{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,14]],"date-time":"2026-09-14T12:33:24Z","timestamp":1789389204401,"version":"build-2803163510"},"reference-count":41,"publisher":"Frontiers Media SA","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Front. Psychol."],"DOI":"10.3389\/fpsyg.2014.00704","type":"journal-article","created":{"date-parts":[[2014,7,8]],"date-time":"2014-07-08T10:44:37Z","timestamp":1404816277000},"source":"Crossref","is-referenced-by-count":6,"title":["Well-being in amyotrophic lateral sclerosis: a pilot experience sampling study"],"prefix":"10.3389","volume":"5","author":[{"given":"Ruben G. L.","family":"Real","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Thorsten","family":"Dickhaus","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Albert","family":"Ludolph","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martin","family":"Hautzinger","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrea","family":"K\u00c3\u00bcbler","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1965","published-online":{"date-parts":[[2014,7,8]]},"reference":[{"key":"B1","doi-asserted-by":"publisher","first-page":"230","DOI":"10.1093\/clipsy.bph077","article-title":"Mindfulness: a proposed operational definition","volume":"11","author":"Bishop","year":"2004","journal-title":"Clin. Psychol. Sci. Pract"},{"key":"B2","doi-asserted-by":"publisher","first-page":"293","DOI":"10.1080\/146608200300079536","article-title":"El escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis","volume":"1","author":"Brooks","year":"2000","journal-title":"Amyotroph. Lateral Scler. Other Motor Neuron Disord"},{"key":"B3","first-page":"49","article-title":"Goal engagement and the human experience","volume-title":"Ruminative Thoughts","author":"Carver","year":"1996"},{"key":"B4","doi-asserted-by":"publisher","first-page":"92","DOI":"10.1207\/s15327558ijbm0401_6","article-title":"You want to measure coping but your protocol's too long: consider the brief cope","volume":"4","author":"Carver","year":"1997","journal-title":"Int. J. Behav. Med"},{"key":"B5","doi-asserted-by":"publisher","first-page":"13","DOI":"10.1016\/S0022-510X(99)00210-5","article-title":"The alsfrs-r: a revised als functional rating scale that incorporates assessments of respiratory function","volume":"169","author":"Cedarbaum","year":"1999","journal-title":"J. Neurol. Sci"},{"key":"B6","doi-asserted-by":"publisher","first-page":"1597","DOI":"10.1136\/jnnp.2003.033100","article-title":"A cross sectional study on determinants of quality of life in als","volume":"75","author":"Chi\u00c3\u00b2","year":"2004","journal-title":"J. Neurol. Neurosurg. Psychiatry"},{"key":"B7","doi-asserted-by":"publisher","first-page":"53","DOI":"10.1023\/A:1023609306024","article-title":"A practical guide to experience-sampling procedures","volume":"4","author":"Christensen","year":"2003","journal-title":"J. Happiness Stud"},{"key":"B8","doi-asserted-by":"publisher","first-page":"149","DOI":"10.1023\/A:1016704906100","article-title":"Assessing individual quality of life in amyotrophic lateral sclerosis","volume":"10","author":"Clarke","year":"2001","journal-title":"Qual. Life Res"},{"key":"B9","doi-asserted-by":"publisher","first-page":"155","DOI":"10.1037\/0033-2909.112.1.155","article-title":"A power primer","volume":"112","author":"Cohen","year":"1992","journal-title":"Psychol. Bull"},{"key":"B10","doi-asserted-by":"publisher","first-page":"207","DOI":"10.1177\/026921639500900306","article-title":"The mcgill quality of life questionnaire: a measure of quality of life appropriate for people with advanced disease. a preliminary study of validity and acceptability","volume":"9","author":"Cohen","year":"1995","journal-title":"Palliative Med"},{"key":"B11","volume-title":"Flow: The Psychology of Optimal Experience","author":"Csikszentmihalyi","year":"1990"},{"key":"B12","doi-asserted-by":"publisher","first-page":"526","DOI":"10.1097\/00005053-198709000-00004","article-title":"Validity and reliability of the experience-sampling method","volume":"175","author":"Csikszentmihalyi","year":"1987","journal-title":"J. Nerv. Ment. Dis"},{"key":"B13","doi-asserted-by":"publisher","first-page":"51","DOI":"10.1006\/obhd.1994.1029","article-title":"The study of congruence