{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,19]],"date-time":"2026-03-19T03:23:31Z","timestamp":1773890611998,"version":"3.50.1"},"reference-count":58,"publisher":"MDPI AG","issue":"2","license":[{"start":{"date-parts":[[2026,2,16]],"date-time":"2026-02-16T00:00:00Z","timestamp":1771200000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Protestant Study Centre Villigst e.V."},{"name":"Department of Psychiatry and Psychotherapy of the University Medical Center Mainz"},{"name":"Catholic University of Applied Science Mainz"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Brain Sciences"],"abstract":"<jats:p>Background: Due to communication problems, people with primary progressive aphasia (PwPPA) are often affected in their self-image and experience a reduced quality of life (QoL). Biographic-narrative therapy is an effective approach to improve QoL in post-stroke aphasia. This study describes how PwPPA experienced their participation in the biographic-narrative intervention called Cope PPA. Methods: The intervention comprised a combination of five individual and seven group therapy sessions as well as the use of music and art therapy elements. Inclusion criteria were a capacity to give consent and sufficient visual\/auditory abilities of PwPPA. Exclusion criteria were the presence of severe depression (MADRS &gt; 35) or severe cognitive deficits (MMST &lt; 10). After the therapy, PwPPA and their family members took part in half-hour semi-structured interviews. Interviews were analysed according to the reflexive thematic analysis by Braun and Clarke. Results: The qualitative analysis was based on a data set of 34 interviews. A total of six themes were identified: (1) Participation required adherence; (2) Materials were considered remarkable; (3) Storytelling was conducted in an aphasia-free area; (4) Group participation created a sense of belonging; (5) Experiences encouraged self-reflection and (6) Coping is lengthy and ongoing. Conclusions: The findings of our reflexive thematic analysis suggest that PwPPA experienced the intervention as meaningful. Some PwPPA described the effects of our intervention on their self-image. Others emphasised that coping with their condition was an ongoing process requiring continuous support.<\/jats:p>","DOI":"10.3390\/brainsci16020233","type":"journal-article","created":{"date-parts":[[2026,2,16]],"date-time":"2026-02-16T11:11:28Z","timestamp":1771240288000},"page":"233","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["\u2018I Am No Longer Anxious When I Speak\u2019: Experiences of People with Primary Progressive Aphasia Taking Part in a Biographic-Narrative Therapy (Cope PPA)"],"prefix":"10.3390","volume":"16","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5139-2815","authenticated-orcid":false,"given":"Mirjam","family":"Gauch","sequence":"first","affiliation":[{"name":"Department of Psychiatry and Psychotherapy, University Medical Center of the Johannes Gutenberg University Mainz, 55131 Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anna-Lena","family":"K\u00f6b","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Psychotherapy, University Medical Center of the Johannes Gutenberg University Mainz, 55131 Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1590-9335","authenticated-orcid":false,"given":"Julia","family":"Tanase","sequence":"additional","affiliation":[{"name":"School of Allied Health, Human Services & Sport, La Trobe University, Melbourne 3086, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julia","family":"Feldmann","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Psychotherapy, University Medical Center of the Johannes Gutenberg University Mainz, 55131 Mainz, Germany"},{"name":"Faculty of Healthcare and Nursing, Catholic University of Applied Sciences Mainz, 55122 Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Johanna","family":"Jochmann","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Psychotherapy, University Medical Center of the Johannes Gutenberg University Mainz, 55131 Mainz, Germany"},{"name":"Faculty of Healthcare and Nursing, Catholic University of Applied Sciences Mainz, 55122 Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7311-0049","authenticated-orcid":false,"given":"Katharina","family":"Geschke","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Psychotherapy, University Medical Center of the Johannes Gutenberg University Mainz, 55131 Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Helen","family":"Klaus","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Psychotherapy, University Medical Center of the Johannes Gutenberg University Mainz, 55131 Mainz, Germany"},{"name":"Faculty of Healthcare and Nursing, Catholic University of Applied Sciences Mainz, 55122 Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Oliver","family":"T\u00fcscher","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Psychotherapy, University Medical Center of the Johannes Gutenberg University Mainz, 55131 Mainz, Germany"},{"name":"Department of Psychiatry, Psychotherapy and Psychosomatic Medicine, University Medicine Halle (Saale) of the Martin Luther University Halle-Wittenberg, 06112 Halle, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-7711-4328","authenticated-orcid":false,"given":"Isabel","family":"Heinrich","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Psychotherapy, University Medical Center of the Johannes Gutenberg University Mainz, 55131 Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sabine","family":"Corsten","sequence":"additional","affiliation":[{"name":"Faculty of Healthcare and Nursing, Catholic University of Applied Sciences Mainz, 55122 Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"1968","published-online":{"date-parts":[[2026,2,16]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"1537","DOI":"10.1093\/brain\/aws080","article-title":"Quantitative classification of primary progressive aphasia at early and mild impairment stages","volume":"135","author":"Mesulam","year":"2012","journal-title":"Brain"},{"key":"ref_2","doi-asserted-by":"crossref","first-page":"1144","DOI":"10.1001\/jamaneurol.2025.3307","article-title":"Incidence and Prevalence of Frontotemporal Dementia: A Systematic Review and Meta-Analysis","volume":"82","author":"Urso","year":"2025","journal-title":"JAMA 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