{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,30]],"date-time":"2025-11-30T13:52:06Z","timestamp":1764510726187,"version":"3.41.2"},"reference-count":36,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2020,10,20]],"date-time":"2020-10-20T00:00:00Z","timestamp":1603152000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Pharmacol."],"DOI":"10.3389\/fphar.2020.571066","type":"journal-article","created":{"date-parts":[[2020,10,20]],"date-time":"2020-10-20T04:54:38Z","timestamp":1603169678000},"update-policy":"https:\/\/doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":5,"title":["Reliability of a Novel Hematological Malignancy Specific Patient-Reported Outcome Measure: HM-PRO"],"prefix":"10.3389","volume":"11","author":[{"given":"Pushpendra","family":"Goswami","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Esther N.","family":"Oliva","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tatyana","family":"Ionova","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Roger","family":"Else","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jonathan","family":"Kell","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Adele K.","family":"Fielding","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Daniel M.","family":"Jennings","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marina","family":"Karakantza","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Saad","family":"Al-Ismail","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Graham P.","family":"Collins","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stewart","family":"McConnell","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Catherine","family":"Langton","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Magda J.","family":"Al-Obaidi","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Metod","family":"Oblak","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sam","family":"Salek","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"1965","published-online":{"date-parts":[[2020,10,20]]},"reference":[{"key":"B1","doi-asserted-by":"publisher","first-page":"S18","DOI":"10.1097\/MLR.0000000000001096","article-title":"A Rasch Measurement Theory Approach to Improve the Interpretation of Patient-reported Outcomes","author":"Browne","year":"2019","journal-title":"Med. Care"},{"key":"B2","doi-asserted-by":"publisher","first-page":"1158","DOI":"10.1080\/10428194.2019.1709838","article-title":"Development and validation of the AML-QOL: a quality of life instrument for patients with acute myeloid leukemia","volume":"61","author":"Buckley","year":"2020","journal-title":"Leukemia Lymphoma"},{"key":"B3","doi-asserted-by":"publisher","first-page":"297","DOI":"10.1007\/BF02310555","article-title":"Coefficient alpha and the internal structure of tests","volume":"16","author":"Cronbach","year":"1951","journal-title":"Psychometrika"},{"volume-title":"Scale Development: Theory and Applications","year":"2016","author":"Devellis","key":"B4"},{"key":"B5","doi-asserted-by":"publisher","first-page":"501","DOI":"10.1182\/asheducation-2015.1.501","article-title":"Patient-reported outcomes in clinical practice","volume":"2015","author":"Dobrozsi","year":"2015","journal-title":"Hematol. Am. Soc. Hematol. Educ. Program"},{"key":"B6","doi-asserted-by":"publisher","first-page":"S94","DOI":"10.1111\/j.1524-4733.2007.00272.x","article-title":"What is sufficient evidence for the reliability and validity of patient-reported outcome measures","author":"Frost","year":"2007","journal-title":"Value Health"},{"key":"B7","doi-asserted-by":"publisher","first-page":"5985","DOI":"10.1182\/blood.V128.22.5985.5985","article-title":"Development of a Novel Patient-Reported Outcome Measure in Haematological Malignancy for Use in Routine Clinical Practice: Item Generation","volume":"128","author":"Goswami","year":"2016","journal-title":"Blood"},{"key":"B8","doi-asserted-by":"publisher","first-page":"2176","DOI":"10.1182\/BLOOD.V130.SUPPL_1.2176.2176","article-title":"HM-PRO: A