{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,27]],"date-time":"2026-01-27T13:28:47Z","timestamp":1769520527978,"version":"3.49.0"},"reference-count":30,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2024,3,28]],"date-time":"2024-03-28T00:00:00Z","timestamp":1711584000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["frontierspartnerships.org"],"crossmark-restriction":true},"short-container-title":["J. Abdom. Wall Surg."],"abstract":"<jats:sec><jats:title>Aim:<\/jats:title><jats:p>This United Kingdom study aimed to explore people\u2019s experiences of living with, and self-managing parastomal bulging.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods:<\/jats:title><jats:p>Seventeen people were interviewed and 61 people completed an online survey.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results:<\/jats:title><jats:p>Parastomal bulging has a detrimental impact on quality of life including a negative impact on stoma function, daily activities, body image, physical intimacy, and socialising; access to specialist information and support for addressing the problem of bulging was inequitable; support garments were the most common self-management intervention; there was confusion about what exercise would be beneficial or how being active would help in terms of parastomal bulging self-management; peer support is no substitute for high quality specialist support.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion:<\/jats:title><jats:p>People need equitable access to information and support to self-manage and treat parastomal bulging. Research about other types of self-management interventions, for example, exercise is required so that people do not have to rely solely on support garments to self-manage parastomal bulging.<\/jats:p><\/jats:sec>","DOI":"10.3389\/jaws.2024.12478","type":"journal-article","created":{"date-parts":[[2024,3,28]],"date-time":"2024-03-28T09:55:53Z","timestamp":1711619753000},"update-policy":"https:\/\/doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":4,"title":["Lived Experience of Parastomal Bulging: A Mixed Methods Study"],"prefix":"10.3389","volume":"3","author":[{"given":"Julie","family":"Munro","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gill","family":"Hubbard","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Will","family":"Goodman","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca","family":"Beeken","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Raymond","family":"Oliphant","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"1965","published-online":{"date-parts":[[2024,3,28]]},"reference":[{"key":"B1","volume-title":"StoMap Programme Baseline Report 2019","year":"2019"},{"key":"B2","doi-asserted-by":"publisher","first-page":"654","DOI":"10.1097\/WON.0b013e3181f90f0c","article-title":"Concerns and Quality of Life Before Surgery and During the Recovery Period in Patients With Rectal Cancer and an Ostomy","volume":"37","author":"Carlsson","year":"2010","journal-title":"J Wound Ostomy Continence Nurs"},{"key":"B3","doi-asserted-by":"publisher","first-page":"2435","DOI":"10.1007\/s11136-022-03102-5","article-title":"Quality of Life Profiles and Their Association With Clinical and Demographic Characteristics and Physical Activity in People With a Stoma: A Latent Profile Analysis","volume":"31","author":"Goodman","year":"2022","journal-title":"Qual Life Res"},{"key":"B4","doi-asserted-by":"publisher","first-page":"1421","DOI":"10.1111\/hex.12585","article-title":"Research Priorities About Stoma-Related Quality of Life From the Perspective of People With a Stoma: A Pilot Survey","volume":"20","author":"Hubbard","year":"2017","journal-title":"Health Expect"},{"key":"B5","doi-asserted-by":"publisher","first-page":"31","DOI":"10.1055\/s-2008-1055319","article-title":"Late Stomal Complications","volume":"21","author":"Husain","year":"2008","journal-title":"Clin Colon Rectal Surg"},{"key":"B6","doi-asserted-by":"publisher","first-page":"420","DOI":"10.1097\/SLE.0b013e31825d36d7","article-title":"Parastomal Hernias as the Predominant Stoma Complication After Laparoscopic Colorectal Surgery","volume":"22","author":"Randall","year":"2012","journal-title":"Surg Laparosc Endosc Percutan Tech"},{"key":"B7","doi-asserted-by":"publisher","first-page":"183","DOI":"10.1007\/s10029-017-1697-5","article-title":"European Hernia Society Guidelines on Prevention and Treatment of Parastomal Hernias","volume":"22","author":"Antoniou","year":"2017","journal-title":"Hernia"},{"key":"B8","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1007\/s10029-013-1162-z","article-title":"European Hernia Society Classification of Parastomal Hernias","volume":"18","author":"Smietanski","year":"2014","journal-title":"Hernia"},{"key":"B9","doi-asserted-by":"publisher","first-page":"e1085","DOI":"10.1097\/SLA.0000000000003743","article-title":"Impact of a Parastomal Bulge on Quality of Life - A Cross-Sectional Study of Patients From the Danish Stoma Database","volume":"274","author":"Krogsgaard","year":"2019","journal-title":"Ann Surg"},{"key":"B10","doi-asserted-by":"publisher","first-page":"1708","DOI":"10.1016\/j.juro.2013.12.041","article-title":"Risk Factors for the Development of Parastomal Hernia After Radical Cystectomy","volume":"191","author":"Donahue","year":"2014","journal-title":"J Urol"},{"key":"B11","doi-asserted-by":"publisher","first-page":"766","DOI":"10.1016\/j.juro.2017.08.112","article-title":"Natural History and Predictors of Parastomal Hernia After Robot-Assisted Radical Cystectomy and Ileal Conduit Urinary