in organizational behavior research: critique and a proposed alternative","volume":"58","author":"Edwards","year":"1994","journal-title":"Organ. Behav. Hum. Decis. Process"},{"key":"B14","doi-asserted-by":"publisher","first-page":"293","DOI":"10.1002\/job.4030110405","article-title":"The person-environment fit approach to stress: recurring problems and some suggested solutions","volume":"11","author":"Edwards","year":"1990","journal-title":"J. Organ. Behav"},{"key":"B15","doi-asserted-by":"publisher","first-page":"470","DOI":"10.1089\/jpm.2007.0098","article-title":"Hope in palliative care: From narcissism to self-transcendence in amyotrophic lateral sclerosis","volume":"11","author":"Fanos","year":"2008","journal-title":"J. Palliative Care"},{"key":"B16","doi-asserted-by":"publisher","first-page":"113","DOI":"10.1016\/j.socscimed.2013.11.003","article-title":"Exerting control and adapting to loss in amyotrophic lateral sclerosis","volume":"101","author":"Foley","year":"2014","journal-title":"Soc. Sci. Med"},{"key":"B17","doi-asserted-by":"publisher","first-page":"213","DOI":"10.1016\/j.jad.2007.11.012","article-title":"Validity of the als-depression-inventory (adi-12): a new screening instrument for depressive disorders in patients with amyotrophic lateral sclerosis","volume":"109","author":"Hammer","year":"2008","journal-title":"J. Affect. Disord"},{"key":"B18","doi-asserted-by":"publisher","first-page":"219","DOI":"10.1177\/135581960000500406","article-title":"Does length of questionnaire matter? a randomised trial of response rates to a mailed questionnaire","volume":"5","author":"Iglesias","year":"2000","journal-title":"J. Health Serv. Res. Policy"},{"key":"B19","doi-asserted-by":"publisher","first-page":"240","DOI":"10.1026\/1616-3443.38.4.240","article-title":"Einfluss von achtsamkeits\u00c3\u00bcbung und dezentrierung auf rumination und spezifit\u00c3\u00a4t autobiographischer erinnerungen","volume":"38","author":"Jong-Meyer","year":"2009","journal-title":"Z. Klin. Psychol. Psych"},{"key":"B20","doi-asserted-by":"publisher","first-page":"115","DOI":"10.1037\/1082-989X.8.2.115","article-title":"Lower level mediation in multilevel models","volume":"8","author":"Kenny","year":"2003","journal-title":"Psychol. Methods"},{"key":"B21","doi-asserted-by":"publisher","first-page":"745","DOI":"10.1111\/j.1365-2702.2008.02671.x","article-title":"Living with amyotrophic lateral sclerosis\/motor neurone disease (als\/mnd): decision-making about \u00e2\u20ac\u02dcongoing change and adaptation\u00e2\u20ac\u2122","volume":"18","author":"King","year":"2009","journal-title":"J. Clin. Nurs"},{"key":"B22","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1007\/978-0-387-09593-6_6","article-title":"Mindfulness and psychopathology: problem formulation","volume-title":"Clinical Handbook of Mindfulness","author":"Kocovski","year":"2009"},{"key":"B23","first-page":"41","article-title":"The experience sampling method","volume-title":"Naturalistic Approaches to Studying Social Interaction","author":"Larson","year":"1983"},{"key":"B24","doi-asserted-by":"publisher","first-page":"6","DOI":"10.1136\/jnnp.2006.104828","article-title":"Descriptive epidemiology of amyotrophic lateral sclerosis: new evidence and unsolved issues","volume":"79","author":"Logroscino","year":"2008","journal-title":"J. Neurol. Neurosurg. Psychiatry"},{"key":"B25","doi-asserted-by":"publisher","first-page":"385","DOI":"10.1136\/jnnp.2009.183525","article-title":"Incidence of amyotrophic lateral sclerosis in europe","volume":"81","author":"Logroscino","year":"2010","journal-title":"J. Neurol. Neurosurg. Psychiatry"},{"key":"B26","doi-asserted-by":"publisher","first-page":"397","DOI":"10.3238\/arztebl.2008.0397","article-title":"Depression and quality of life in patients with amyotrophic lateral sclerosis","volume":"105","author":"Lul\u00c3\u00a9","year":"2008","journal-title":"Deutsch. \u00c3\u201erztebl. Int"},{"key":"B27","doi-asserted-by":"publisher","first-page":"339","DOI":"10.1016\/S0079-6123(09)17723-3","article-title":"Life can be worth living in locked-in syndrome","volume":"177","author":"Lul\u00c3\u00a9","year":"2009","journal-title":"Prog. Brain Res"},{"key":"B28","doi-asserted-by":"publisher","first-page":"83","DOI":"10.1037\/1082-989X.7.1.83","article-title":"A