{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,2]],"date-time":"2026-08-02T14:31:25Z","timestamp":1785681085832,"version":"3.56.0"},"reference-count":52,"publisher":"MDPI AG","issue":"4","license":[{"start":{"date-parts":[[2022,2,10]],"date-time":"2022-02-10T00:00:00Z","timestamp":1644451200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["IJERPH"],"abstract":"<jats:p>High-quality and user-friendly patient information material (PIM) is essential for understanding and accepting a new care programme. When optimising the PIM of the integrated, cross-sectoral psycho-oncological (isPO) care programme, the design of the fifth element of the patient information strategy\u2014the patient-friendly website\u2014was still pending. In this paper, the iterative design process of the patient-friendly isPO website is described. We applied the participatory health research (PHR) approach to enable high levels of participation of its respective end-users (e.g., cancer survivors), service providers, and experts. The design included six steps: (1) initiation, (2) planning, (3) initial idea exploration, (4) creation of a first working version, (5) three optimisation loops, and (6) dissemination. An exploratory mixed-methods design has been used. Qualitative data collection included document analysis, interviews, and participatory action research (PAR) loops with focus groups. Finally, the quality of the newly designed website was quantitatively assessed with the UPIM-Check, a user-friendly instrument for assessing and optimising PIM. The PHR approach was indispensable for the design of our needs-oriented, patient-friendly website. Participants\u2019 high levels of participation strongly contributed to the products\u2019 quality. The final descriptive statistical evaluation shows that the final website was rated very good on average by its end-users.<\/jats:p>","DOI":"10.3390\/ijerph19041969","type":"journal-article","created":{"date-parts":[[2022,2,11]],"date-time":"2022-02-11T02:35:51Z","timestamp":1644546951000},"page":"1969","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["Designing a Patient-Friendly Website for Newly Diagnosed Cancer Patients with the Participatory Health Research Approach"],"prefix":"10.3390","volume":"19","author":[{"given":"Juliane","family":"Rackerseder","sequence":"first","affiliation":[{"name":"Institute of Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), Faculty of Human Sciences and Faculty of Medicine, University of Cologne, Eupener Str. 129, 50933 Cologne, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8271-8339","authenticated-orcid":false,"given":"Carolin","family":"Hornbach","sequence":"additional","affiliation":[{"name":"Institute of Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), Faculty of Human Sciences and Faculty of Medicine, University of Cologne, Eupener Str. 129, 50933 Cologne, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Peter","family":"Dicks","sequence":"additional","affiliation":[{"name":"Vocational School University Hospital Aix-la-Chapelle, Pauwelstr. 30, 52074 Aix-la-Chapelle, Germany"},{"name":"District Association of Larynx Operated Aachen e.V., L\u00f6rschp\u00fclgen 24, 52134 Herzogenrath, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hedy","family":"Kerek-Bodden","sequence":"additional","affiliation":[{"name":"House of the Cancer Patient Support Associations of Germany (HKSH-BV), Thomas-Mann-Str. 40, 53111 Bonn, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7414-7318","authenticated-orcid":false,"given":"Theresia","family":"Krieger","sequence":"additional","affiliation":[{"name":"Institute of Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), Faculty of Human Sciences and Faculty of Medicine, University of Cologne, Eupener Str. 129, 50933 Cologne, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2022,2,10]]},"reference":[{"key":"ref_1","unstructured":"S\u00e4nger, S., Lang, B., Klemperer, D., Thomeczek, C., and Dierks, M.-L. 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