{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,6]],"date-time":"2026-10-06T03:38:23Z","timestamp":1791257903811,"version":"4.1.0"},"reference-count":76,"publisher":"MDPI AG","issue":"2","license":[{"start":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T00:00:00Z","timestamp":1747180800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"National Institute on Disability, Independent Living, and Rehabilitation Research","award":["#90DPBU0001"],"award-info":[{"award-number":["#90DPBU0001"]}]},{"name":"National Institute on Disability, Independent Living, and Rehabilitation Research","award":["#90DPBU0008"],"award-info":[{"award-number":["#90DPBU0008"]}]},{"name":"National Institute on Disability, Independent Living, and Rehabilitation Research","award":["#79136"],"award-info":[{"award-number":["#79136"]}]},{"name":"National Institute on Disability, Independent Living, and Rehabilitation Research","award":["#79138"],"award-info":[{"award-number":["#79138"]}]},{"name":"Shriners Hospitals for Children","award":["#90DPBU0001"],"award-info":[{"award-number":["#90DPBU0001"]}]},{"name":"Shriners Hospitals for Children","award":["#90DPBU0008"],"award-info":[{"award-number":["#90DPBU0008"]}]},{"name":"Shriners Hospitals for Children","award":["#79136"],"award-info":[{"award-number":["#79136"]}]},{"name":"Shriners Hospitals for Children","award":["#79138"],"award-info":[{"award-number":["#79138"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["EBJ"],"abstract":"<jats:p>The Life Impact Burn Recovery Evaluation (LIBRE) Profile was developed to assess long-term social participation outcomes for adult burn survivors. Traditional clinical burn recovery outcomes focus on early physical complications and psychosocial issues, but there is a growing need for quantitative measures of long-term recovery that assess experiences deemed relevant to burn survivors. The LIBRE Profile, co-produced with input from burn survivors and clinicians and grounded in the World Health Organization\u2019s International Classification of Functioning, Disability and Health (WHO-ICF) conceptual framework, addresses the measurement gap by focusing on six domains of social participation: social interactions, social activities, family and friends, work and employment, romantic relationships, and sexual relationships. The LIBRE Profile uses Item Response Theory (IRT) and computer adaptive tests (CAT) to minimize respondent burden while maintaining accuracy. Psychometric evaluations have validated the LIBRE Profile as a reliable and clinically useful tool that can help clinicians and burn survivors monitor recovery and inform personalized care. Future work includes LIBRE Profile development for pediatric populations, further international language translations, and the development of an APP for broader personal and clinical use. This paper provides a comprehensive overview of the LIBRE Profile\u2019s development, psychometric foundations, and future directions, advocating for its adoption in clinical practice and burn survivor communities.<\/jats:p>","DOI":"10.3390\/ebj6020023","type":"journal-article","created":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T08:44:58Z","timestamp":1747212298000},"page":"23","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["The Life Impact Burn Recovery Evaluation (LIBRE) Profile: Historical Overview and Future Directions"],"prefix":"10.3390","volume":"6","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6455-936X","authenticated-orcid":false,"given":"Colleen M.","family":"Ryan","sequence":"first","affiliation":[{"name":"Department of Surgery, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USA"},{"name":"Shriners Children\u2019s Boston, Boston, MA 02114, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jeffrey C.","family":"Schneider","sequence":"additional","affiliation":[{"name":"Department of Physical Medicine and Rehabilitation, Schoen Adams Research Institute, Rehabilitation Outcomes Center (ROC), Spaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA 02129, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1774-2185","authenticated-orcid":false,"given":"Pengsheng","family":"Ni","sequence":"additional","affiliation":[{"name":"Department of Health Law, Policy, and Management, Boston University School of Public Health, Boston, MA 02118, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary D.","family":"Slavin","sequence":"additional","affiliation":[{"name":"Department of Physical Medicine and Rehabilitation, Schoen Adams Research Institute, Rehabilitation Outcomes Center (ROC), Spaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA 02129, USA"},{"name":"Department of Health Law, Policy, and Management, Boston University School of Public Health, Boston, MA 02118, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amy","family":"Acton","sequence":"additional","affiliation":[{"name":"Phoenix Society for Burn Survivors, Kentwood, MI 49508, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ananya","family":"Vasudevan","sequence":"additional","affiliation":[{"name":"Department of Anesthesiology, Tufts Medical Center, Boston, MA 02111, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Allan","family":"Sosa-Ebert","sequence":"additional","affiliation":[{"name":"Elmhurst Hospital Center\u2014Internal Medicine Residency Program, Elmhurst, New York, NY 11373, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lewis E.","family":"Kazis","sequence":"additional","affiliation":[{"name":"Department of Physical Medicine and Rehabilitation, Schoen Adams Research Institute, Rehabilitation Outcomes Center (ROC), Spaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA 02129, USA"},{"name":"Department of Health Law, Policy, and Management, Boston University School of Public Health, Boston, MA 02118, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2025,5,14]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"961","DOI":"10.1097\/01.ta.0000195988.57939.9a","article-title":"Impaired generic health status but perception of good quality of life in survivors of burn injury","volume":"61","author":"Moi","year":"2006","journal-title":"J. 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