{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,2]],"date-time":"2026-10-02T01:36:38Z","timestamp":1790904998536,"version":"4.1.0"},"reference-count":97,"publisher":"MDPI AG","issue":"17","license":[{"start":{"date-parts":[[2024,9,4]],"date-time":"2024-09-04T00:00:00Z","timestamp":1725408000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"National Cancer Institute","award":["P01 CA233432"],"award-info":[{"award-number":["P01 CA233432"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Cancers"],"abstract":"<jats:p>Purpose: Conceptual models provide frameworks to illustrate relationships among patient-, provider-, system-, and community-level factors that inform care delivery and research. Existing models of cancer survivorship care focus largely on pediatric or adult populations whose needs differ from adolescents and young adults (AYAs). We developed a patient-centered conceptual model of AYA survivorship care. Methods: We conducted a narrative literature review of current conceptual and theoretical models of care. We engaged AYA cancer survivors (n = 25) in semi-structured one-hour telephone interviews. Most participants were in their 20s and 30s, and the majority (84%) were women. Recruitment was stratified by age and time since cancer diagnosis. We conducted a thematic analysis of interview transcripts to identify themes that exemplified patient-centered care. Results: Most participants identified as white and female. Leukemia and breast cancer were the most common cancer types. Main themes included the need for (1) care coordination, (2) ongoing mental health support, (3) connection to AYA peer support, (4) support during fertility preservation efforts, (5) support with financial burden, (6) support for quality of life, (7) information about and support with side effects and late effects, and (8) attention to the unique needs of young adults. Conclusions: We present a patient-centered conceptual model of AYA survivorship care needs that can inform future cancer care delivery and research.<\/jats:p>","DOI":"10.3390\/cancers16173073","type":"journal-article","created":{"date-parts":[[2024,9,4]],"date-time":"2024-09-04T04:28:28Z","timestamp":1725424108000},"page":"3073","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":13,"title":["A Patient-Centered Conceptual Model of AYA Cancer Survivorship Care Informed by a Qualitative Interview Study"],"prefix":"10.3390","volume":"16","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1425-3968","authenticated-orcid":false,"given":"Marlaine S.","family":"Figueroa Gray","sequence":"first","affiliation":[{"name":"Kaiser Permanente Washington Health Research Institute, 1730 Minor Avenue Suite 1600, Seattle, WA 98101, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lily","family":"Shapiro","sequence":"additional","affiliation":[{"name":"Kaiser Permanente Washington Health Research Institute, 1730 Minor Avenue Suite 1600, Seattle, WA 98101, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7044-7348","authenticated-orcid":false,"given":"Caitlin N.","family":"Dorsey","sequence":"additional","affiliation":[{"name":"Kaiser Permanente Washington Health Research Institute, 1730 Minor Avenue Suite 1600, Seattle, WA 98101, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7965-0369","authenticated-orcid":false,"given":"Sarah","family":"Randall","sequence":"additional","affiliation":[{"name":"Kaiser Permanente Washington Health Research Institute, 1730 Minor Avenue Suite 1600, Seattle, WA 98101, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mallory","family":"Casperson","sequence":"additional","affiliation":[{"name":"Cactus Cancer Society, 2323 Broadway, Oakland, CA 94612, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Neetu","family":"Chawla","sequence":"additional","affiliation":[{"name":"Veterans Affairs Greater Los Angeles Healthcare System, Center for the Study of Healthcare Innovation, Implementation & Policy, 16111 Plummer Street (152), North Hills, CA 91343, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7026-1984","authenticated-orcid":false,"given":"Brad","family":"Zebrack","sequence":"additional","affiliation":[{"name":"School