{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T04:35:35Z","timestamp":1787027735326,"version":"build-2736575974"},"reference-count":22,"publisher":"MDPI AG","issue":"24","license":[{"start":{"date-parts":[[2021,12,16]],"date-time":"2021-12-16T00:00:00Z","timestamp":1639612800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100004622","name":"Dutch Cancer Society","doi-asserted-by":"publisher","award":["11788"],"award-info":[{"award-number":["11788"]}],"id":[{"id":"10.13039\/501100004622","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100003246","name":"Dutch Research Council","doi-asserted-by":"publisher","award":["198.007"],"award-info":[{"award-number":["198.007"]}],"id":[{"id":"10.13039\/501100003246","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Cancers"],"abstract":"<jats:p>Background: Our aim was to evaluate differences in cancer-related internet patterns between AYAs (adolescents and young adults; 18\u201339 years at time of diagnosis) and older adult cancer patients (40+ years). Methods: Cross-sectional surveys were distributed among AYA and older adult cancer patients regarding cancer-related internet use and eHealth needs. Results: 299 AYAs (mean age 31.8 years) and 270 older adults (mean age 55.8 years) participated. AYAs searched significantly more often on the internet on a daily basis just before diagnosis (45% vs. 37%), right after diagnosis (71% vs. 62%) and during treatment (65% vs. 59%) compared to older adults. During follow up, there was a trend that AYAs searched less often on the internet compared to older adults (15% vs. 17%). AYAs searched more often on topics, such as alternative or complementary therapies, treatment guidelines, fertility, end of life, sexuality and intimacy, lifestyle and insurance. AYAs felt significantly better informed (75%) after searching for cancer-related information compared to older adults (65%) and had significantly less unmet needs regarding access to their own medical information (22% vs. 47%). AYAs search more on the internet on a daily basis\/several times per week in the diagnosis and treatment phase than older cancer patients. They search on different topics than older adults and seems to have less unmet eHealth needs.It is important that these are easy to find and reliable.<\/jats:p>","DOI":"10.3390\/cancers13246308","type":"journal-article","created":{"date-parts":[[2021,12,16]],"date-time":"2021-12-16T11:27:36Z","timestamp":1639654056000},"page":"6308","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":18,"title":["Differences in Internet Use and eHealth Needs of Adolescent and Young Adult Versus Older Cancer Patients; Results from the PROFILES Registry"],"prefix":"10.3390","volume":"13","author":[{"given":"Carla","family":"Vlooswijk","sequence":"first","affiliation":[{"name":"Research and Development, Netherlands Comprehensive Cancer Organisation, 3511 DT Utrecht, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1387-8686","authenticated-orcid":false,"given":"Olga","family":"Husson","sequence":"additional","affiliation":[{"name":"Department of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, 1066 CX Amsterdam, The Netherlands"},{"name":"Department of Medical Oncology, Netherlands Cancer Institute\u2014Antoni van Leeuwenhoek, 1066 CX Amsterdam, The Netherlands"},{"name":"Department of Surgical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Center, 3015 GD Rotterdam, The Netherlands"},{"name":"Division of Clinical Studies, Institute of Cancer Research, London SM2 5NG, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emiel J.","family":"Krahmer","sequence":"additional","affiliation":[{"name":"Tilburg Center for Cognition and Communication (TiCC), Department of Communication and Cognition, Tilburg University, 5037 AB Tilburg, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0980-6652","authenticated-orcid":false,"given":"Rhod\u00e9","family":"Bijlsma","sequence":"additional","affiliation":[{"name":"Department of Medical Oncology, University Medical Center, 3584 CX Utrecht, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Suzanne E. J.","family":"Kaal","sequence":"additional","affiliation":[{"name":"Department of Medical Oncology, Radboud University Medical Center, 6525 GA Nijmegen, The Netherlands"},{"name":"Dutch AYA \u2018Young and Cancer\u2019 Care Network Utrecht, 3511 DT Utrecht, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sophia H. E.","family":"Sleeman","sequence":"additional","affiliation":[{"name":"Dutch