":"2022","journal-title":"Bioethics"},{"key":"ref28","author":"RoomMate","year":"2023"},{"key":"ref29","doi-asserted-by":"publisher","first-page":"55","DOI":"10.1017\/s1041610292001157","article-title":"Functional assessment staging (FAST) in Alzheimer's disease: reliability, validity, and ordinality","author":"Sclan","year":"1992","journal-title":"Int. Psychogeriatr."},{"key":"ref30","doi-asserted-by":"publisher","first-page":"e9","DOI":"10.2196\/mhealth.2730","article-title":"Indoor and outdoor social alarms: understanding users\u2019 perspectives","volume":"2","author":"Sj\u00f6linder","year":"2014","journal-title":"JMIR Mhealth Uhealth"},{"key":"ref31","doi-asserted-by":"publisher","first-page":"160","DOI":"10.1186\/s12877-019-1169-0","article-title":"Informal carers\u2019 experience of assistive technology use in dementia care at home: a systematic review","volume":"19","author":"Sriram","year":"2019","journal-title":"BMC Geriatr."},{"key":"ref33","first-page":"25","article-title":"Welfare technology and new services. [Velferdsteknologi og nye tjenestel\u00f8sninger]","volume-title":"Velferdsteknologi: en ressursbok","author":"Thygesen","year":"2019"},{"key":"ref34","doi-asserted-by":"publisher","first-page":"191","DOI":"10.3389\/fpubh.2020.00191","article-title":"Emerging issues of intelligent assistive technology use among people with dementia and their caregivers: a U.S. perspective","volume":"8","author":"Vollmer","year":"2020","journal-title":"Front. 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