{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T04:41:44Z","timestamp":1787028104900,"version":"build-2736575974"},"reference-count":32,"publisher":"MDPI AG","issue":"4","license":[{"start":{"date-parts":[[2022,10,6]],"date-time":"2022-10-06T00:00:00Z","timestamp":1665014400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)","award":["R01 HD097129"],"award-info":[{"award-number":["R01 HD097129"]}]},{"name":"Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)","award":["T71MC30798"],"award-info":[{"award-number":["T71MC30798"]}]},{"name":"National Institutes of Health (NIH)","award":["R01 HD097129"],"award-info":[{"award-number":["R01 HD097129"]}]},{"name":"National Institutes of Health (NIH)","award":["T71MC30798"],"award-info":[{"award-number":["T71MC30798"]}]},{"name":"Maternal and Child Health Bureau","award":["R01 HD097129"],"award-info":[{"award-number":["R01 HD097129"]}]},{"name":"Maternal and Child Health Bureau","award":["T71MC30798"],"award-info":[{"award-number":["T71MC30798"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Endocrines"],"abstract":"<jats:p>Recombinant human growth hormone (rhGH) is prescribed to youth with growth hormone deficiency (GHD) to support normal growth and ensure healthy physical development, and to youth without GHD to address height concerns. Perceptions of youth involvement in rhGH treatment decisions have not been explored. This study aimed to examine perceptions of youth and parent roles in decisions around rhGH treatment. Youth (n = 22, 11.5 \u00b1 2.0 years) who had undergone evaluation for short stature and their parents (n = 22) participated in semi-structured interviews after stimulation test results had been received. Interviews revealed the following themes: (1) parent provided youth with support; (2) parent facilitated youth\u2019s decision-making involvement; (3) youth had no role or did not remember their role; and (4) youth did not remember conversations with their parents or providers. Parents facilitated their children\u2019s involvement by sharing information and seeking their opinions. While some participants described youth as having a substantial decision-making role, not all youth felt they were involved, and some youth could not recall conversations about rhGH. Parents can bolster youth involvement by having conversations using developmentally appropriate language, which is critical to youth feeling empowered and developing efficacy over their own care.<\/jats:p>","DOI":"10.3390\/endocrines3040050","type":"journal-article","created":{"date-parts":[[2022,10,8]],"date-time":"2022-10-08T04:04:56Z","timestamp":1665201896000},"page":"590-600","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Perceptions of Youth and Parent Decision-Making Roles Regarding Recombinant Human Growth Hormone Treatment"],"prefix":"10.3390","volume":"3","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4956-6641","authenticated-orcid":false,"given":"Ettya","family":"Fremont","sequence":"first","affiliation":[{"name":"Division of Adolescent Medicine, Children\u2019s Hospital of Philadelphia, Philadelphia, PA 19104, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth","family":"Friedrich","sequence":"additional","affiliation":[{"name":"Division of Adolescent Medicine, Children\u2019s Hospital of Philadelphia, Philadelphia, PA 19104, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5879-0434","authenticated-orcid":false,"given":"Chris","family":"Feudtner","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA 19104, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Adda","family":"Grimberg","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA 19104, USA"},{"name":"Division of Endocrinology and Diabetes, Children\u2019s Hospital of Philadelphia, Philadelphia, PA 19104, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2425-3427","authenticated-orcid":false,"given":"Victoria","family":"Miller","sequence":"additional","affiliation":[{"name":"Division of Adolescent Medicine, Children\u2019s Hospital of Philadelphia, Philadelphia, PA 19104, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2022,10,6]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"S142","DOI":"10.1542\/peds.2018-0516D","article-title":"Involving youth with a chronic illness in decision-making: Highlighting the role of providers","volume":"142","author":"Miller","year":"2018","journal-title":"Pediatrics"},{"key":"ref_2","doi-asserted-by":"crossref","first-page":"292","DOI":"10.1093\/jpepsy\/jsr097","article-title":"Measuring children\u2019s decision-making involvement regarding chronic illness management","volume":"37","author":"Miller","year":"2012","journal-title":"J. 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