Diversion","volume":"199","author":"Hussein","year":"2018","journal-title":"J Urol"},{"key":"B12","doi-asserted-by":"publisher","DOI":"10.1002\/14651858.CD008905.pub3","article-title":"Prosthetic Mesh Placement for the Prevention of Parastomal Hernia","author":"Jones","year":"2018","journal-title":"Cochrane Db Syst Rev"},{"key":"B13","doi-asserted-by":"publisher","first-page":"5","DOI":"10.1111\/codi.14249","article-title":"Prevention and Treatment of Parastomal Hernia: A Position Statement on Behalf of the Association of Coloproctology of Great Britain and Ireland","volume":"20","year":"2018","journal-title":"Colorectal Dis"},{"key":"B14","volume-title":"Supported Self-Management Education Guide","year":"2023"},{"key":"B15","doi-asserted-by":"publisher","first-page":"46","DOI":"10.1016\/j.apnr.2017.10.005","article-title":"Life With a Urostomy: A Phenomenological Study","volume":"39","author":"Villa","year":"2018","journal-title":"Appl Nurs Res"},{"key":"B16","volume-title":"Research Involving Children: Health Research Authority","year":"2018"},{"key":"B17","doi-asserted-by":"publisher","first-page":"473","DOI":"10.1111\/jan.12163","article-title":"Data Collection and Sampling in Qualitative Research: Does Size Matter?","volume":"70","author":"Cleary","year":"2014","journal-title":"J Adv Nurs"},{"key":"B18","doi-asserted-by":"publisher","first-page":"1229","DOI":"10.1080\/08870440903194015","article-title":"What Is an Adequate Sample Size? Operationalising Data Saturation for Theory-Based Interview Studies","volume":"25","author":"Francis","year":"2010","journal-title":"Psychol Health"},{"key":"B19","doi-asserted-by":"publisher","first-page":"160940692211270","DOI":"10.1177\/16094069221127068","article-title":"A Systematic Comparison of In-Person and Video-Based Online Interviewing","volume":"21","author":"Lobe","year":"2022","journal-title":"Int J Qual Methods"},{"key":"B20","doi-asserted-by":"publisher","first-page":"1005","DOI":"10.1111\/j.1475-6773.2004.00269.x","article-title":"Development of the Patient Activation Measure (PAM): Conceptualizing and Measuring Activation in Patients and Consumers","volume":"39","author":"Hibbard","year":"2004","journal-title":"Health Serv Res"},{"key":"B21","doi-asserted-by":"publisher","first-page":"183","DOI":"10.1097\/00006842-199603000-00013","article-title":"Prospective Evaluation of Psychosocial Adaptation to Stoma Surgery: The Role of Self-Efficacy","volume":"58","author":"Bekkers","year":"1996","journal-title":"Psychosom Med"},{"key":"B22","doi-asserted-by":"publisher","first-page":"52","DOI":"10.7748\/nr2011.01.18.2.52.c8284","article-title":"Qualitative Data Analysis: The Framework Approach","volume":"18","author":"Smith","year":"2011","journal-title":"Nurse Res"},{"key":"B23","doi-asserted-by":"publisher","first-page":"2629","DOI":"10.1111\/jan.13037","article-title":"Coping, Adapting or Self-Managing\u2013What Is the Difference? A Concept Review Based on the Neurological Literature","volume":"72","author":"Audulv","year":"2016","journal-title":"J Adv Nurs"},{"key":"B24","doi-asserted-by":"publisher","first-page":"627","DOI":"10.1080\/00365520701858470","article-title":"Quality of Life Is Impaired in Patients With Peristomal Bulging of a Sigmoid Colostomy","volume":"43","author":"Kald","year":"2008","journal-title":"Scand J Gastroenterol"},{"key":"B25","doi-asserted-by":"publisher","first-page":"195","DOI":"10.1080\/21674086.1972.11926594","article-title":"Changes in Body Image Following Ileostomy","volume":"41","author":"Druss","year":"1972","journal-title":"Psychoanal Q"},{"key":"B26","doi-asserted-by":"publisher","first-page":"405","DOI":"10.1016\/j.socscimed.2004.11.051","article-title":"Boundary Breaches: The Body, Sex and Sexuality After Stoma Surgery","volume":"61","author":"Manderson","year":"2005","journal-title":"Soc Sci Med"},{"key":"B27","doi-asserted-by":"publisher","first-page":"S46","DOI":"10.12968\/bjon.2023.32.16.S46","article-title":"Innovation and Digital Nursing: Providing Continuity in Stoma Care to Patients During the Pandemic","volume":"32","author":"Marinova","year":"2023","journal-title":"Br J Nurs"},{"key":"B28","doi-asserted-by":"publisher","first-page":"S30","DOI":"10.12968\/bjon.2022.31.6.S30","article-title":"Gaining Consensus: The Challenges of Living With a Stoma and the Impact of Stoma Leakage","volume":"31","author":"Aibibula","year":"2022","journal-title":"Br J Nurs"},{"key":"B29","doi-asserted-by":"publisher","first-page":"e000291","DOI":"10.1136\/bmjgast-2019-000291","article-title":"Experiences of Support Garments Following Bowel Stoma Formation: Analysis of Free-Text Responses in a Cross-Sectional Survey","volume":"6","author":"Hubbard","year":"2019","journal-title":"BMJ Open Gastroenterol"},{"key":"B30","volume-title":"Support Garments for the Prevention and Management of Parastomal Hernias","year":"2021"}],"container-title":["Journal of Abdominal Wall Surgery"],"original-title":[],"link":[{"URL":"https:\/\/www.frontierspartnerships.org\/articles\/10.3389\/jaws.2024.12478\/full","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,3,28]],"date-time":"2024-03-28T09:55:57Z","timestamp":1711619757000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.frontierspartnerships.org\/articles\/10.3389\/jaws.2024.12478\/full"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,3,28]]},"references-count":30,"alternative-id":["10.3389\/jaws.2024.12478"],"URL":"https:\/\/doi.org\/10.3389\/jaws.2024.12478","relation":{},"ISSN":["2813-2092"],"issn-type":[{"value":"2813-2092","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,3,28]]},"article-number":"12478"}}