of Social Work, University of Michigan, 1080 S. University, Ann Arbor, MI 48109, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monica M.","family":"Fujii","sequence":"additional","affiliation":[{"name":"Kaiser Permanente Washington Health Research Institute, 1730 Minor Avenue Suite 1600, Seattle, WA 98101, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Erin E.","family":"Hahn","sequence":"additional","affiliation":[{"name":"Department of Research and Evaluation, Kaiser Permanente Southern California, 100 S. Los Robles Avenue, Pasadena, CA 91101, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Theresa H. M.","family":"Keegan","sequence":"additional","affiliation":[{"name":"Division of Hematology and Oncology, University of California Davis Comprehensive Cancer Center, 4501 X Street Suite 3016, Sacramento, CA 95817, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne C.","family":"Kirchhoff","sequence":"additional","affiliation":[{"name":"Huntsman Cancer Institute, University of Utah, 2000 Circle of Hope, Office 4715, Salt Lake City, UT 84112, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lawrence H.","family":"Kushi","sequence":"additional","affiliation":[{"name":"Division of Research, Kaiser Permanente Northern California, 2000 Broadway, Oakland, CA 94612, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hazel B.","family":"Nichols","sequence":"additional","affiliation":[{"name":"Gillings School of Global Public Health, University of North Carolina, 2104F Mcgavran-Greenberg Hall CB #7435, Chapel Hill, NC 27599, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karen J.","family":"Wernli","sequence":"additional","affiliation":[{"name":"Kaiser Permanente Washington Health Research Institute, 1730 Minor Avenue Suite 1600, Seattle, WA 98101, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6869-8634","authenticated-orcid":false,"given":"Candice A. M.","family":"Sauder","sequence":"additional","affiliation":[{"name":"Division of Surgical Oncology, Department of Surgery, University of California Davis Comprehensive Cancer Center, 4501 X Street Suite 3010, Sacramento, CA 95817, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jessica","family":"Chubak","sequence":"additional","affiliation":[{"name":"Kaiser Permanente Washington Health Research Institute, 1730 Minor Avenue Suite 1600, Seattle, WA 98101, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2024,9,4]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"djz089","DOI":"10.1093\/jnci\/djz089","article-title":"Developing a Quality of Cancer Survi-vorship Care Framework: Implications for Clinical Care, Research, and Policy","volume":"111","author":"Nekhlyudov","year":"2019","journal-title":"J. Natl. Cancer Inst."},{"key":"ref_2","doi-asserted-by":"crossref","first-page":"1","DOI":"10.2307\/2137284","article-title":"Revisiting the Behavioral Model and Access to Medical Care: Does it Matter?","volume":"36","author":"Andersen","year":"1995","journal-title":"J. Health Soc. Behav."},{"key":"ref_3","unstructured":"Moore, A.R. (2021). Qualitative Study of Factors Contributing to Fertility Service Use Among Cancer Survivors of Reproductive Age in the US. [Ph.D. Thesis, Georgia Southern University]. Volume 2353."},{"key":"ref_4","doi-asserted-by":"crossref","first-page":"1383","DOI":"10.1002\/pon.5695","article-title":"A Conceptual Model of Fertility Concerns Among Adolescents and Young Adults with Cancer","volume":"30","author":"Canzona","year":"2021","journal-title":"Psycho-Oncology"},{"key":"ref_5","doi-asserted-by":"crossref","first-page":"3712","DOI":"10.1200\/JCO.2012.41.7915","article-title":"Sexuality in Adult Cancer Survivors: Challenges and Intervention","volume":"30","author":"Bober","year":"2012","journal-title":"J. Clin. Oncol."