{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T06:13:07Z","timestamp":1790748787473,"version":"4.1.0"},"reference-count":43,"publisher":"MDPI AG","issue":"7","license":[{"start":{"date-parts":[[2021,6,29]],"date-time":"2021-06-29T00:00:00Z","timestamp":1624924800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"University Hospital Foundation, Edmonton, Alberta","award":["Dennis and Doreen Erker Fund"],"award-info":[{"award-number":["Dennis and Doreen Erker Fund"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Brain Sciences"],"abstract":"<jats:p>There is growing research on carers of people with Parkinson\u2019s disease (PD) experiences. However, the impact on carers by PD delusions is not specifically examined. We conducted a qualitative study using semi-structured interviews of spouse carers of PD patients with delusions. Thematic analysis was employed using MAXQDA 2018. Twelve spouse participants (SPs) were interviewed. Four themes emerged: Managing incredulity: trying to make sense of delusion content; Hypervigilance: constant alertness to bizarre and threatening discourse and behavior; Defensive strategizing: anticipating delusions and potential consequences; Concealing and exposing: ambivalence about disclosing the effect of delusions yet wanting support. SPs reported effects on their emotional well-being and marital relationship and challenges to an orderly, predictable life. SPs were reluctant to share their experiences due to delusion content (often infidelity and sexual in nature) and a desire to protect their spouses\u2019 image. SPs\u2019 awareness of the potential for delusional thought was low prior to their occurrence. Conclusions: education surrounding potential neurobehavioral changes should occur for patients and carers. Clinicians should be aware that the impact of delusions on carers is often greater than disclosed in clinical interviews. Interdisciplinary teams speaking separately to spousal carers may improve disclosure and delivery of appropriate psychological support.<\/jats:p>","DOI":"10.3390\/brainsci11070871","type":"journal-article","created":{"date-parts":[[2021,6,29]],"date-time":"2021-06-29T22:39:43Z","timestamp":1625006383000},"page":"871","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":11,"title":["Psychological Impact of Parkinson Disease Delusions on Spouse Caregivers: A Qualitative Study"],"prefix":"10.3390","volume":"11","author":[{"given":"Caroline J.","family":"Deutsch","sequence":"first","affiliation":[{"name":"Complex Neurology Symptoms Clinic, 1H1.26 WMC, University of Alberta Hospital, Edmonton, AB T6G 2B7, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Noelle","family":"Robertson","sequence":"additional","affiliation":[{"name":"Department of Neuroscience, Psychology and Behaviour, University of Leicester, Center for Medicine, Lancaster Road, Leicester LE1 7HA, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Janis M.","family":"Miyasaki","sequence":"additional","affiliation":[{"name":"Department of Medicine, Parkinson and Movement Disorders Program, University of Alberta, 7-133 Clinical Sciences Building, 11350-83 Avenue, Edmonton, AB T6G 2G3, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2021,6,29]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"1061","DOI":"10.1002\/mds.21382","article-title":"Diagnostic criteria for psychosis in PD","volume":"22","author":"Ravina","year":"2007","journal-title":"Mov. 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