{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,23]],"date-time":"2026-10-23T20:53:45Z","timestamp":1792788825009,"version":"4.5.0"},"reference-count":20,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T00:00:00Z","timestamp":1790726400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"40th Mazda Research"},{"name":"The Mitsubishi Foundation","id":[{"id":"https:\/\/ror.org\/02y2f3e22","id-type":"ROR","asserted-by":"crossref"}]},{"name":"JSPS KAKENHI","award":["JP22H00490"],"award-info":[{"award-number":["JP22H00490"]}]}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Psychol."],"abstract":"<jats:p>Siblings of children with chronic conditions or disabilities (young carers) often take on caregiving roles yet remain largely outside family-support frameworks, and intervention research targeting them is scarce, particularly in Japan. This prospective longitudinal pilot study examined the feasibility of delivering an in-person sibling peer event (a one-day group gathering combining recreational activities, peer interaction, activities facilitating emotional expression, and crafts) embedded within a continuously operating online remote care system (RCS) and explored preliminary outcome patterns, rather than testing efficacy. Twenty children participated; because one sibling pair shared a single proxy report, they yielded 19 analysis cases (hereafter, 19 cases), assessed before the event (T0), immediately after (T1), and 3 (T2) and 6 (T3) months later, within a feasibility framework and using the Family Empowerment Scale, the EQ-5D (utility and the 0\u2013100 visual analog scale [VAS]), the short Japanese Zarit Burden Interview (J-ZBI_8), and a social resource utilization item. Recruitment was open with no eligibility restrictions; 20 of 22 applicants attended (participation 91%), and no adverse events were reported at any assessment; acceptability was high, with all children rating the event enjoyable and 94.7% wishing to attend again. Questionnaire data were available for 16, 18, 10, and 12 of 19 cases at T0\u2013T3, illustrating the difficulty of longitudinal follow-up. Outcomes were respondent-level: parents provided proxy reports (10 cases) and siblings self-reports (9 cases), so scores index different constructs and are summarized accordingly rather than as a single pooled measure. Changes in quality of life were small, non-significant, and concentrated among parent-proxy reports; because two non-comparable EQ-5D forms were used, utilities are reported descriptively only. As an exploratory signal warranting monitoring rather than a safety concern, self- and proxy-reported burden scores rose immediately after the event and returned toward baseline by 6\u202fmonths. This pilot provides preliminary feasibility signals for embedding an in-person sibling event within continuous online support and indicates the need for controlled studies to examine the efficacy of such in-person events for siblings, while highlighting measurement and retention challenges to address in future trials.<\/jats:p>","DOI":"10.3389\/fpsyg.2026.1940533","type":"journal-article","created":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T06:00:10Z","timestamp":1790748010000},"update-policy":"https:\/\/doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":0,"title":["Feasibility of a remote-care-system-based sibling peer event for young carers: a longitudinal pilot study"],"prefix":"10.3389","volume":"17","author":[{"given":"Rie","family":"Wakimizu","sequence":"first","affiliation":[{"name":"Division of Health Innovation and Nursing, Department of Child Health Care Nursing, Institute of Medicine, University of Tsukuba","place":["Tsukuba, Japan"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Keita","family":"Sasaki","sequence":"additional","affiliation":[{"name":"Division of Pediatric Nursing, Faculty of Health Sciences, Hokkaido University","place":["Sapporo, Japan"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mariko","family":"Hoshi","sequence":"additional","affiliation":[{"name":"Graduate School of Comprehensive Human Sciences, University of Tsukuba","place":["Tsukuba, Japan"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rika","family":"Ogoshi","sequence":"additional","affiliation":[{"name":"Graduate School of Comprehensive Human Sciences, University of Tsukuba","place":["Tsukuba, Japan"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marise","family":"Kasai","sequence":"additional","affiliation":[{"name":"Graduate School of Comprehensive Human Sciences, University of Tsukuba","place":["Tsukuba, Japan"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yoshiyuki","family":"Kawano","sequence":"additional","affiliation":[{"name":"Institute of Human Sciences, University of Tsukuba","place":["Tsukuba, Japan"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1965","published-online":{"date-parts":[[2026,9,30]]},"reference":[{"key":"ref1","doi-asserted-by":"publisher","first-page":"6760","DOI":"10.1080\/09638288.2025.2543941","article-title":"Characteristics of interventions for siblings of children and youth with disabilities and chronic conditions: a scoping review","volume":"47","author":"Al-Hakeem","year":"2025","journal-title":"Disabil. Rehabil."