},{"key":"ref_6","doi-asserted-by":"crossref","first-page":"597","DOI":"10.1002\/pon.5843","article-title":"Stakeholder-Informed Conceptual Framework for Financial Burden Among Adolescents and Young Adults with Cancer","volume":"31","author":"Danhauer","year":"2021","journal-title":"Psycho-Oncology"},{"key":"ref_7","doi-asserted-by":"crossref","first-page":"263","DOI":"10.1207\/S15324796ABM2304_5","article-title":"Framework PEACE: An organizational model for examining physical exercise across the cancer experience","volume":"23","author":"Courneya","year":"2001","journal-title":"Ann. Behav. Med."},{"key":"ref_8","doi-asserted-by":"crossref","first-page":"167","DOI":"10.3233\/JVR-150733","article-title":"Career Development of Young Adult Cancer Survivors: A Conceptual Framework","volume":"42","author":"Strauser","year":"2015","journal-title":"J. Vocat. Rehabil."},{"key":"ref_9","doi-asserted-by":"crossref","first-page":"948","DOI":"10.1002\/pon.5046","article-title":"Conceptual Framework for Living with and Beyond Cancer: A Systematic Review and Narrative Synthesis","volume":"28","author":"Archer","year":"2019","journal-title":"Psycho-Oncology"},{"key":"ref_10","doi-asserted-by":"crossref","first-page":"E195","DOI":"10.1188\/16.ONF.E195-E2014","article-title":"The Experiences of Young Adults with Hodgkin Lymphoma Transitioning to Survivorship: A Grounded Theory Study","volume":"43","author":"Matheson","year":"2016","journal-title":"Oncol. Nurs. Forum"},{"key":"ref_11","doi-asserted-by":"crossref","first-page":"289","DOI":"10.1177\/1043454204267922","article-title":"The Adolescent Resilience Model as a Guide to Interventions","volume":"21","author":"Haase","year":"2004","journal-title":"J. Pediatr. Oncol. Nurs."},{"key":"ref_12","doi-asserted-by":"crossref","first-page":"629","DOI":"10.1093\/tbm\/ibx061","article-title":"A Conceptual Model of Social Networks and Mechanisms of Cancer Mortality, and Potential Strategies to Improve Survival","volume":"8","author":"Kroenke","year":"2018","journal-title":"Transl. Behav. Med."},{"key":"ref_13","doi-asserted-by":"crossref","first-page":"449","DOI":"10.1007\/s10880-019-09610-w","article-title":"Theoretical Rationale and Case Illustration of Mindfulness-Based Cognitive Therapy for Fear of Cancer Recurrence","volume":"26","author":"Luberto","year":"2019","journal-title":"J. Clin. Psychol. Med. Settings"},{"key":"ref_14","doi-asserted-by":"crossref","first-page":"1029","DOI":"10.1002\/cncr.29866","article-title":"Social Well-Being Among Adolescents and Young Adults with Cancer: A Systematic Review","volume":"122","author":"Warner","year":"2016","journal-title":"Cancer"},{"key":"ref_15","unstructured":"Clinical Oncology Society of Australia Model of Survivorship Care Working Group (2016). Model of Survivorship Care: Critical Components of Cancer Survivorship Care in Australia Position Statement, Clinical Oncology Society of Australia Model of Survivorship Care Working Group."},{"key":"ref_16","doi-asserted-by":"crossref","first-page":"832","DOI":"10.1016\/j.ijnurstu.2012.09.011","article-title":"Developing a Conceptual Model of Teenage and Young Adult Experiences of Cancer through Meta-Synthesis","volume":"50","author":"Taylor","year":"2013","journal-title":"Int. J. Nurs. Stud."},{"key":"ref_17","doi-asserted-by":"crossref","first-page":"E27","DOI":"10.1097\/NCC.0b013e318288d3ce","article-title":"The Art of Age-Appropriate Care: Reflecting on a Conceptual Model of the Cancer Experience for Teenagers and Young Adults","volume":"36","author":"Fern","year":"2013","journal-title":"Cancer Nurs."},{"key":"ref_18","doi-asserted-by":"crossref","first-page":"45","DOI":"10.1089\/jayao.2016.0018","article-title":"Against a Singular Message of Distinctness: Challenging Dominant Representations of Adolescents and Young Adults in Oncology","volume":"6","author":"Hammond","year":"2017","journal-title":"J. Adolesc. Young-Adult Oncol."},{"key":"ref_19","doi-asserted-by":"crossref","first-page":"589","DOI":"10.1080\/2159676X.2019.1628806","article-title":"Reflecting on reflexive thematic analysis","volume":"11","author":"Braun","year":"2019","journal-title":"Qual. Res. Sport Exerc. Health"},{"key":"ref_20","doi-asserted-by":"crossref","first-page":"1391","DOI":"10.1007\/s11135-021-01182-y","article-title":"A worked example of Braun and Clarke\u2019s approach to reflexive thematic analysis","volume":"56","author":"Byrne","year":"2021","journal-title":"Qual. Quant."