{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,3]],"date-time":"2026-07-03T00:12:50Z","timestamp":1783037570969,"version":"3.54.6"},"reference-count":38,"publisher":"MDPI AG","issue":"17","license":[{"start":{"date-parts":[[2022,9,2]],"date-time":"2022-09-02T00:00:00Z","timestamp":1662076800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Fondo Nacional de Investigaci\u00f3n en Salud |ANID","award":["FONIS SA16I0136"],"award-info":[{"award-number":["FONIS SA16I0136"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["IJERPH"],"abstract":"<jats:p>Sj\u00f6gren\u2019s syndrome (SS) is a disease with autoimmune features that affects mainly women and compromises the health-related quality of Life (HRQoL); it is important to evaluate illness experience for a better understanding of the life situation of the patient. The aim of the study was to summarize the individual life experiences and determine the impact of HRQoL and oral health-related quality of life (OHRQoL) and their correlation with health self-assessment in women with SS. The life experiences evaluation employed a concept mapping design to structure qualitative content obtained from semi-structured interviews. Hierarchical cluster analysis was used to analyze the patient\u2019s experiences. EQ-5D-5L and OHIP-14Sp were used. The correlation between appreciation of the general health status and OHIP-14 was evaluated. The experience classification by patients were analyzed and a dendrogram was obtained, identifying 10 clusters of disease experiences of SS, being limitations, pain and difficulties, coping and attitudes towards treatment the most common. Pain\/discomfort in EQ-5D-5L and physical pain and psychological discomfort in OHIP-14 were the most affected dimensions in the patients. The results support the theoretical perspective that the experience of illness is relevant to describing the main difficulties of patients with SS and how it affects their quality of life.<\/jats:p>","DOI":"10.3390\/ijerph191710969","type":"journal-article","created":{"date-parts":[[2022,9,6]],"date-time":"2022-09-06T05:17:23Z","timestamp":1662441443000},"page":"10969","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":25,"title":["Illness Experience and Quality of Life in Sj\u00f6gren Syndrome Patients"],"prefix":"10.3390","volume":"19","author":[{"given":"Gonzalo","family":"Rojas-Alcayaga","sequence":"first","affiliation":[{"name":"Behavioral Science Area, Institute for Research in Dental Science, Faculty of Dentistry, Universidad de Chile, Santiago 8380544, Chile"},{"name":"Dental and Maxillofacial Service, Clinical Hospital, Universidad de Chile, Santiago 8380456, Chile"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2635-4029","authenticated-orcid":false,"given":"Andrea","family":"Herrera","sequence":"additional","affiliation":[{"name":"Behavioral Science Area, Institute for Research in Dental Science, Faculty of Dentistry, Universidad de Chile, Santiago 8380544, Chile"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8949-8885","authenticated-orcid":false,"given":"Iris","family":"Espinoza","sequence":"additional","affiliation":[{"name":"Department of Oral Medicine and Pathology, Faculty of Dentistry, Universidad de Chile, Santiago 8380544, Chile"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3775-9072","authenticated-orcid":false,"given":"Mat\u00edas","family":"Rios-Erazo","sequence":"additional","affiliation":[{"name":"Behavioral Science Area, Institute for Research in Dental Science, Faculty of Dentistry, Universidad de Chile, Santiago 8380544, Chile"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jacqueline","family":"Aguilar","sequence":"additional","affiliation":[{"name":"Behavioral Science Area, Institute for Research in Dental Science, Faculty of Dentistry, Universidad de Chile, Santiago 8380544, Chile"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0837-3699","authenticated-orcid":false,"given":"Loreto","family":"Leiva","sequence":"additional","affiliation":[{"name":"Department of Psychology, Faculty of Social Sciences, Universidad de Chile, Santiago 7800284, Chile"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nailah","family":"Shakhtur","sequence":"additional","affiliation":[{"name":"National Association of Sj\u00f6gren Patients of Chile, Santiago 8320214, Chile"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela","family":"Wurmann","sequence":"additional","affiliation":[{"name":"Reumathology Section, Medicine Department, Clinical Hospital, Universidad de Chile, Santiago 8380456, Chile"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rinie","family":"Geenen","sequence":"additional","affiliation":[{"name":"Department of Psychology, Utrecht University, 3584 CS Utrecht, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2022,9,2]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1111\/eos.12536","article-title":"Current Concepts on Sj\u00f6gren\u2019s Syndrome\u2014Classification Criteria and Biomarkers","volume":"126","author":"Jonsson","year":"2018","journal-title":"Eur. 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