Novel Patient-Reported Outcome Measure in Hematological Malignancy for Use in Clinical Practice","volume":"130","author":"Goswami","year":"2017","journal-title":"Blood"},{"key":"B9","doi-asserted-by":"publisher","first-page":"2294","DOI":"10.1182\/blood-2018-99-117094","article-title":"Responsiveness and the Minimal Clinically Important Difference for HM-PRO in Patients with Hematological Malignancies","volume":"132","author":"Goswami","year":"2018","journal-title":"Blood"},{"key":"B10","doi-asserted-by":"publisher","first-page":"4860","DOI":"10.1182\/blood-2018-99-117180","article-title":"Translating the Science of Patient Reported Outcomes into Practice: Meaningfulness of HM-PRO Scores in Patients with Hematological Malignancies","volume":"132","author":"Goswami","year":"2018","journal-title":"Blood"},{"key":"B11","doi-asserted-by":"publisher","first-page":"279","DOI":"10.1111\/ejh.13203","article-title":"Haematological malignancy: Are we measuring what is important to patients? A systematic review of quality-of-life instruments","volume":"102","author":"Goswami","year":"2019","journal-title":"Eur. J. Haematol."},{"key":"B12","doi-asserted-by":"publisher","first-page":"523","DOI":"10.2217\/cer-2018-0108","article-title":"Paper and electronic versions of HM-PRO, a novel patient-reported outcome measure for hematology: an equivalence study","volume":"8","author":"Goswami","year":"2019","journal-title":"J. Comp. Eff. Res."},{"key":"B13","doi-asserted-by":"publisher","first-page":"1308","DOI":"10.3389\/fphar.2020.00209","article-title":"Haematological Malignancy Specific Patient-Reported Outcome Measure (HM- PRO): Construct Validity Study","volume":"11","author":"Goswami","year":"2020","journal-title":"Front. Pharmacol."},{"key":"B14","doi-asserted-by":"crossref","DOI":"10.1177\/2040620720955002","article-title":"Quality of Life Issues and Symptoms Reported by Patients Living with Haematological Malignancy: A Qualitative Study","volume-title":"Ther. Adv. Haematol.","author":"Goswami","year":"2020"},{"key":"B15","doi-asserted-by":"publisher","DOI":"10.3389\/fphar.2020.00209","article-title":"Development of a Novel Hematological Malignancy Specific Patient-Reported Outcome Measure (HM-PRO): Content Validity","volume":"11","author":"Goswami","year":"2020","journal-title":"Front. Pharmacol."},{"key":"B16","unstructured":"Classification [Online].2004"},{"key":"B17","unstructured":"Incidence and Survival [Online].2014"},{"key":"B18","doi-asserted-by":"publisher","first-page":"381","DOI":"10.1111\/j.1600-0609.2004.00233.x","article-title":"Quality of life of patients with chronic lymphocytic leukemia: results of a longitudinal investigation over 1 yr","volume":"72","author":"Holzner","year":"2004","journal-title":"Eur. J. Haematol."},{"volume-title":"The importance of being valid: Reliability and the process of construct validation","year":"2007","author":"John","key":"B19"},{"key":"B20","doi-asserted-by":"publisher","first-page":"139","DOI":"10.1111\/j.1600-0609.2009.01250.x","article-title":"Health related quality of life in a nationally representative sample of haematological patients","volume":"83","author":"Johnsen","year":"2009","journal-title":"Eur. J. Haematol."},{"key":"B21","doi-asserted-by":"publisher","first-page":"28","DOI":"10.1177\/1088868310366253","article-title":"Internal Consistency, Retest Reliability, and their Implications For Personality Scale Validity","volume":"15","author":"Mccrae","year":"2011","journal-title":"Pers. Soc. Psychol. Rev. Off. J. Soc. Pers. Soc. Psychol. Inc."},{"volume-title":"Measuring health : a guide to rating scales and questionnaires","year":"1996","author":"Mcdowell","key":"B22"},{"key":"B23","first-page":"30","article-title":"Forming Inferences About Some Intraclass Correlation Coefficients","volume-title":"Psychol. Methods","author":"Mcgraw","year":"1996"},{"key":"B24","doi-asserted-by":"publisher","first-page":"1659","DOI":"10.1002\/cncr.22581","article-title":"Quality of life among long-term non-Hodgkin lymphoma survivors: a population-based study","volume":"109","author":"Mols","year":"2007","journal-title":"Cancer"},{"key":"B25","doi-asserted-by":"publisher","first-page":"437","DOI":"10.1111\/ejh.12012","article-title":"What issues matter most to people with multiple myeloma and how well are we measuring them? A systematic review of quality of life tools","volume":"89","author":"Osborne","year":"2012","journal-title":"Eur. J. Haematol."