},{"key":"ref_21","doi-asserted-by":"crossref","first-page":"90","DOI":"10.1007\/S40037-019-0509-2","article-title":"How phenomenology can help us learn from the experiences of others","volume":"8","author":"Neubauer","year":"2019","journal-title":"Perspect. Med. Educ."},{"key":"ref_22","doi-asserted-by":"crossref","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","article-title":"Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups","volume":"19","author":"Tong","year":"2007","journal-title":"Int. J. Qual. Health Care"},{"key":"ref_23","unstructured":"Cactus Cancer Society (2022, May 11). About Us. Available online: https:\/\/cactuscancer.org\/about\/."},{"key":"ref_24","doi-asserted-by":"crossref","first-page":"533","DOI":"10.1007\/s10488-013-0528-y","article-title":"Purposeful sampling for qualitative data collection and analysis in mixed method implementation research","volume":"42","author":"Palinkas","year":"2015","journal-title":"Adm. Policy Ment. Health Ment. Health Serv. Res."},{"key":"ref_25","unstructured":"Institute, N.C. (2024, August 23). Adolescents and Young Adults with Cancer, Available online: https:\/\/www.cancer.gov\/types\/aya."},{"key":"ref_26","unstructured":"Black & White Cancer Survivors Foundation (2022, May 11). BWCSF. Available online: https:\/\/www.blackandwhitecancersurvivorsfoundation.com\/."},{"key":"ref_27","unstructured":"Teen Cancer America (2022, May 11). Teen Cancer America. Available online: https:\/\/teencanceramerica.org\/."},{"key":"ref_28","unstructured":"Young Adult Survivors United (2022, May 11). Young Adult Survivors United. Available online: https:\/\/www.yasurvivors.org\/."},{"key":"ref_29","unstructured":"Testicular Cancer Foundation (2022, May 11). TCF. Available online: https:\/\/www.testicularcancer.org\/."},{"key":"ref_30","unstructured":"Sisters Network Inc (2022, May 11). A National African American Breast Cancer Survivorship Organization. Available online: https:\/\/www.sistersnetworkinc.org\/."},{"key":"ref_31","unstructured":"Imerman Angels (2022, May 11). Imerman Angels Your One-on-One Cancer Support Community. Available online: https:\/\/imermanangels.org\/."},{"key":"ref_32","doi-asserted-by":"crossref","unstructured":"Creswell, J.W., Klassen, A.C., Clark, V.L.P., Smith, K.C., and The Office of Behavioral and Social Sciences Research (2011). Best Practices for Mixed Methods Research in Health Sciences.","DOI":"10.1037\/e566732013-001"},{"key":"ref_33","unstructured":"Creswell, J.W., and Poth, C.N. (2018). Qualitative Inquiry & Research Design: Choosing among Five Approaches, SAGE."},{"key":"ref_34","doi-asserted-by":"crossref","first-page":"536","DOI":"10.1007\/s11199-009-9610-z","article-title":"When, where, why and with whom homeless women engage in risky sexual behaviors: A framework for understanding complex and varied decision-making processes","volume":"61","author":"Ryan","year":"2009","journal-title":"Sex Roles"},{"key":"ref_35","doi-asserted-by":"crossref","first-page":"513","DOI":"10.1037\/0003-066X.32.7.513","article-title":"Toward an Experimental Ecology of Human Development","volume":"32","author":"Bronfenbrenner","year":"1977","journal-title":"Am. Psychol."},{"key":"ref_36","unstructured":"Spradley, J.P. (1979). Asking Descriptive Questions, in The Ethnographic Interview, Wadsworth Group."},{"key":"ref_37","doi-asserted-by":"crossref","first-page":"665","DOI":"10.1017\/S1049096502001129","article-title":"Asking Questions: Techniques for Semistructured Interviews","volume":"35","author":"Leech","year":"2002","journal-title":"PS Polit. Sci. Polit."},{"key":"ref_38","doi-asserted-by":"crossref","first-page":"1893","DOI":"10.1007\/s11135-017-0574-8","article-title":"Saturation in qualitative research: Exploring its conceptualization and operationalization","volume":"52","author":"Saunders","year":"2018","journal-title":"Qual. Quant."