{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T05:18:23Z","timestamp":1788153503933,"version":"build-2803163510"},"reference-count":38,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T00:00:00Z","timestamp":1788134400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Public Health"],"abstract":"<jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Fetal alcohol spectrum disorder (FASD) affects an estimated 1.8\u20133.6% of UK school children and up to 27% of children in care. FASD remains vastly under-diagnosed and under-recorded in UK electronic patient records (EPRs), leading to significant challenges for individuals with the condition. In 2024, we developed new SNOMED clinical terms aligned to UK national guidelines and quality standards for FASD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aims<\/jats:title>\n                    <jats:p>Through collaborative knowledge mobilisation (KM), we aimed to: i) raise awareness of the importance of utilising these new clinical terms; ii) identify barriers to FASD code usage in primary care EPRs; iii) co-develop creative communication materials and dissemination strategies.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      We engaged with stakeholders (\n                      <jats:italic>N<\/jats:italic>\n                      \u202f=\u202f18) including paediatricians, general practitioners, wider health professionals, data specialists, third-sector representatives, and researchers, through a workshop and individual meetings. Individuals living with FASD provided their perspectives on the importance of recognising FASD in EPRs, for inclusion in communication materials.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>We co-produced free, publicly available creative communication materials including an animation, infographics and social media images. Materials focus on raising awareness of new SNOMED clinical terms for FASD, address stakeholder reported barriers to clinical coding, and provide actionable recommendations to improve clinical coding for FASD within primary care electronic records, and diagnostic services. We promoted these materials through social media platforms, a press release, conference presentations, and an editorial.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>Our collaborative KM work provides an exemplar for developing materials with the aim of supporting improved clinical coding in EPRs. Further work is required to maximise and evaluate the impact of our materials.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.3389\/fpubh.2026.1794809","type":"journal-article","created":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T04:28:19Z","timestamp":1788150499000},"update-policy":"https:\/\/doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":0,"title":["Collaborative knowledge mobilisation to increase awareness and use of new SNOMED clinical terms for fetal alcohol spectrum disorder in England"],"prefix":"10.3389","volume":"14","author":[{"given":"James T. I.","family":"Parsonage","sequence":"first","affiliation":[{"name":"Bristol Medical School, University of Bristol","place":["Bristol, United Kingdom"]},{"name":"School for Public Health Research (SPHR), National Institute for Health and Care Research (NIHR)","place":["Newcastle, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amy","family":"Dillon","sequence":"additional","affiliation":[{"name":"NHS Bristol, North Somerset and South Gloucestershire Integrated Care Board (BNSSG ICB)","place":["Bristol, United Kingdom"]},{"name":"NIHR Bristol Biomedical Research Centre, University of Bristol","place":["Bristol, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Louise","family":"Millington","sequence":"additional","affiliation":[{"name":"South Yorkshire Integrated Care Board (ICB)","place":["Sheffield, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Raja A. S.","family":"Mukherjee","sequence":"additional","affiliation":[{"name":"Surrey and Borders Partnership NHS Foundation Trust","place":["Surrey, United Kingdom"]},{"name":"University of Surrey, School of Medicine","place":["Surrey, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sandra Ionno","family":"Butcher","sequence":"additional","affiliation":[{"name":"National Organisation for FASD","place":["Hertfordshire, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andy","family":"Boyd","sequence":"additional","affiliation":[{"name":"Bristol Medical School, University of Bristol","place":["Bristol, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patricia D.","family":"Jackson","sequence":"additional","affiliation":[{"name":"Past President and Continuing Member of Scottish Paediatric Society, Past Chair and Continuing Member Scottish Association of Community Child Health","place":["London, United Kingdom"]},{"name":"Paediatric Representative Scottish Health Action on Alcohol Problems, Sponsored by Royal College of Physicians of Edinburgh","place":["Edinburgh, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cheryl","family":"McQuire","sequence":"additional","affiliation":[{"name":"Bristol Medical School, University of Bristol","place":["Bristol, United Kingdom"]},{"name":"NHS Bristol, North Somerset and South Gloucestershire Integrated Care Board (BNSSG ICB)","place":["Bristol, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1965","published-online":{"date-parts":[[2026,8,31]]},"reference":[{"key":"ref1","doi-asserted-by":"publisher","first-page":"2271","DOI":"10.1111\/acer.14705","article-title":"Prevalence of fetal alcohol spectrum disorder in greater Manchester, UK: an active case ascertainment study","volume":"45","author":"McCarthy","year":"2021","journal-title":"Alcohol Clin Exp Res"},{"key":"ref2","doi-asserted-by":"publisher","first-page":"225","DOI":"10.1177\/0308575915594985","article-title":"Identifying children who are at risk of FASD in Peterborough: working in a community clinic without access to gold standard diagnosis","volume":"39","author":"Gregory","year":"2015","journal-title":"Adopt Foster"},{"key":"ref3","year":"2021"},{"key":"ref4","year":"2019"},{"key":"ref5","doi-asserted-by":"publisher","first-page":"872","DOI":"10.1177\/1179558119838872","article-title":"A survey of health care professionals\u2019 knowledge and experience of foetal alcohol spectrum disorder and alcohol use in pregnancy","volume":"13","author":"Howlett","year":"2019","journal-title":"Clin Med Insights Reprod Health"},{"key":"ref6","doi-asserted-by":"publisher","first-page":"316","DOI":"10.1186\/s12884-019-2431-3","article-title":"The conversation matters: a qualitative study exploring the implementation of alcohol screening and brief interventions in antenatal care in Scotland","volume":"19","author":"Sch\u00f6lin","year":"2019","journal-title":"BMC Pregnancy Childbirth"},{"key":"ref7","year":"2025"},{"key":"ref8","year":""},{"key":"ref9","year":"2020"},{"key":"ref10","year":"2026"},{"key":"ref11","doi-asserted-by":"publisher","first-page":"143","DOI":"10.14236\/jhi.v15i3.652","article-title":"Variation in clinical coding lists in UK general practice: a barrier to consistent data entry?","volume":"15","author":"Tai","year":"2007","journal-title":"Inform Prim Care"},{"key":"ref12","doi-asserted-by":"publisher","first-page":"191","DOI":"10.1503\/cmaj.141593","article-title":"Fetal alcohol spectrum disorder: a guideline for diagnosis across the lifespan","volume":"188","author":"Cook","year":"2016","journal-title":"CMAJ"},{"key":"ref13","doi-asserted-by":"publisher","first-page":"14","DOI":"10.1186\/1471-2431-11-14","article-title":"Under-reporting of foetal alcohol spectrum disorders: an analysis of hospital episode statistics","volume":"11","author":"Morleo","year":"2011","journal-title":"BMC Pediatr"},{"key":"ref14","doi-asserted-by":"publisher","first-page":"852","DOI":"10.1136\/archdischild-2023-325571","article-title":"Fetal alcohol syndrome in the UK","volume":"108","author":"Burleigh","year":"2023","journal-title":"Arch Dis Child"},{"key":"ref15","volume-title":"Fetal Alcohol Spectrum Disorder. 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