{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T15:02:48Z","timestamp":1784818968630,"version":"3.55.0"},"reference-count":54,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T00:00:00Z","timestamp":1784764800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Public Health"],"abstract":"<jats:sec>\n                    <jats:title>Purpose<\/jats:title>\n                    <jats:p>This study explores patterns of community participation and abandonment among older adults living with mild to moderate dementia in British Columbia, Canada. It identifies types of out-of-home places that are retained and\/or abandoned over time, as well as the reasons for ongoing participation or the abandonment of places.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>The study uses the ACT-OUT survey and the participants included 32 community-dwelling individuals living with dementia. All participants described the places they visited across four areas\u2014consumer, medical, social, and recreational\u2014reflecting on their past, current, and expected future participation. Patterns in the data were examined using one-sample t-tests.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Significant declines in participation were observed from past to present in most categories, particularly for administrative offices (e.g., government buildings, city halls, and other bureaucratic service centers), sports facilities, places of worship, and hospitals. Commonly retained places included neighborhoods, parks, senior centers, and doctor\u2019s offices, largely due to familiarity, proximity, and necessity. Anticipated future participation showed stability or modest improvement in similar categories.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The findings highlight a narrowing of community engagement for people living with dementia, which emphasizes the importance of dementia-friendly community initiatives that prioritize familiar, accessible, and supportive environments to sustain meaningful out-of-home participation.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.3389\/fpubh.2026.1863001","type":"journal-article","created":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T14:21:09Z","timestamp":1784816469000},"update-policy":"https:\/\/doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":0,"title":["Community places visited and abandoned by people living with dementia in British Columbia, Canada: patterns and implications"],"prefix":"10.3389","volume":"14","author":[{"given":"Habib","family":"Chaudhury","sequence":"first","affiliation":[{"name":"Department of Gerontology, Simon Fraser University","place":["Burnaby, BC, Canada"]},{"name":"Department of Housing and Interior Design, Kyung Hee University","place":["Dongdaemun, Republic of Korea"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tianci","family":"Dong","sequence":"additional","affiliation":[{"name":"Department of Gerontology, Simon Fraser University","place":["Burnaby, BC, Canada"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shawna","family":"Hopper","sequence":"additional","affiliation":[{"name":"Department of Gerontology, Simon Fraser University","place":["Burnaby, BC, Canada"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joey","family":"Wong","sequence":"additional","affiliation":[{"name":"School of Nursing, University of British Columbia","place":["Vancouver, BC, Canada"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kishore","family":"Seetharaman","sequence":"additional","affiliation":[{"name":"Department of Gerontology, Simon Fraser University","place":["Burnaby, BC, Canada"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cari","family":"Randa-Beaulieu","sequence":"additional","affiliation":[{"name":"Alzheimer Society of British Columbia","place":["Vancouver, BC, Canada"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emma","family":"Rossnagel","sequence":"additional","affiliation":[{"name":"School of Nursing, University of Northern British Columbia","place":["Prince George, BC, Canada"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lillian","family":"Hung","sequence":"additional","affiliation":[{"name":"School of Nursing, University of British Columbia","place":["Vancouver, BC, Canada"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mark","family":"Groulx","sequence":"additional","affiliation":[{"name":"School of Planning and Sustainability, University of Northern British Columbia","place":["Prince George, BC, Canada"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ji