},{"key":"ref_39","doi-asserted-by":"crossref","first-page":"75","DOI":"10.1007\/BF02766777","article-title":"ERIC\/ECTJ Annual Review Paper: Criteria for Assessing the Trustworthiness of Naturalistic Inquiries","volume":"29","author":"Guba","year":"1981","journal-title":"Educ. Commun. Technol."},{"key":"ref_40","doi-asserted-by":"crossref","first-page":"214","DOI":"10.5014\/ajot.45.3.214","article-title":"Rigor in qualitative research: The assessment of trustworthiness","volume":"45","author":"Krefting","year":"1991","journal-title":"Am. J. Occup. Ther."},{"key":"ref_41","unstructured":"Crozier, G., Denzin, N., and Lincoln, Y. (2000). Handbook of Qualitative Research, Sage Publications. [2nd ed.]."},{"key":"ref_42","doi-asserted-by":"crossref","first-page":"112516","DOI":"10.1016\/j.psychres.2019.112516","article-title":"Qualitative methods in implementation research: An introduction","volume":"280","author":"Hamilton","year":"2019","journal-title":"Psychiatry Res."},{"key":"ref_43","first-page":"2045","article-title":"Sort and Sift, Think and Shift: Let the Data Be Your Guide an Applied Approach to Working With, Learning From, and Privileging Qualitative Data","volume":"26","author":"Maietta","year":"2021","journal-title":"Qual. Rep."},{"key":"ref_44","unstructured":"Friese, S. (2014). Qualitative Data Analysis with ATLAS.ti, SAGE Publications. [2nd ed.]."},{"key":"ref_45","unstructured":"Salda\u00f1a, J. (2013). The Coding Manual for Qualitative Researchers, SAGE Publications. [2nd ed.]."},{"key":"ref_46","doi-asserted-by":"crossref","first-page":"119","DOI":"10.1007\/s00520-016-3396-7","article-title":"What do adolescents and young adults want from cancer resources? Insights from a Delphi panel of AYA patients","volume":"25","author":"Cheung","year":"2017","journal-title":"Support. Care Cancer"},{"key":"ref_47","doi-asserted-by":"crossref","unstructured":"Avutu, V., Lynch, K.A., Barnett, M.E., Vera, J.A., Glade Bender, J.L., Tap, W.D., and Atkinson, T.M. (2022). Psychosocial Needs and Pref-erences for Care among Adolescent and Young Adult Cancer Patients (Ages 15\u201339): A Qualitative Study. Cancers, 14.","DOI":"10.3390\/cancers14030710"},{"key":"ref_48","doi-asserted-by":"crossref","first-page":"e27991","DOI":"10.1002\/pbc.27991","article-title":"Models of care for adolescent and young adult cancer programs","volume":"66","author":"Osborn","year":"2019","journal-title":"Pediatr. Blood Cancer"},{"key":"ref_49","doi-asserted-by":"crossref","first-page":"6","DOI":"10.1089\/jayao.2016.0012","article-title":"What Are the Unmet Needs and Care Experiences of Adolescents and Young Adults with Cancer? A Systematic Review","volume":"6","author":"Bibby","year":"2017","journal-title":"J. Adolesc. Young-Adult Oncol."},{"key":"ref_50","doi-asserted-by":"crossref","unstructured":"Magni, C., Veneroni, L., Silva, M., Casanova, M., Chiaravalli, S., Massimino, M., Clerici, C.A., and Ferrari, A. (2016). Model of Care for Ado-lescents and Young Adults with Cancer: The Youth Project in Milan. Front. Pediatr., 4.","DOI":"10.3389\/fped.2016.00088"},{"key":"ref_51","doi-asserted-by":"crossref","first-page":"532","DOI":"10.1007\/s12160-017-9876-2","article-title":"Cancer Care Coordination: A Systematic Review and Meta-Analysis of Over 30 Years of Empirical Studies","volume":"51","author":"Gorin","year":"2017","journal-title":"Ann. Behav. Med."},{"key":"ref_52","unstructured":"Smith, S., Mooney, S., Cable, M., and Taylor, R.M. (2016). The Blueprint of Care for Teenagers and Young Adults with Cancer, Teenage Cancer Trust. [2nd ed.]."},{"key":"ref_53","doi-asserted-by":"crossref","first-page":"1038","DOI":"10.1002\/cncr.29834","article-title":"Reimagining care for adolescent and young adult cancer programs: Moving with the times","volume":"122","author":"Gupta","year":"2016","journal-title":"Cancer"},{"key":"ref_54","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1186\/s13010-018-0059-y","article-title":"\u201cViolence\u201d in medicine: Necessary and unnecessary, intentional and unintentional","volume":"13","author":"Shapiro","year":"2018","journal-title":"Philos. Ethics Hum. Ities Med."