{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,10]],"date-time":"2026-07-10T16:10:47Z","timestamp":1783699847239,"version":"3.55.0"},"reference-count":28,"publisher":"MDPI AG","issue":"5","license":[{"start":{"date-parts":[[2022,4,29]],"date-time":"2022-04-29T00:00:00Z","timestamp":1651190400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Children"],"abstract":"<jats:p>Siblings of children with palliative care needs often suffer feelings of being neglected, and their needs for information and involvement are frequently unmet. This study aims to explore the experiences and feelings of siblings of children with palliative care needs, and to determine what is important to them. Nine siblings, aged 6\u201314 years, were interviewed using four different communication tools: See-Hear-Do pictures, including the empty body as a separate element, Bear cards, and words originating from previous sibling research. Data were analyzed using conventional content analysis. Five categories emerged concerning aspects that the siblings described about their situation and things that they found important: being part of a special family; school\u2014a place for leisure, friends, and learning; relentless feelings of guilt and self-blame; losses and separations; and awareness of death\u2014not if, but when. Siblings of children with rare diseases expressed an awareness that their brother or sister would die, although still felt they were part of a special, happy family. Siblings of children with palliative care needs due to an accident described relentless feelings of self-blame and guilt. The needs of siblings may vary depending on the condition that resulted in the ill sibling\u2019s palliative care needs.<\/jats:p>","DOI":"10.3390\/children9050641","type":"journal-article","created":{"date-parts":[[2022,4,29]],"date-time":"2022-04-29T16:49:57Z","timestamp":1651250997000},"page":"641","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":14,"title":["Using Communication Tools to Explore Young Siblings\u2019 Experiences of Having a Brother or Sister with Pediatric Palliative Care Needs"],"prefix":"10.3390","volume":"9","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8185-781X","authenticated-orcid":false,"given":"Ulrika","family":"Kreicbergs","sequence":"first","affiliation":[{"name":"Department of Caring Sciences, Palliative Research Center, Marie Cederschi\u00f6ld University, P.O. Box 11189, 100 61 Stockholm, Sweden"},{"name":"Department of Women and Children\u2019s Health, Karolinska Institutet, 171 77 Stockholm, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8847-9559","authenticated-orcid":false,"given":"Stefan","family":"Nilsson","sequence":"additional","affiliation":[{"name":"Institute of Health and Care Sciences, University of Gothenburg Centre for Person-Centered Care, Sahlgrenska Academy, P.O. Box 457, 405 30 Gothenburg, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Margaretha","family":"Jenholt Nolbris","sequence":"additional","affiliation":[{"name":"Institute of Health and Care Sciences, University of Gothenburg Centre for Person-Centered Care, Sahlgrenska Academy, P.O. Box 457, 405 30 Gothenburg, Sweden"},{"name":"The Queen Silvia Hospital, Sahlgrenska University Hospital, Child Medicine, 416 50 Gothenburg, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Malin","family":"L\u00f6vgren","sequence":"additional","affiliation":[{"name":"Department of Caring Sciences, Palliative Research Center, Marie Cederschi\u00f6ld University, P.O. Box 11189, 100 61 Stockholm, Sweden"},{"name":"Advanced Pediatric Home Care, Astrid Lindgren Children\u2019s Hospital, Karolinska University Hospital, 171 76 Stockholm, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2022,4,29]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"393","DOI":"10.1111\/cch.12421","article-title":"Siblings of children with life-limiting conditions: Psychological adjustment and sibling relationships","volume":"43","author":"Fullerton","year":"2016","journal-title":"Child Care Health Dev."},{"key":"ref_2","doi-asserted-by":"crossref","first-page":"23","DOI":"10.1016\/j.pedn.2016.11.007","article-title":"School experiences of siblings of children with chronic illness: A systematic literature review","volume":"33","author":"Gan","year":"2017","journal-title":"J. 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