Young","family":"Cho","sequence":"additional","affiliation":[{"name":"Department of Housing and Interior Design, Kyung Hee University","place":["Dongdaemun, Republic of Korea"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shannon","family":"Freeman","sequence":"additional","affiliation":[{"name":"School of Nursing, University of Northern British Columbia","place":["Prince George, BC, Canada"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1965","published-online":{"date-parts":[[2026,7,23]]},"reference":[{"key":"ref1","year":"2025"},{"key":"ref2","year":"2025"},{"key":"ref3","year":"2025"},{"key":"ref4","doi-asserted-by":"publisher","first-page":"1235","DOI":"10.1002\/gps.5123","article-title":"Dementia friendly communities in England: a scoping study","volume":"34","author":"Buckner","year":"2019","journal-title":"Int J Geriatr Psychiatry"},{"key":"ref5","doi-asserted-by":"publisher","first-page":"237","DOI":"10.1093\/geront\/gnu122","article-title":"Dementia friendly, dementia capable, and dementia positive: concepts to prepare for the future","volume":"55","author":"Lin","year":"2015","journal-title":"The Gerontologist"},{"key":"ref6","doi-asserted-by":"publisher","first-page":"e1375","DOI":"10.1111\/hsc.13545","article-title":"Perspectives of people living with dementia and their care partners about the impact on social health when participating in a co-designed dementia caf\u00e9","volume":"30","author":"Innes","year":"2021","journal-title":"Health Soc Care Community"},{"key":"ref7","doi-asserted-by":"publisher","first-page":"381","DOI":"10.1177\/1471301216638180","article-title":"Walking in the neighbourhood: performing social citizenship in dementia","volume":"15","author":"Phinney","year":"2016","journal-title":"Dementia"},{"key":"ref8","doi-asserted-by":"publisher","first-page":"587","DOI":"10.1177\/1471301211415314","article-title":"Accessibility in public space as perceived by people with Alzheimer\u2019s disease","volume":"10","author":"Brorsson","year":"2011","journal-title":"Dementia (London)"},{"key":"ref9","doi-asserted-by":"publisher","first-page":"384","DOI":"10.1080\/13607860601086470","article-title":"Doing as much as i can do: the meaning of activity for people with dementia","volume":"11","author":"Phinney","year":"2007","journal-title":"Aging Ment Health"},{"key":"ref10","doi-asserted-by":"publisher","first-page":"1636","DOI":"10.1177\/14713012221084173","article-title":"Out-of-home participation among people living with dementia: a study in four countries","volume":"21","author":"Thal\u00e9n","year":"2022","journal-title":"Dementia"},{"key":"ref11","doi-asserted-by":"publisher","first-page":"643","DOI":"10.1016\/s0895-4356(99)00049-9","article-title":"The physical activity scale for the elderly (PASE)","volume":"52","author":"Washburn","year":"1999","journal-title":"J Clin Epidemiol"},{"key":"ref12","doi-asserted-by":"publisher","first-page":"S775","DOI":"10.1093\/geroni\/igz038.2848","article-title":"Participation outside home for people living with dementia: do they really experience a shrinking world?","volume":"3","author":"Margot-Cattin","year":"2019","journal-title":"Innov Aging"},{"key":"ref13","year":"2016"},{"key":"ref14","doi-asserted-by":"crossref","first-page":"619","DOI":"10.1037\/10044-020","volume-title":"The Psychology of adult Development and Aging","author":"Lawton","year":"1973"},{"key":"ref15","doi-asserted-by":"publisher","first-page":"7301205030p1","DOI":"10.5014\/ajot.2019.027144","article-title":"Development of a questionnaire to evaluate out-of-home participation for people with dementia","volume":"73","author":"Margot-Cattin","year":"2019","journal-title":"Am J Occup Ther"},{"key":"ref16","doi-asserted-by":"publisher","first-page":"2362","DOI":"10.1177\/07334648221112425","article-title":"Social citizenship through out-of-home participation among older adults with and without dementia","volume":"41","author":"Gaber","year":"2022","journal-title":"J Appl Gerontol"},{"key":"ref17","doi-asserted-by":"publisher","first-page":"1213","DOI":"10.1177\/1471301220927230","article-title":"Community participation in activities and places among older adults with and without dementia","volume":"20","author":"Chaudhury","year":"2020","journal-title":"Dementia"},{"key":"ref18","doi-asserted-by":"publisher","first-page":"S79","DOI":"10.1080\/10790268.2021.1955204","article-title":"Development of community participation indicators to advance the quality of spinal cord injury rehabilitation: SCI-high project","volume":"44","author":"Hitzig","year":"2021","journal-title":"J Spinal Cord