},{"key":"ref_55","doi-asserted-by":"crossref","first-page":"64","DOI":"10.1097\/NOR.0000000000000828","article-title":"Time to Reflect and Take Action on Health Disparities and Health Inequities","volume":"41","author":"Salmond","year":"2022","journal-title":"Orthop. Nurs."},{"key":"ref_56","first-page":"275","article-title":"Broken down by bias: Healthcare biases experienced by BIPOC and LGBTQ+ patients","volume":"2021","author":"Apodaca","year":"2021","journal-title":"AMIA Annu. Symp. Proc."},{"key":"ref_57","doi-asserted-by":"crossref","unstructured":"Gannon, T., Phillips, B., Saunders, D., and Berner, A.M. (2022). Knowing to Ask and Feeling Safe to Tell-Understanding the Influences of HCP-Patient Interactions in Cancer Care for LGBTQ+ Children and Young People. Front. Oncol., 12.","DOI":"10.3389\/fonc.2022.891874"},{"key":"ref_58","doi-asserted-by":"crossref","first-page":"148","DOI":"10.1089\/jayao.2020.0082","article-title":"Mental Health Outcomes in Adolescent and Young Adult Female Cancer Survivors of a Sexual Minority","volume":"10","author":"Desai","year":"2021","journal-title":"J. Adolesc. Young-Adult Oncol."},{"key":"ref_59","doi-asserted-by":"crossref","unstructured":"Eisape, A., and Nogueira, A. (2022). See Change: Overcoming Anti-Black Racism in Health Systems. Front. Public Health, 10.","DOI":"10.3389\/fpubh.2022.895684"},{"key":"ref_60","unstructured":"William, T. (2015). Disparities in Child and Adolescent Mental Health and Mental Health Services in the US, Grant Foundation."},{"key":"ref_61","doi-asserted-by":"crossref","first-page":"629","DOI":"10.1001\/archpsyc.62.6.629","article-title":"Twelve-Month Use of Mental Health Services in the United States: Results from the National Comorbidity Survey Replication","volume":"62","author":"Wang","year":"2005","journal-title":"Arch. Gen. Psychiatry"},{"key":"ref_62","doi-asserted-by":"crossref","first-page":"159","DOI":"10.1177\/1049909117699600","article-title":"Patient Self-Defined Goals: Essentials of Person-Centered Care for Serious Illness","volume":"35","author":"Schellinger","year":"2018","journal-title":"Am. J. Hosp. Palliat. Med."},{"key":"ref_63","doi-asserted-by":"crossref","first-page":"1353","DOI":"10.1007\/s00520-008-0435-z","article-title":"Information and service needs for young adult cancer patients","volume":"16","author":"Zebrack","year":"2008","journal-title":"Support. Care Cancer"},{"key":"ref_64","doi-asserted-by":"crossref","first-page":"512","DOI":"10.1089\/jayao.2017.0012","article-title":"Adolescent and Young Adult Patients with Cancer: Perceptions of Care","volume":"6","author":"LaRosa","year":"2017","journal-title":"J. Adolesc. Young-Adult Oncol."},{"key":"ref_65","doi-asserted-by":"crossref","first-page":"166","DOI":"10.3322\/caac.21556","article-title":"Minimizing the burden of cancer in the United States: Goals for a high-performing health care system","volume":"69","author":"Yabroff","year":"2019","journal-title":"CA A Cancer J. Clin."},{"key":"ref_66","doi-asserted-by":"crossref","first-page":"1409","DOI":"10.6004\/jnccn.2014.0138","article-title":"Creating an Adolescent and Young Adult Cancer Program: Lessons Learned from Pediatric and Adult Oncology Practice Bases","volume":"12","author":"Reed","year":"2014","journal-title":"J. Natl. Compr. Cancer Netw."},{"key":"ref_67","doi-asserted-by":"crossref","first-page":"4850","DOI":"10.1200\/JCO.2009.23.8097","article-title":"Starting an Ad-olescent and Young Adult Program: Some Success Stories and Some Obstacles to Overcome","volume":"28","author":"Ferrari","year":"2010","journal-title":"J. Clin. Oncol."},{"key":"ref_68","doi-asserted-by":"crossref","first-page":"1267","DOI":"10.1002\/pon.3533","article-title":"Psychological distress and unsatisfied need for psychosocial support in adolescent and young adult cancer patients during the first year fol-lowing diagnosis","volume":"23","author":"Zebrack","year":"2014","journal-title":"Psychooncology"},{"key":"ref_69","doi-asserted-by":"crossref","first-page":"4884","DOI":"10.1002\/cncr.27445","article-title":"Health status of adolescent and young adult cancer survivors","volume":"118","author":"Tai","year":"2012","journal-title":"Cancer"},{"key":"ref_70","doi-asserted-by":"crossref","first-page":"260","DOI":"10.1080\/07347332.2011.644396","article-title":"\u201cYou\u2019re too young for this\u201d: Adolescent and young adults\u2019 perspectives on cancer survivorship","volume":"30","author":"Kent","year":"2012","journal-title":"J. Psychosoc. Oncol."