{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,2]],"date-time":"2026-04-02T11:16:51Z","timestamp":1775128611794,"version":"3.50.1"},"reference-count":18,"publisher":"MDPI AG","issue":"7","license":[{"start":{"date-parts":[[2021,3,31]],"date-time":"2021-03-31T00:00:00Z","timestamp":1617148800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"R\u00e9seaux de Sant\u00e9 Buccodentaire et Osseuse (RSBO) and R\u00e9seau Provincial de Recherche en Adaptation-R\u00e9adaptation (REPAR)","award":["n.a."],"award-info":[{"award-number":["n.a."]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["IJERPH"],"abstract":"<jats:p>Background: Acute Lymphoblastic Leukemia (ALL) is the most common pediatric cancer. ALL and its treatment cause altered bone-mineral homeostasis, which can contribute to musculoskeletal late adverse effects (LAEs). With the increasing number of childhood cancer survivors, LAEs are reported often, and are aggravated by inactive lifestyles. A telerehabilitation program is proposed to strengthen the muscle\u2013bone complex and prevent future impairment. Objective: This study aimed to explore and better understand patient and parent experience of a telerehabilitation program after completion of ALL treatment. Methods: ALL survivors (n = 12), 75% girls, 7.9 to 14.7 years old, within six months to five years of treatment, were recruited to participate in the proposed study, along with a parent. The 16-week group program included 40 potential home-based physical activities, with monthly progression, supervised by a kinesiologist, through an online telerehabilitation platform. Patients could be included in the study if they joined during the first month of intervention of their group (minimum 12 weeks of intervention). A semi-structured post-intervention interview was conducted with the patients and their parent during the final assessment, along with a review of the kinesiologist\u2019s clinical notes, to obtain a portrait of the participants\u2019 experience with the telerehabilitation program. Overarching themes were identified by one author and confirmed by two senior authors before extracting the various aspects of each theme. Results: Of the 12 patients recruited, three were excluded from the analysis because they did not complete the minimum 12 weeks of intervention (one = relapse, one = failure to meet technical requirements, and one = abandoned due to parent\u2019s disinterest). The nine patients who completed the program (six girls; 10.93 \u00b1 2.83 years) had a mean adherence of 89%. The overarching themes identified were the program modalities (group approach with patient\u2013parent paired training, supervised by a kinesiologist), the telerehabilitation system, the participants\u2019 perception of the benefits, and recommendations and suggestions from the families. Both patients and parents expressed very high satisfaction with the program and perceived benefits. Conclusion: Participants appreciated the program and reported they would all recommend it to other families in similar situations. The telerehabilitation method of service delivery was perceived by some as decisive in choosing to participate, while the supervision and intra- and inter-family interactions were the motivating factors that were key to program adherence.<\/jats:p>","DOI":"10.3390\/ijerph18073610","type":"journal-article","created":{"date-parts":[[2021,3,31]],"date-time":"2021-03-31T05:57:18Z","timestamp":1617170238000},"page":"3610","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":12,"title":["Patient and Parent Experiences with Group Telerehabilitation for Child Survivors of Acute Lymphoblastic Leukemia"],"prefix":"10.3390","volume":"18","author":[{"given":"Genevieve","family":"Lambert","sequence":"first","affiliation":[{"name":"Department of Experiemental Surgery, McGill University, Montreal, QC H3G 1A4, Canada"},{"name":"CHU Sainte-Justine Research Center, Montreal, QC H3T 1C5, Canada"},{"name":"Shriners Hospital for Children, Montreal, QC H4A 0A9, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nathalie","family":"Alos","sequence":"additional","affiliation":[{"name":"CHU Sainte-Justine Research Center, Montreal, QC H3T 1C5, Canada"},{"name":"Shriners Hospital for Children, Universit\u00e9 de Montr\u00e9al, Montreal, QC H2V 2S9, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pascal","family":"Bernier","sequence":"additional","affiliation":[{"name":"CHU Sainte-Justine Research Center, Montreal, QC H3T 1C5, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Caroline","family":"Laverdi\u00e8re","sequence":"additional","affiliation":[{"name":"CHU Sainte-Justine Research Center, Montreal, QC H3T 1C5, Canada"},{"name":"Shriners Hospital for Children, Universit\u00e9 de Montr\u00e9al, Montreal, QC H2V 2S9, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kenneth","family":"Drummond","sequence":"additional","affiliation":[{"name":"Department of Experiemental Surgery, McGill University, Montreal, QC H3G 1A4, Canada"},{"name":"Shriners Hospital for Children, Montreal, QC H4A 0A9, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"No\u00e9mi","family":"Dahan-Oliel","sequence":"additional","affiliation":[{"name":"Department of Experiemental Surgery, McGill University, Montreal, QC H3G 1A4, Canada"},{"name":"Shriners Hospital for Children, Montreal, QC H4A 0A9, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1096-050X","authenticated-orcid":false,"given":"Martin","family":"Lemay","sequence":"additional","affiliation":[{"name":"CHU Sainte-Justine Research Center, Montreal, QC H3T 1C5, Canada"},{"name":"Department of Otolaryngology, Universit\u00e9 du Qu\u00e9bec \u00e0 Montr\u00e9al, Montreal, QC H2X 1L7, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7672-8477","authenticated-orcid":false,"given":"Louis-Nicolas","family":"Veilleux","sequence":"additional","affiliation":[{"name":"Department of Experiemental Surgery, McGill University, Montreal, QC H3G 1A4, Canada"},{"name":"CHU Sainte-Justine Research Center, Montreal, QC H3T 1C5, Canada"},{"name":"Shriners Hospital for Children, Montreal, QC H4A 0A9, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6872-6607","authenticated-orcid":false,"given":"Dahlia","family":"Kairy","sequence":"additional","affiliation":[{"name":"Shriners Hospital for Children, Universit\u00e9 de Montr\u00e9al, Montreal, QC H2V 2S9, Canada"},{"name":"Centre for Interdisciplinary Research in Rehabilitation of Greater, Montreal, QC H3S 1M9, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"1968","published-online":{"date-parts":[[2021,3,31]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"e26488","DOI":"10.1002\/pbc.26488","article-title":"Risk factors and surveillance for reduced bone mineral density in pediatric cancer survivors","volume":"64","author":"Siegel","year":"2017","journal-title":"Pediatr. 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