comparison of methods to test mediation and other intervening variable effects","volume":"7","author":"MacKinnon","year":"2002","journal-title":"Psychol. Methods"},{"key":"B29","first-page":"1","article-title":"Some ruminative thoughts","volume-title":"Ruminative Thoughts","author":"Martin","year":"1996"},{"key":"B30","doi-asserted-by":"publisher","first-page":"893","DOI":"10.1136\/jnnp.2009.201285","article-title":"Coping with amyotrophic lateral sclerosis: an integrative view","volume":"81","author":"Matuz","year":"2010","journal-title":"J. Neurol. Neurosurg. Psychiatry"},{"key":"B31","doi-asserted-by":"publisher","first-page":"4","DOI":"10.1016\/j.jns.2007.03.001","article-title":"A review of psychosocial aspects of motor neurone disease","volume":"258","author":"McLeod","year":"2007","journal-title":"J. Neurol. Sci"},{"key":"B32","doi-asserted-by":"publisher","first-page":"136","DOI":"10.1111\/j.1600-0404.2011.01513.x","article-title":"Coping strategies as related to medical and demographic data in amyotrophic lateral sclerosis","volume":"125","author":"Montel","year":"2012a","journal-title":"Acta Neurol. Scand"},{"key":"B33","doi-asserted-by":"publisher","first-page":"131","DOI":"10.1002\/mus.22270","article-title":"Coping strategies in relation to quality of life in amyotrophic lateral sclerosis","volume":"45","author":"Montel","year":"2012b","journal-title":"Muscle Nerve"},{"key":"B34","doi-asserted-by":"publisher","first-page":"569","DOI":"10.1037\/0021-843X.100.4.569","article-title":"Responses to depression and their effects on the duration of depressive episodes","volume":"100","author":"Nolen-Hoeksema","year":"1991","journal-title":"J. Abnorm. Psychol"},{"key":"B35","doi-asserted-by":"publisher","first-page":"400","DOI":"10.1111\/j.1745-6924.2008.00088.x","article-title":"Rethinking rumination","volume":"3","author":"Nolen-Hoeksema","year":"2008","journal-title":"Perspect. Psychol. Sci"},{"key":"B36","doi-asserted-by":"publisher","first-page":"55","DOI":"10.1026\/1616-3443\/a000186","article-title":"Psychische st\u00c3\u00b6rungen und individuelle lebensqualit\u00c3\u00a4t bei der chronisch progredient-terminalen erkrankung amyotrophe lateralsklerose (als)","volume":"42","author":"Nonnenmacher","year":"2013","journal-title":"Z. Klin. Psychol. Psych"},{"key":"B37","doi-asserted-by":"publisher","first-page":"194","DOI":"10.1080\/00207594.2012.691977","article-title":"Psychological wellbeing and quality of life in amyotrophic lateral sclerosis: a review","volume":"48","author":"Pagnini","year":"2013","journal-title":"Int. J. Psychol"},{"key":"B37b","doi-asserted-by":"publisher","first-page":"272","DOI":"10.1089\/acm.2013.0268","article-title":"Meditation training for people with amyotrophic lateral sclerosis and their caregivers","volume":"20","author":"Pagnini","year":"2014a","journal-title":"J. Altern. Complement. Med"},{"issue":"138","key":"B39","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2014.00138","article-title":"A mindful approach with end-of-life thoughts","volume":"5","author":"Pagnini","year":"2014b","journal-title":"Front. Psychol"},{"key":"B40","doi-asserted-by":"publisher","first-page":"2131","DOI":"10.1016\/S0277-9536(01)00356-2","article-title":"Amyotrophic lateral sclerosis and hopelessness: psychosocial factors","volume":"55","author":"Plahuta","year":"2002","journal-title":"Soc. Sci. Med"},{"key":"B41","doi-asserted-by":"publisher","first-page":"14","DOI":"10.1186\/1477-7525-2-14","article-title":"Toward a theoretical model of quality-of-life appraisal: implications of findings from studies of response shift","volume":"2","author":"Rapkin","year":"2004","journal-title":"Health Qual. Life Out"}],"container-title":["Frontiers in Psychology"],"original-title":[],"deposited":{"date-parts":[[2017,6,22]],"date-time":"2017-06-22T16:19:09Z","timestamp":1498148349000},"score":1,"resource":{"primary":{"URL":"http:\/\/journal.frontiersin.org\/article\/10.3389\/fpsyg.2014.00704\/abstract"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2014,7,8]]},"references-count":41,"URL":"https:\/\/doi.org\/10.3389\/fpsyg.2014.00704","relation":{},"ISSN":["1664-1078"],"issn-type":[{"value":"1664-1078","type":"electronic"}],"subject":[],"published":{"date-parts":[[2014,7,8]]}}}