},{"key":"ref_71","doi-asserted-by":"crossref","first-page":"41","DOI":"10.1017\/S147895150707006X","article-title":"From \u201cinvincibility\u201d to \u201cnormalcy\u201d: Coping strategies of young adults during the cancer journey","volume":"5","author":"Miedema","year":"2007","journal-title":"Palliat. Support Care"},{"key":"ref_72","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1080\/07347332.2013.855959","article-title":"\u201cCancer sucks,\u201d and other ponderings by adolescent and young adult cancer survivors","volume":"32","author":"Zebrack","year":"2014","journal-title":"J. Psychosoc. Oncol."},{"key":"ref_73","doi-asserted-by":"crossref","first-page":"242","DOI":"10.1007\/s13187-017-1294-4","article-title":"Age-Specific Patient Navigation Preferences Among Adolescents and Young Adults with Cancer","volume":"34","author":"Pannier","year":"2019","journal-title":"J. Cancer Educ."},{"key":"ref_74","doi-asserted-by":"crossref","first-page":"2289","DOI":"10.1002\/cncr.26056","article-title":"Psychological, social, and behavioral issues for young adults with cancer","volume":"117","author":"Zebrack","year":"2011","journal-title":"Cancer"},{"key":"ref_75","doi-asserted-by":"crossref","first-page":"201","DOI":"10.1002\/cncr.27713","article-title":"Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients","volume":"119","author":"Zebrack","year":"2013","journal-title":"Cancer"},{"key":"ref_76","doi-asserted-by":"crossref","first-page":"585","DOI":"10.1080\/07347332.2013.835018","article-title":"Psychosocial challenges and resource needs of young adult cancer survivors: Implications for program development","volume":"31","author":"Edelstein","year":"2013","journal-title":"J. Psychosoc. Oncol."},{"key":"ref_77","doi-asserted-by":"crossref","first-page":"1163","DOI":"10.3390\/curroncol29020099","article-title":"Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey","volume":"29","author":"Bender","year":"2022","journal-title":"Curr. Oncol."},{"key":"ref_78","doi-asserted-by":"crossref","first-page":"2915","DOI":"10.1002\/cncr.22338","article-title":"Assessing the health care needs of adolescent and young adult cancer patients and survivors","volume":"107","author":"Zebrack","year":"2006","journal-title":"Cancer"},{"key":"ref_79","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1016\/j.pedn.2022.01.019","article-title":"Unmet needs in adolescents and young adults with cancer: A mixed-method study using social media","volume":"64","author":"Choi","year":"2022","journal-title":"J. Pediatr. Nurs."},{"key":"ref_80","doi-asserted-by":"crossref","first-page":"2209","DOI":"10.1007\/s00520-017-4006-z","article-title":"Fertility information needs and concerns post-treatment contribute to lowered quality of life among young adult female cancer survivors","volume":"26","author":"Benedict","year":"2018","journal-title":"Support. Care Cancer"},{"key":"ref_81","doi-asserted-by":"crossref","first-page":"48","DOI":"10.1089\/jayao.2015.0024","article-title":"Fertility issues in adolescent and young adult cancer survivors","volume":"5","author":"Benedict","year":"2016","journal-title":"J. Adolesc. Young-Adult Oncol."},{"key":"ref_82","doi-asserted-by":"crossref","first-page":"1024","DOI":"10.1377\/hlthaff.2013.1425","article-title":"Estimating the health and economic burden of cancer among those diagnosed as adolescents and young adults","volume":"33","author":"Guy","year":"2014","journal-title":"Health Aff."},{"key":"ref_83","doi-asserted-by":"crossref","first-page":"997","DOI":"10.1093\/jnci\/djab013","article-title":"Medical Financial Hardship in Survivors of Adolescent and Young Adult Cancer in the United States","volume":"113","author":"Lu","year":"2021","journal-title":"JNCI J. Natl. Cancer Inst."