{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,13]],"date-time":"2026-07-13T07:06:52Z","timestamp":1783926412850,"version":"3.55.0"},"reference-count":26,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2026,7,13]],"date-time":"2026-07-13T00:00:00Z","timestamp":1783900800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Hum. Neurosci."],"abstract":"<jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>For people with Parkinson\u2019s disease (PD), deciding whether to pursue deep brain stimulation (DBS) has become increasingly complex. Evidence suggests current approaches to collaborative decision-making may fall short of accepted standards. Thus, a decision support intervention, such as a patient decision aid (PtDA) may be warranted. PtDAs have been shown to improve patients\u2019 knowledge, expectations, and participation in decision-making for other, similar healthcare decisions. We therefore sought to assess neurologists\u2019 awareness of, and experience using, PtDAs, and to solicit their opinions on the ideal features of a PtDA for PD patients considering DBS.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Sixteen United States-based neurology clinicians were interviewed about their experiences in treating and counseling PD patients considering DBS. These semi-structured interviews were analyzed using qualitative content analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Seven general neurologists, eight movement disorders specialists, and one registered nurse in a movement practice participated in interviews. None of the clinicians had experience using a patient decision aid, and many were unfamiliar with the concept altogether. All largely expressed optimism about the potential utility of a PtDA for PD patients considering DBS. There was less consensus about the ideal format, content, and implementation of such a PtDA.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Healthcare providers recognize the potential benefits of a PtDA to engage PD patients considering DBS. However, input from other stakeholders\u2014particularly the patients themselves\u2014is essential to validate these findings.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.3389\/fnhum.2026.1851826","type":"journal-article","created":{"date-parts":[[2026,7,13]],"date-time":"2026-07-13T06:23:08Z","timestamp":1783923788000},"update-policy":"https:\/\/doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":0,"title":["Clinicians\u2019 views on a patient decision aid for deep brain stimulation in Parkinson\u2019s disease"],"prefix":"10.3389","volume":"20","author":[{"given":"Hillary S.","family":"King","sequence":"first","affiliation":[{"name":"The Pennsylvania State University","place":["University Park, PA, United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer","family":"Blumenthal-Barby","sequence":"additional","affiliation":[{"name":"Baylor College of Medicine","place":["Houston, TX, United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Benjamin H.","family":"Levi","sequence":"additional","affiliation":[{"name":"Penn State College of Medicine","place":["Hershey, PA, United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sol","family":"De Jesus","sequence":"additional","affiliation":[{"name":"Penn State College of Medicine","place":["Hershey, PA, United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Harini","family":"Sarva","sequence":"additional","affiliation":[{"name":"Weill Cornell Medicine","place":["New York, NY, United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura Y.","family":"Cabrera","sequence":"additional","affiliation":[{"name":"The Pennsylvania State University","place":["University Park, PA, United States"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1965","published-online":{"date-parts":[[2026,7,13]]},"reference":[{"key":"ref1","doi-asserted-by":"publisher","first-page":"59","DOI":"10.1016\/j.parkreldis.2021.10.009","article-title":"Validation and clinical value of the MANAGE-PD tool: a clinician-reported tool to identify Parkinson\u2019s disease patients inadequately controlled on oral medications","volume":"92","author":"Antonini","year":"2021","journal-title":"Park. Relat. Disord."},{"key":"ref2","doi-asserted-by":"publisher","first-page":"506","DOI":"10.1212\/cpj.0000000000001098","article-title":"Neurologists\u2019 attitudes toward use and timing of deep brain stimulation","volume":"11","author":"Cabrera","year":"2021","journal-title":"Neurol. Clin Pr."},{"key":"ref3","doi-asserted-by":"publisher","first-page":"411","DOI":"10.1111\/ner.12608","article-title":"Shaking up the debate: ensuring the ethical use of DBS intervention criteria for mid-stage Parkinson\u2019s patients","volume":"20","author":"Eijkholt","year":"2017","journal-title":"Neuromodulation"},{"key":"ref4","doi-asserted-by":"publisher","first-page":"589","DOI":"10.1177\/1877718x261425106","article-title":"Development and acceptability of a deep brain stimulation surgery decision aid for Parkinson\u2019s disease","volume":"16","author":"Fullard","year":"2026","journal-title":"J. Parkinsons Dis."},{"key":"ref5","doi-asserted-by":"publisher","first-page":"20","DOI":"10.1136\/medethics-2019-106052","article-title":"Incoming ethical issues for deep brain stimulation: when long-term treatment leads to a \u201cnew form of the disease\u201d","volume":"47","author":"Gilbert","year":"2021","journal-title":"J. M\u00e9d. Ethics"},{"key":"ref6","doi-asserted-by":"publisher","first-page":"e393","DOI":"10.1212\/wnl.0000000000009946","article-title":"Deep brain stimulation in early-stage Parkinson disease: five-year outcomes","volume":"95","author":"Hacker","year":"2020","journal-title":"Neurology"},{"key":"ref7","doi-asserted-by":"publisher","first-page":"1277","DOI":"10.1177\/1049732305276687","article-title":"Three approaches to qualitative content analysis","volume":"15","author":"Hsieh","year":"2005","journal-title":"Qual. Health Res."