},{"key":"ref2","doi-asserted-by":"publisher","first-page":"497","DOI":"10.3143\/geriatrics.40.497","article-title":"Development of the Japanese short version of the Zarit caregiver burden interview (J-ZBI_8): its reliability and validity [in Japanese]","volume":"40","author":"Arai","year":"2003","journal-title":"Nihon Ronen Igakkai Zasshi"},{"key":"ref3","doi-asserted-by":"publisher","first-page":"i5239","DOI":"10.1136\/bmj.i5239","article-title":"CONSORT 2010 statement: extension to randomised pilot and feasibility trials","volume":"355","author":"Eldridge","year":"2016","journal-title":"BMJ"},{"key":"ref4","doi-asserted-by":"publisher","first-page":"199","DOI":"10.1016\/0168-8510(90)90421-9","article-title":"EuroQol\u2014a new facility for the measurement of health-related quality of life","volume":"16","year":"1990","journal-title":"Health Policy"},{"key":"ref5","doi-asserted-by":"publisher","first-page":"E26","DOI":"10.1111\/j.1440-1754.2010.01771.x","article-title":"A systematic review of interventions to support siblings of children with chronic illness or disability","volume":"50","author":"Hartling","year":"2014","journal-title":"J. Paediatr. Child Health"},{"key":"ref6","doi-asserted-by":"publisher","first-page":"493","DOI":"10.1186\/s13063-019-3578-y","article-title":"Progression criteria in trials with an internal pilot: an audit of publicly funded randomised controlled trials","volume":"20","author":"Herbert","year":"2019","journal-title":"Trials"},{"key":"ref7","first-page":"47","article-title":"Developing a Japanese version of the EQ-5D-5L value set [in Japanese]","volume":"64","author":"Ikeda","year":"2015","journal-title":"Hoken Iryo Kagaku"},{"key":"ref8","doi-asserted-by":"publisher","first-page":"903","DOI":"10.1016\/j.socscimed.2003.12.010","article-title":"Outcomes associated with participation in a therapeutic recreation camping programme for children from 15 European countries: data from the 'Barretstown studies'","volume":"59","author":"Kiernan","year":"2004","journal-title":"Soc. Sci. Med."},{"key":"ref9","doi-asserted-by":"publisher","first-page":"305","DOI":"10.1037\/h0079106","article-title":"Measuring empowerment in families whose children have emotional disabilities: a brief questionnaire","volume":"37","author":"Koren","year":"1992","journal-title":"Rehabil. Psychol."},{"key":"ref10","doi-asserted-by":"publisher","first-page":"209","DOI":"10.1007\/s10567-024-00502-6","article-title":"Siblings of persons with disabilities: a systematic integrative review of the empirical literature","volume":"28","author":"Levante","year":"2025","journal-title":"Clin. Child. Fam. Psychol. Rev."},{"key":"ref11","first-page":"23","article-title":"Development of a short form of the family empowerment scale [in Japanese]","volume":"70","author":"Sato","year":"2023","journal-title":"Kosei no Shihyo"},{"key":"ref12","doi-asserted-by":"publisher","first-page":"597","DOI":"10.1177\/0272989X211001859","article-title":"Valuation survey of EQ-5D-Y based on the international common protocol: development of a value set in Japan","volume":"41","author":"Shiroiwa","year":"2021","journal-title":"Med. Decis. Mak."},{"key":"ref13","doi-asserted-by":"publisher","first-page":"339","DOI":"10.1352\/0047-6765(2005)43[339:SOCWDR]2.0.CO;2","article-title":"Siblings of children with disabilities: research themes and future directions","volume":"43","author":"Stoneman","year":"2005","journal-title":"Ment. Retard."},{"key":"ref15","first-page":"33","article-title":"Development of a family empowerment measurement scale: the Japanese version of the family empowerment scale (FES) [in Japanese]","volume":"57","author":"Wakimizu","year":"2010","journal-title":"Kosei no Shihyo"},{"key":"ref16","doi-asserted-by":"publisher","first-page":"370","DOI":"10.1016\/j.ijnss.2018.09.006","article-title":"Family empowerment and associated factors in Japanese families raising a child with severe motor and intellectual disabilities","volume":"5","author":"Wakimizu","year":"2018","journal-title":"Int. J. Nurs. Sci."},{"key":"ref17","doi-asserted-by":"publisher","first-page":"1030","DOI":"10.1016\/j.ridd.2011.01.037","article-title":"Factors associated with the empowerment of Japanese families raising a child with developmental disorders","volume":"32","author":"Wakimizu","year":"2011","journal-title":"Res. Dev. Disabil."},{"key":"ref18","doi-asserted-by":"publisher","first-page":"929146","DOI":"10.3389\/fped.2022.929146","article-title":"Effectiveness of a peer group-based online intervention program in empowering families of children with disabilities at home","volume":"10","author":"Wakimizu","year":"2022","journal-title":"Front. Pediatr."},{"key":"ref19","doi-asserted-by":"publisher","first-page":"38","DOI":"10.1016\/j.ijnss.2016.12.004","article-title":"Family empowerment and quality of life of parents raising children with developmental disabilities in 78 Japanese families","volume":"4","author":"Wakimizu","year":"2016","journal-title":"Int. J. Nurs. Sci."},{"key":"ref20","doi-asserted-by":"publisher","first-page":"143","DOI":"10.1007\/s10567-022-00413-4","article-title":"Psychosocial interventions and support groups for siblings of individuals with neurodevelopmental conditions: a mixed methods systematic review of sibling self-reported mental health and wellbeing outcomes","volume":"26","author":"Wolff","year":"2023","journal-title":"Clin. Child. Fam. Psychol. Rev."},{"key":"ref21","doi-asserted-by":"publisher","first-page":"649","DOI":"10.1093\/geront\/20.6.649","article-title":"Relatives of the impaired elderly: correlates of feelings of burden","volume":"20","author":"Zarit","year":"1980","journal-title":"The Gerontologist"}],"container-title":["Frontiers in Psychology"],"original-title":[],"link":[{"URL":"https:\/\/www.frontiersin.org\/articles\/10.3389\/fpsyg.2026.1940533\/full","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T06:00:11Z","timestamp":1790748011000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.frontiersin.org\/articles\/10.3389\/fpsyg.2026.1940533\/full"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9,30]]},"references-count":20,"alternative-id":["10.3389\/fpsyg.2026.1940533"],"URL":"https:\/\/doi.org\/10.3389\/fpsyg.2026.1940533","relation":{},"ISSN":["1664-1078"],"issn-type":[{"value":"1664-1078","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,9,30]]},"article-number":"1940533"}}