AYA \u2018Young and Cancer\u2019 Care Network Utrecht, 3511 DT Utrecht, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lonneke V.","family":"van de Poll-Franse","sequence":"additional","affiliation":[{"name":"Research and Development, Netherlands Comprehensive Cancer Organisation, 3511 DT Utrecht, The Netherlands"},{"name":"Department of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, 1066 CX Amsterdam, The Netherlands"},{"name":"Center of Research on Psychology in Somatic Diseases, Department of Medical and Clinical Psychology, Tilburg University, 5037 AB Tilburg, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7549-3338","authenticated-orcid":false,"given":"Winette T. A.","family":"van der Graaf","sequence":"additional","affiliation":[{"name":"Department of Medical Oncology, Netherlands Cancer Institute\u2014Antoni van Leeuwenhoek, 1066 CX Amsterdam, The Netherlands"},{"name":"Department of Medical Oncology, Erasmus Cancer Institute, Erasmus Medical Center, 3015 GD Rotterdam, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nadine","family":"Bol","sequence":"additional","affiliation":[{"name":"Tilburg Center for Cognition and Communication (TiCC), Department of Communication and Cognition, Tilburg University, 5037 AB Tilburg, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mies C.","family":"van Eenbergen","sequence":"additional","affiliation":[{"name":"Research and Development, Netherlands Comprehensive Cancer Organisation, 3511 DT Utrecht, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2021,12,16]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"790","DOI":"10.1080\/10810730.2015.1018590","article-title":"Is Online Health Activity Alive and Well or Flatlining? Findings From 10 Years of the Health Information National Trends Survey","volume":"20","author":"Prestin","year":"2015","journal-title":"J. Health Commun."},{"key":"ref_2","doi-asserted-by":"crossref","first-page":"408","DOI":"10.1002\/cncr.32524","article-title":"Changes in internet use and wishes of cancer survivors: A comparison between 2005 and 2017","volume":"126","author":"Vromans","year":"2020","journal-title":"Cancer"},{"key":"ref_3","doi-asserted-by":"crossref","first-page":"1189","DOI":"10.1007\/s00520-008-0419-z","article-title":"Internet use by cancer survivors: Current use and future wishes","volume":"16","year":"2008","journal-title":"Support. Care Cancer"},{"key":"ref_4","doi-asserted-by":"crossref","first-page":"S63","DOI":"10.1016\/j.pec.2010.09.004","article-title":"Internet use leads cancer patients to be active health care consumers","volume":"81","author":"Lee","year":"2010","journal-title":"Patient Educ. Couns."},{"key":"ref_5","doi-asserted-by":"crossref","first-page":"e10875","DOI":"10.2196\/10875","article-title":"Electronic Systems for Patients to Report and Manage Side Effects of Cancer Treatment: Systematic Review","volume":"21","author":"Warrington","year":"2019","journal-title":"J. Med. Internet Res."},{"key":"ref_6","doi-asserted-by":"crossref","first-page":"2289","DOI":"10.1002\/cncr.26056","article-title":"Psychological, social, and behavioral issues for young adults with cancer","volume":"117","author":"Zebrack","year":"2011","journal-title":"Cancer"},{"key":"ref_7","doi-asserted-by":"crossref","first-page":"1221","DOI":"10.1200\/JCO.2011.39.5467","article-title":"Psychosocial care of adolescent and young adult patients with cancer and survivors","volume":"30","author":"Zebrack","year":"2012","journal-title":"J. Clin. Oncol."},{"key":"ref_8","doi-asserted-by":"crossref","first-page":"87","DOI":"10.1007\/s11764-020-00913-8","article-title":"Persistent digital divide in health-related internet use among cancer survivors: Findings from the Health Information National Trends Survey, 2003\u20132018","volume":"15","author":"Fareed","year":"2021","journal-title":"J. Cancer Surviv."},{"key":"ref_9","unstructured":"Statistiek, C.B.V.D. (2021, November 02). Access to Internet and Internet Activities. Available online: https:\/\/opendata.cbs.nl\/#\/CBS\/nl\/dataset\/84888NED\/table."},{"key":"ref_10","doi-asserted-by":"crossref","first-page":"2188","DOI":"10.1016\/j.ejca.2011.04.034","article-title":"The Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship registry: Scope, rationale and design of an infrastructure for the study of physical and psychosocial outcomes in cancer survivorship cohorts","volume":"47","author":"Horevoorts","year":"2011","journal-title":"Eur. J. Cancer"},{"key":"ref_11","doi-asserted-by":"crossref","first-page":"356","DOI":"10.3322\/canjclin.53.6.356","article-title":"The impact of the Internet on cancer outcomes","volume":"53","author":"Eysenbach","year":"2003","journal-title":"CA Cancer J. Clin."