{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,15]],"date-time":"2026-10-15T18:05:18Z","timestamp":1792087518296,"version":"4.4.0"},"reference-count":80,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2025,11,6]],"date-time":"2025-11-06T00:00:00Z","timestamp":1762387200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100012856","name":"Alberta Children\u2019s Hospital Research Institute","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100012856","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100001804","name":"Canada Research Chair","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100001804","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Public Health"],"abstract":"<jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Youth with Neurodevelopmental Disabilities (NDD) who are transitioning to adulthood often struggle with accessing services. This limited access can result in poorer health, reduced ability to perform daily activities and engage in independent living and decreased levels of participation in society. Despite Canada\u2019s commitment to the UN Convention on the Rights of Persons with Disabilities, British Columbia (BC) youth with NDD face additional barriers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This study investigated service providers\u2019 and decision-makers\u2019 perspectives on barriers, facilitators and policy recommendations for accessing BC\u2019s health, education and disability services for youth with NDD. We conducted a qualitative descriptive study with 15 semi-structured interviews. We conducted inductive thematic coding to generate themes, which we then organized and interpreted using Bronfenbrenner\u2019s ecological model.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Findings revealed that fragmented organizational structures, eligibility criteria, limited and unstable funding and enduring stigma impede service access, while coordinated inter-agency collaboration, clear transition planning and early, family-centered interventions may improve outcomes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>Targeted policy reforms across multiple ecological levels are essential to reduce inequities in service access and strengthen the continuum of support for youth with NDD as they transition to adulthood.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.3389\/fpubh.2025.1612509","type":"journal-article","created":{"date-parts":[[2025,11,6]],"date-time":"2025-11-06T11:47:34Z","timestamp":1762429654000},"update-policy":"https:\/\/doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":4,"title":["Service access for youth with neurodevelopmental disabilities transitioning to adulthood: service providers\u2019 and decision-makers\u2019 perspectives on barriers, facilitators and policy recommendations"],"prefix":"10.3389","volume":"13","author":[{"given":"Angela M.","family":"Senevirathna","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patricia","family":"Basualto","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ashish","family":"Seth","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gina","family":"Dimitropoulos","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer D.","family":"Zwicker","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1965","published-online":{"date-parts":[[2025,11,6]]},"reference":[{"key":"ref1","volume-title":"Diagnostic and statistical manual of mental disorders: DSM-5\u2122","year":"2013"},{"key":"ref2","doi-asserted-by":"publisher","first-page":"120","DOI":"10.5409\/wjcp.v11.i2.120","article-title":"Classification, prevalence and integrated care for neurodevelopmental and child mental health disorders: a brief overview for paediatricians","volume":"11","author":"Ogundele","year":"2022","journal-title":"World J Clin Pediatr"},{"key":"ref3","doi-asserted-by":"publisher","first-page":"81","DOI":"10.1111\/dmcn.14478","article-title":"Use of family disability service by families with young children with disabilities","volume":"63","author":"Russell","year":"2021","journal-title":"Dev Med Child Neurol"},{"key":"ref4","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1016\/j.ridd.2017.04.003","article-title":"Describing heterogeneity of unmet needs among adults with a developmental disability: an examination of the 2012 Canadian survey on disability","volume":"65","author":"Zwicker","year":"2017","journal-title":"Res Dev Disabil"},{"key":"ref5","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2023-063809","article-title":"Supporting Access for Everyone Consensus Panel. 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