},{"key":"B26","doi-asserted-by":"publisher","first-page":"280","DOI":"10.1186\/s12885-015-1261-6","article-title":"Improving the assessment of quality of life in the clinical care of myeloma patients: the development and validation of the Myeloma Patient Outcome Scale (MyPOS)","volume":"15","author":"Osborne","year":"2015","journal-title":"BMC Cancer"},{"key":"B27","doi-asserted-by":"publisher","first-page":"36","DOI":"10.1046\/j.1365-2354.2001.00236.x","article-title":"Acute leukaemia or highly malignant lymphoma patients\u2019 quality of life over two years: a pilot study","volume":"10","author":"Persson","year":"2001","journal-title":"Eur. J. Cancer Care (Engl.)"},{"key":"B28","first-page":"137","article-title":"Health-related quality of life assessment: A review","volume":"5","author":"Salek","year":"1992","journal-title":"J. Drug Dev."},{"key":"B29","doi-asserted-by":"publisher","first-page":"505","DOI":"10.1016\/j.jpsychores.2005.08.017","article-title":"Psychosocial adaptation and quality of life among Brazilian patients with different hematological malignancies","volume":"60","author":"Santos","year":"2006","journal-title":"J. Psychosom. Res."},{"key":"B30","doi-asserted-by":"publisher","first-page":"255","DOI":"10.1111\/j.1365-2141.2007.06791.x","article-title":"Quality of life in chronic lymphocytic leukemia: an international survey of 1482 patients","volume":"139","author":"Shanafelt","year":"2007","journal-title":"Br. J. Haematol."},{"key":"B31","doi-asserted-by":"publisher","first-page":"374","DOI":"10.1111\/j.1600-0609.2008.01126.x","article-title":"Psychosocial QOL is an independent predictor of overall survival in newly diagnosed patients with multiple myeloma","volume":"81","author":"Strasser-Weippl","year":"2008","journal-title":"Eur. J. Haematol."},{"key":"B32","doi-asserted-by":"crossref","DOI":"10.1093\/oso\/9780198528470.001.0001","volume-title":"Heatlh Measurement Scales a practical guide to their development and use","author":"Streiner","year":"2003"},{"key":"B33","doi-asserted-by":"publisher","first-page":"41","DOI":"10.1093\/rheumatology\/kev282","article-title":"Reliability of patient-reported outcomes in rheumatoid arthritis patients: an observational prospective study","volume":"55","author":"Studenic","year":"2016","journal-title":"Rheumatology"},{"key":"B34","doi-asserted-by":"publisher","first-page":"53","DOI":"10.5116\/ijme.4dfb.8dfd","article-title":"Making sense of Cronbach\u2019s alpha","volume":"2","author":"Tavakol","year":"2011","journal-title":"Int. J. Med. Educ."},{"key":"B35","first-page":"79","article-title":"Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance","volume":"4","year":"2009","journal-title":"Health Qual. Life Outcomes"},{"key":"B36","unstructured":"World Health OrganizationCancer: Diagnosis and Treatment [Online]2017"}],"container-title":["Frontiers in Pharmacology"],"original-title":[],"link":[{"URL":"https:\/\/www.frontiersin.org\/articles\/10.3389\/fphar.2020.571066\/full","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,8,16]],"date-time":"2024-08-16T03:42:04Z","timestamp":1723779724000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.frontiersin.org\/articles\/10.3389\/fphar.2020.571066\/full"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,10,20]]},"references-count":36,"alternative-id":["10.3389\/fphar.2020.571066"],"URL":"https:\/\/doi.org\/10.3389\/fphar.2020.571066","relation":{},"ISSN":["1663-9812"],"issn-type":[{"type":"electronic","value":"1663-9812"}],"subject":[],"published":{"date-parts":[[2020,10,20]]},"article-number":"571066"}}