},{"key":"ref_12","unstructured":"Frits, A., Percy, C., Jack, A., Shanmugarathan, S., Sobin, L., Parkin, D.M., and Whelan, S. (2000). International Classification of Diseases for Oncology: ICD-O, World Health Organisation. [3rd ed.]."},{"key":"ref_13","doi-asserted-by":"crossref","first-page":"331","DOI":"10.1080\/10410236.2011.585451","article-title":"Inquiring minds acquiring wellness: Uses of online and offline sources for health information","volume":"27","author":"Dobransky","year":"2012","journal-title":"Health Commun."},{"key":"ref_14","doi-asserted-by":"crossref","first-page":"1011","DOI":"10.1016\/j.jgo.2020.02.011","article-title":"Age differences in patterns and confidence of using internet and social media for cancer-care among cancer survivors","volume":"11","author":"Eng","year":"2020","journal-title":"J. Geriatr. Oncol."},{"key":"ref_15","doi-asserted-by":"crossref","first-page":"137","DOI":"10.1007\/s11764-007-0015-0","article-title":"Health and supportive care needs of young adult cancer patients and survivors","volume":"1","author":"Zebrack","year":"2007","journal-title":"J. Cancer Surviv."},{"key":"ref_16","doi-asserted-by":"crossref","first-page":"367","DOI":"10.1089\/jayao.2016.0059","article-title":"Adolescent and Young Adult Cancer Survivors\u2019 Perspectives on Their Internet Use for Seeking Information on Healthy Eating and Exercise","volume":"6","author":"Mooney","year":"2017","journal-title":"J. Adolesc. Young Adult Oncol."},{"key":"ref_17","doi-asserted-by":"crossref","first-page":"e280","DOI":"10.1200\/JOP.19.00450","article-title":"Evaluation of Adolescents\u2019 and Young Adults\u2019 Attitudes Toward Participation in Cancer Clinical Trials","volume":"16","author":"Lewin","year":"2020","journal-title":"JCO Oncol. Pract."},{"key":"ref_18","doi-asserted-by":"crossref","first-page":"24","DOI":"10.1016\/j.pec.2005.10.006","article-title":"Patients using the Internet to obtain health information: How this affects the patient-health professional relationship","volume":"63","author":"McMullan","year":"2006","journal-title":"Patient Educ. Couns."},{"key":"ref_19","doi-asserted-by":"crossref","unstructured":"Ector, G.I., Verweij, L., Hermens, R.P., and Blijlevens, N.M. (2021). Filling the gaps of patient information needs and information perception in chronic myeloid leukemia with the patient-physician co-produced web-based platform CMyLife. Patient Educ. Couns.","DOI":"10.1016\/j.pec.2021.06.025"},{"key":"ref_20","doi-asserted-by":"crossref","unstructured":"S\u00f8rensen, K., Van den Broucke, S., Fullam, J., Doyle, G., Pelikan, J., Slonska, Z., and Brand, H. (2012). Health literacy and public health: A systematic review and integration of definitions and models. BMC Public Health, 12.","DOI":"10.1186\/1471-2458-12-80"},{"key":"ref_21","doi-asserted-by":"crossref","first-page":"788","DOI":"10.1002\/cncr.31844","article-title":"Patients\u2019 information coping styles influence the benefit of a survivorship care plan in the ROGY Care Trial: New insights for tailored delivery","volume":"125","author":"Ezendam","year":"2019","journal-title":"Cancer"},{"key":"ref_22","doi-asserted-by":"crossref","first-page":"167","DOI":"10.1002\/1097-0142(19950715)76:2<167::AID-CNCR2820760203>3.0.CO;2-K","article-title":"Monitoring versus blunting styles of coping with cancer influence the information patients want and need about their disease. Implications for cancer screening and management","volume":"76","author":"Miller","year":"1995","journal-title":"Cancer"}],"container-title":["Cancers"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.mdpi.com\/2072-6694\/13\/24\/6308\/pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,11]],"date-time":"2025-10-11T07:49:15Z","timestamp":1760168955000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.mdpi.com\/2072-6694\/13\/24\/6308"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,12,16]]},"references-count":22,"journal-issue":{"issue":"24","published-online":{"date-parts":[[2021,12]]}},"alternative-id":["cancers13246308"],"URL":"https:\/\/doi.org\/10.3390\/cancers13246308","relation":{},"ISSN":["2072-6694"],"issn-type":[{"value":"2072-6694","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,12,16]]}}}