},{"key":"ref_84","unstructured":"Centers for Medicare & Medicaid Services (2022, May 11). Young Adults and the Affordable Care Act: Protecting Young Adults and Eliminating Burdens on Families and Businesses. Programs and Initiatives, Available online: https:\/\/www.cms.gov\/CCIIO\/Resources\/Files\/adult_child_fact_sheet."},{"key":"ref_85","doi-asserted-by":"crossref","first-page":"2061","DOI":"10.1001\/jama.284.16.2061","article-title":"Unmet Health Needs of Uninsured Adults in the United States","volume":"284","author":"Ayanian","year":"2000","journal-title":"JAMA"},{"key":"ref_86","doi-asserted-by":"crossref","first-page":"863","DOI":"10.1002\/cam4.657","article-title":"The cost of cancer: A retrospective analysis of the financial impact of cancer on young adults","volume":"5","author":"Landwehr","year":"2016","journal-title":"Cancer Med."},{"key":"ref_87","doi-asserted-by":"crossref","first-page":"194","DOI":"10.1097\/PPO.0000000000000265","article-title":"The Affordable Care Act and Cancer Care for Young Adults","volume":"23","author":"Han","year":"2017","journal-title":"Cancer J."},{"key":"ref_88","doi-asserted-by":"crossref","first-page":"19","DOI":"10.2147\/PROM.S51658","article-title":"Quality of life in adolescent and young adult cancer patients: A systematic review of the literature","volume":"6","author":"Quinn","year":"2015","journal-title":"Patient Relat. Outcome Meas."},{"key":"ref_89","doi-asserted-by":"crossref","unstructured":"Magasi, S., Marshall, H.K., Winters, C., and Victorson, D. (2022). Cancer Survivors\u2019 Disability Experiences and Identities: A Qualitative Exploration to Advance Cancer Equity. Int. J. Environ. Res. Public Health, 19.","DOI":"10.3390\/ijerph19053112"},{"key":"ref_90","doi-asserted-by":"crossref","unstructured":"Janssen, S.H.M., van der Graaf, W.T.A., van der Meer, D.J., Manten-Horst, E., and Husson, O. (2021). Adolescent and Young Adult (AYA) Cancer Survivorship Practices: An Overview. Cancers, 13.","DOI":"10.3390\/cancers13194847"},{"key":"ref_91","doi-asserted-by":"crossref","first-page":"315","DOI":"10.1089\/jayao.2017.0104","article-title":"Experiences of Care of Adolescents and Young Adults with Cancer in Australia","volume":"7","author":"White","year":"2018","journal-title":"J. Adolesc. Young-Adult Oncol."},{"key":"ref_92","doi-asserted-by":"crossref","first-page":"65","DOI":"10.1046\/j.1365-2354.2003.00313.x","article-title":"Young people with cancer\u2014How should their care be organized?","volume":"12","author":"Wilkinson","year":"2003","journal-title":"Eur. J. Cancer Care"},{"key":"ref_93","doi-asserted-by":"crossref","first-page":"4616","DOI":"10.1200\/JCO.2006.08.4103","article-title":"Site of Oncologic Specialty Care for Older Adolescents in Utah","volume":"25","author":"Albritton","year":"2007","journal-title":"J. Clin. Oncol."},{"key":"ref_94","doi-asserted-by":"crossref","first-page":"283","DOI":"10.1089\/jayao.2017.0123","article-title":"The Experience of Adolescents and Young Adults Treated for Cancer in an Adult Setting: A Review of the Literature","volume":"7","author":"Marshall","year":"2018","journal-title":"J. Adolesc. Young-Adult Oncol."},{"key":"ref_95","doi-asserted-by":"crossref","first-page":"621","DOI":"10.1001\/jama.2021.13304","article-title":"Updated Guidance on the Reporting of Race and Ethnicity in Medical and Science Journals","volume":"326","author":"Flanagin","year":"2021","journal-title":"JAMA"},{"key":"ref_96","doi-asserted-by":"crossref","first-page":"e2148540","DOI":"10.1001\/jamanetworkopen.2021.48540","article-title":"Laying the Foundation for a New and Inclusive Science","volume":"5","author":"Linas","year":"2022","journal-title":"JAMA Netw. Open"},{"key":"ref_97","doi-asserted-by":"crossref","first-page":"e2148325","DOI":"10.1001\/jamanetworkopen.2021.48325","article-title":"Comparison of Racial, Ethnic, and Geographic Location Diversity of Participants Enrolled in Clinic-Based vs 2 Remote COVID-19 Clinical Trials","volume":"5","author":"Stewart","year":"2022","journal-title":"JAMA Netw. 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