Med"},{"key":"ref19","doi-asserted-by":"publisher","first-page":"1108","DOI":"10.3389\/fneur.2019.01108","article-title":"Participation in younger and older adults post-stroke: frequency, importance, and desirability of engagement in activities","volume":"10","author":"Toglia","year":"2019","journal-title":"Front Neurol"},{"key":"ref20","doi-asserted-by":"publisher","first-page":"103","DOI":"10.1097\/00002060-199404000-00006","article-title":"THE COMMUNITY INTEGRATION QUESTIONNAIRE a comparative examination","volume":"73","author":"Wilier","year":"1994","journal-title":"Am J Phys Med Rehabil"},{"key":"ref21","doi-asserted-by":"publisher","first-page":"186","DOI":"10.1111\/jgs.16215","article-title":"Living in the community with dementia: who receives paid care?","volume":"68","author":"Reckrey","year":"2019","journal-title":"J Am Geriatr Soc"},{"key":"ref22","doi-asserted-by":"publisher","first-page":"11","DOI":"10.1177\/1471301207075625","article-title":"Participatory research: a method for process consent with persons who have dementia","volume":"6","author":"Dewing","year":"2007","journal-title":"Dementia (Basel)"},{"key":"ref23","doi-asserted-by":"publisher","first-page":"221","DOI":"10.1186\/s12916-020-01654-2","article-title":"Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare_Capacity statement)","volume":"18","author":"Evans","year":"2020","journal-title":"BMC Med"},{"key":"ref24","doi-asserted-by":"publisher","first-page":"651","DOI":"10.1177\/0969733011408046","article-title":"Ethical aspects of researching subjective experiences in early-stage dementia","volume":"18","author":"Pesonen","year":"2011","journal-title":"Nurs Ethics"},{"key":"ref25","doi-asserted-by":"publisher","first-page":"355","DOI":"10.1016\/j.jagp.2012.11.009","article-title":"Decision making for participation in dementia research","volume":"21","author":"Black","year":"2013","journal-title":"Am J Geriatr Psychiatry"},{"key":"ref26","doi-asserted-by":"crossref","first-page":"307","DOI":"10.4135\/9781446268247.n17","volume-title":"The SAGE Handbook of Qualitative Methods in Health Research","author":"Kelly","year":"2010"},{"key":"ref27","doi-asserted-by":"publisher","first-page":"76443","DOI":"10.1177\/15333175241276443","article-title":"Recruiting persons with dementia: a systematic review of facilitators, barriers, and strategies","volume":"39","author":"Hirt","year":"2024","journal-title":"Am J Alzheimers Dis Other Dement"},{"key":"ref28","doi-asserted-by":"publisher","first-page":"788","DOI":"10.1177\/0733464814532012","article-title":"Recruiting community-based dementia patients and caregivers in a nonpharmacologic randomized trial","volume":"35","author":"Morrison","year":"2014","journal-title":"J Appl Gerontol"},{"key":"ref29","doi-asserted-by":"publisher","first-page":"1774","DOI":"10.1177\/1049732316637065","article-title":"Reflections and recommendations for conducting in-depth interviews with people with dementia","volume":"26","author":"Cridland","year":"2016","journal-title":"Qual Health Res"},{"key":"ref30","doi-asserted-by":"publisher","first-page":"191","DOI":"10.1007\/s11136-005-0887-2","article-title":"Assessing measurement properties of two single-item general health measures","volume":"15","author":"DeSalvo","year":"2006","journal-title":"Qual Life Res"},{"key":"ref31","year":"2022"},{"key":"ref32","doi-asserted-by":"publisher","first-page":"21","DOI":"10.2307\/2955359","article-title":"Self-rated health and mortality: a review of twenty-seven community studies","volume":"38","author":"Idler","year":"1997","journal-title":"J Health Soc Behav"},{"key":"ref33","doi-asserted-by":"publisher","first-page":"2110135","DOI":"10.1177\/23337214211013596","article-title":"Creating dementia-friendly communities for social inclusion: a scoping review","volume":"7","author":"Hung","year":"2021","journal-title":"Gerontol Geriatr Med"},{"key":"ref34","author":"Margot-Cattin","year":"2021"},{"key":"ref35","doi-asserted-by":"publisher","first-page":"131","DOI":"10.1177\/00084174211000595","article-title":"Visiting out-of-home places when living with dementia: a cross-sectional observational study: Visiter des lieux hors du domicile lorsque l\u2019on vit avec Une d\u00e9mence: \u00e9tude transversale observationnelle","volume":"88","author":"Margot-Cattin","year":"2021","journal-title":"Can J Occup Ther"},{"key":"ref36","doi-asserted-by":"publisher","first-page":"93","DOI":"10.1590\/1980-57642020dn14-020001","article-title":"Daily functioning and dementia","volume":"14","author":"Cipriani","year":"2020","journal-title":"Dement