},{"key":"ref8","doi-asserted-by":"publisher","first-page":"907","DOI":"10.1177\/0272989x20978208","article-title":"What works in implementing patient decision aids in routine clinical settings? A rapid realist review and update from the international patient decision aid standards collaboration","volume":"41","author":"Joseph-Williams","year":"2020","journal-title":"M\u00e9d. Decis. Mak."},{"key":"ref9","doi-asserted-by":"publisher","first-page":"699","DOI":"10.1177\/0272989x13501721","article-title":"Toward minimum standards for certifying patient decision aids","volume":"34","author":"Joseph-Williams","year":"2013","journal-title":"M\u00e9d. Decis. Mak."},{"key":"ref10","doi-asserted-by":"publisher","first-page":"433","DOI":"10.2147\/jmdh.s27180","article-title":"Lack of information and access to advanced treatment for Parkinson\u2019s disease patients","volume":"4","author":"L\u00f6kk","year":"2011","journal-title":"J. Multidiscip. Healthc."},{"key":"ref11","doi-asserted-by":"publisher","first-page":"667035","DOI":"10.3389\/fnhum.2021.667035","article-title":"Global variability in deep brain stimulation practices for Parkinson\u2019s disease","volume":"15","author":"Mahajan","year":"2021","journal-title":"Front. Hum. Neurosci."},{"key":"ref12","doi-asserted-by":"publisher","first-page":"780","DOI":"10.1177\/0272989x211021397","article-title":"Providing balanced information about options in patient decision aids: an update from the international patient decision aid standards","volume":"41","author":"Martin","year":"2021","journal-title":"M\u00e9d. Decis. Mak."},{"key":"ref13","doi-asserted-by":"publisher","first-page":"17","DOI":"10.1007\/s12152-022-09496-w","article-title":"Deep brain stimulation for Parkinson\u2019s disease: why earlier use makes shared decision making important","volume":"15","author":"Montemayor","year":"2022","journal-title":"Neuroethics"},{"key":"ref14","doi-asserted-by":"publisher","first-page":"269","DOI":"10.1007\/s00415-025-12972-x","article-title":"A decision aid is not the quick fix for improving shared decision-making in advanced Parkinson\u2019s disease: results of a mixed methods feasibility study","volume":"272","author":"Nijhuis","year":"2025","journal-title":"J. Neurol."},{"key":"ref15","doi-asserted-by":"publisher","first-page":"896","DOI":"10.3389\/fneur.2019.00896","article-title":"The patient\u2019s perspective on shared decision-making in advanced Parkinson\u2019s disease: a cross-sectional survey study","volume":"10","author":"Nijhuis","year":"2019","journal-title":"Front. Neurol."},{"key":"ref16","doi-asserted-by":"publisher","first-page":"533","DOI":"10.3233\/jpd-160816","article-title":"Choosing an advanced therapy in Parkinson\u2019s disease; is it an evidence-based decision in current practice?","volume":"6","author":"Nijhuis","year":"2016","journal-title":"J. Parkinsons Dis."},{"key":"ref17","author":"O\u2019Connor","year":"2002"},{"key":"ref18","doi-asserted-by":"publisher","first-page":"533","DOI":"10.1007\/s10488-013-0528-y","article-title":"Purposeful sampling for qualitative data collection and analysis in mixed method implementation research","volume":"42","author":"Palinkas","year":"2015","journal-title":"Adm. Policy Ment. Health"},{"key":"ref19","year":"2025"},{"key":"ref20","doi-asserted-by":"publisher","first-page":"108","DOI":"10.1038\/s41531-023-00523-y","article-title":"Care access and utilization among medicare beneficiaries living with Parkinson\u2019s disease","volume":"9","author":"Pearson","year":"2023","journal-title":"NPJ Parkinsons Dis."},{"key":"ref21","doi-asserted-by":"publisher","first-page":"24","DOI":"10.1038\/s41531-019-0098-0","article-title":"Advance care planning in Parkinson\u2019s disease: ethical challenges and future directions","volume":"5","author":"Sokol","year":"2019","journal-title":"NPJ Parkinsons Dis."},{"key":"ref22","doi-asserted-by":"publisher","first-page":"CD001431","DOI":"10.1002\/14651858.cd001431.pub6","article-title":"Decision aids for people facing health treatment or screening decisions","volume":"2024","author":"Stacey","year":"2024","journal-title":"Cochrane Database Syst. Rev."},{"key":"ref23","author":"Stacey","year":"2025"},{"key":"ref24","doi-asserted-by":"publisher","first-page":"23814683251364883","DOI":"10.1177\/23814683251364883","article-title":"Development and acceptability testing of a patient decision aid on levodopa intestinal gel for Parkinson disease","volume":"10","author":"Tanguay","year":"2025","journal-title":"MDM Polic. Pr."},{"key":"ref25","doi-asserted-by":"publisher","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","article-title":"Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups","volume":"19","author":"Tong","year":"2007","journal-title":"Int. J. Qual. Heal. Care"},{"key":"ref26","doi-asserted-by":"publisher","first-page":"736","DOI":"10.1177\/0272989x211014163","article-title":"Systematic development of patient decision aids: an update from the IPDAS collaboration","volume":"41","author":"Witteman","year":"2021","journal-title":"M\u00e9d. Decis. Mak."}],"container-title":["Frontiers in Human Neuroscience"],"original-title":[],"link":[{"URL":"https:\/\/www.frontiersin.org\/articles\/10.3389\/fnhum.2026.1851826\/full","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,7,13]],"date-time":"2026-07-13T06:23:09Z","timestamp":1783923789000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.frontiersin.org\/articles\/10.3389\/fnhum.2026.1851826\/full"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,7,13]]},"references-count":26,"alternative-id":["10.3389\/fnhum.2026.1851826"],"URL":"https:\/\/doi.org\/10.3389\/fnhum.2026.1851826","relation":{},"ISSN":["1662-5161"],"issn-type":[{"value":"1662-5161","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,7,13]]},"article-number":"1851826"}}