Neuropsychol"},{"key":"ref37","doi-asserted-by":"publisher","first-page":"150","DOI":"10.1017\/S0959259811000268","article-title":"Neighbourhoods and dementia in the health and social care context: a realist review of the literature and implications for UK policy development","volume":"22","author":"Keady","year":"2012","journal-title":"Rev Clin Gerontol"},{"key":"ref38","doi-asserted-by":"publisher","first-page":"191","DOI":"10.1177\/1471301208091158","article-title":"The impact of early dementia on outdoor life: a shrinking world?","volume":"7","author":"Duggan","year":"2008","journal-title":"Dementia (Basel)"},{"key":"ref39","doi-asserted-by":"publisher","first-page":"S114","DOI":"10.1093\/geront\/gnx146","article-title":"From research to application: supportive and therapeutic environments for people living with dementia","volume":"58","author":"Calkins","year":"2018","journal-title":"The Gerontologist"},{"key":"ref40","doi-asserted-by":"publisher","first-page":"849","DOI":"10.1017\/s0144686x10001455","article-title":"Use of the global positioning system to measure the out-of-home mobility of older adults with differing cognitive functioning","volume":"31","author":"Shoval","year":"2011","journal-title":"Ageing Soc"},{"key":"ref41","year":"2017"},{"key":"ref42","year":"2021"},{"key":"ref43","doi-asserted-by":"crossref","first-page":"325","DOI":"10.1016\/j.jalz.2017.02.001","article-title":"2017 Alzheimer\u2019s disease facts and figures","volume":"13","year":"2017","journal-title":"Alzheimers Dement"},{"key":"ref44","year":"2022"},{"key":"ref45","year":"2010"},{"key":"ref46","doi-asserted-by":"publisher","first-page":"357","DOI":"10.1080\/0968759032000052914","article-title":"The accessibility of public spaces for people with dementia: a new priority for the 'open city'","volume":"18","author":"Blackman","year":"2003","journal-title":"Disabil Soc"},{"key":"ref47","doi-asserted-by":"publisher","first-page":"506","DOI":"10.1093\/aje\/kwn185","article-title":"Mobility disability and the urban built environment","volume":"168","author":"Clarke","year":"2008","journal-title":"Am J Epidemiol"},{"key":"ref48","volume-title":"Designing and Conducting Mixed Methods Research","author":"Creswell","year":"2017"},{"key":"ref49","doi-asserted-by":"publisher","first-page":"608","DOI":"10.1177\/0969733007080206","article-title":"Ethical and methodological issues in interviewing persons with dementia","volume":"14","author":"Hellstr\u00f6m","year":"2007","journal-title":"Nurs Ethics"},{"key":"ref50","doi-asserted-by":"publisher","first-page":"1042","DOI":"10.1177\/1471301217701274","article-title":"Safe and inclusive research practices for qualitative research involving people with dementia: a review of key issues and strategies","volume":"18","author":"Novek","year":"2019","journal-title":"Dementia"},{"key":"ref51","doi-asserted-by":"publisher","first-page":"168","DOI":"10.1093\/geroni\/igae098.0541","article-title":"Using the ACT-OUT questionnaire to inform on community mobility and participation for people living with dementia","volume":"8","author":"Margot-Cattin","year":"2024","journal-title":"Innov Aging"},{"key":"ref52","volume-title":"Qualitative Research and Methods: Integrating Theory and Practice","author":"Patton","year":"2015"},{"key":"ref53","doi-asserted-by":"publisher","first-page":"867","DOI":"10.1017\/s1041610217000631","article-title":"The lived neighborhood: understanding how people with dementia engage with their local environment","volume":"30","author":"Ward","year":"2017","journal-title":"Int Psychogeriatr"},{"key":"ref54","doi-asserted-by":"publisher","first-page":"147130122091988","DOI":"10.1177\/1471301220919887","article-title":"Journey of ethics \u2013 Conducting collaborative research with people with dementia","volume":"20","author":"Thoft","year":"2020","journal-title":"Dementia"}],"container-title":["Frontiers in Public Health"],"original-title":[],"link":[{"URL":"https:\/\/www.frontiersin.org\/articles\/10.3389\/fpubh.2026.1863001\/full","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T14:21:11Z","timestamp":1784816471000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.frontiersin.org\/articles\/10.3389\/fpubh.2026.1863001\/full"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,7,23]]},"references-count":54,"alternative-id":["10.3389\/fpubh.2026.1863001"],"URL":"https:\/\/doi.org\/10.3389\/fpubh.2026.1863001","relation":{},"ISSN":["2296-2565"],"issn-type":[{"value":"2296-2565","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,7,23]]},"article-number":"1863001"}}