{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T05:45:26Z","timestamp":1790747126543,"version":"4.1.0"},"reference-count":35,"publisher":"MDPI AG","issue":"19","license":[{"start":{"date-parts":[[2022,9,27]],"date-time":"2022-09-27T00:00:00Z","timestamp":1664236800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Korian Foundation for the Ageing Well"},{"name":"Hartmann laboratories"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["IJERPH"],"abstract":"<jats:p>Urinary incontinence (UI) is a major public health problem. Although trivialized, it affects nearly 9% of the world\u2019s population and its prevalence increases with age. It affects many people living in nursing homes. In the literature, there is a lot of information on its symptoms, risk factors and therapeutic approaches, but its social representations are rarely studied. The objective of this qualitative focus-group study is to understand the social representations of urinary incontinence of caregivers of institutionalized elderly people, but also of the general population. Seven focus groups were organized with 41 participants. The data collected were analyzed both manually and using Atlas.Ti software. For caregivers and the general population, urinary incontinence remains a misunderstood and disturbing subject: judged as too intimate, embarrassing, and shameful, it is even considered uninteresting by those who are not affected, with some going so far as to make fun of those affected. It is also represented as a real difficulty for relationships: it can be a source of conflict, but also of questioning by the role of caregiver. However, it is also represented as a means of increasing the empowerment of the residents concerned, thanks to the choice of their means of protection. This study has enabled us to gain a deeper understanding of the social representations of caregivers and the general population on urinary incontinence in the elderly, but also to highlight the various preventive and educational actions that could be taken to improve the management of this health problem. It is part of a larger research program that aims at understanding the representations of urinary incontinence of caregivers, the general population, but also of course, of residents in nursing homes and their carers.<\/jats:p>","DOI":"10.3390\/ijerph191912251","type":"journal-article","created":{"date-parts":[[2022,9,27]],"date-time":"2022-09-27T23:12:12Z","timestamp":1664320332000},"page":"12251","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Social Representations of Urinary Incontinence in Caregivers and General Population: A Focus Group Study"],"prefix":"10.3390","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1862-2521","authenticated-orcid":false,"given":"Lea","family":"Peroni","sequence":"first","affiliation":[{"name":"University Paris 13, Sorbonne Paris Cite, Nursing Sciences Research Chair, Laboratory Educations and Health Promotion (LEPS), (UR 3412), UFR SMBH, F-93017, 1 rue de Chablis, 93000 Bobigny, France"},{"name":"Korian Foundation for the Ageing Well, 21-25 rue Balzac, 75008 Paris, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Didier","family":"Armaingaud","sequence":"additional","affiliation":[{"name":"Korian Foundation for the Ageing Well, 21-25 rue Balzac, 75008 Paris, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tassadit","family":"Yakoubi","sequence":"additional","affiliation":[{"name":"University Paris 13, Sorbonne Paris Cite, Nursing Sciences Research Chair, Laboratory Educations and Health Promotion (LEPS), (UR 3412), UFR SMBH, F-93017, 1 rue de Chablis, 93000 Bobigny, France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monique","family":"Rothan-Tondeur","sequence":"additional","affiliation":[{"name":"University Paris 13, Sorbonne Paris Cite, Nursing Sciences Research Chair, Laboratory Educations and Health Promotion (LEPS), (UR 3412), UFR SMBH, F-93017, 1 rue de Chablis, 93000 Bobigny, France"},{"name":"AP HP, Nursing Sciences Research Chair, 55 Boulevard Diderot, 75012 Paris, France"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2022,9,27]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"217","DOI":"10.1080\/13697137.2018.1543263","article-title":"The prevalence of urinary incontinence","volume":"22","author":"Milsom","year":"2019","journal-title":"Climacteric"},{"key":"ref_2","doi-asserted-by":"crossref","first-page":"1132","DOI":"10.1111\/j.1464-410X.2010.09993.x","article-title":"Worldwide prevalence estimates of lower urinary tract symptoms, overactive bladder, urinary incontinence and bladder outlet obstruction","volume":"108","author":"Irwin","year":"2011","journal-title":"BJU Int."},{"key":"ref_3","doi-asserted-by":"crossref","first-page":"2425945","DOI":"10.1155\/2020\/2425945","article-title":"Prevalence and Risk Factors of Urinary Incontinence in Frail Elderly Females","volume":"2020","author":"Aly","year":"2020","journal-title":"J. Aging Res."},{"key":"ref_4","doi-asserted-by":"crossref","first-page":"539","DOI":"10.1097\/WON.0b013e3181b35ff1","article-title":"Knowledge, beliefs, attitudes, and self-reported practice concerning urinary incontinence in nursing home care","volume":"36","author":"Saxer","year":"2009","journal-title":"J. Wound Ostomy Cont. Nurs."},{"key":"ref_5","doi-asserted-by":"crossref","first-page":"285","DOI":"10.1007\/s00404-007-0505-3","article-title":"Psychosocial and societal burden of incontinence in the aged population: A review","volume":"277","author":"Farage","year":"2008","journal-title":"Arch. Gynecol. Obstet."},{"key":"ref_6","first-page":"120","article-title":"Le pari d\u2019un praticien: Maintenir la personne \u00e2g\u00e9e dans son environnement familial et social","volume":"31","year":"2003","journal-title":"Cah. Crit. Th\u00e9rapie Fam. Et De Prat. De R\u00e9seaux"},{"key":"ref_7","first-page":"26","article-title":"Impact of the lack of integrated care for older people with urinary incontinence and their family caregivers: Results from a qualitative pilot study in two large areas of the Marche Region","volume":"55","author":"Carsughi","year":"2019","journal-title":"Ann. Dell\u2019istituto Super. Sanit\u00e0"},{"key":"ref_8","doi-asserted-by":"crossref","first-page":"214","DOI":"10.1016\/j.apnu.2011.09.007","article-title":"Mental health of elders in retirement communities: Is loneliness a key factor ?","volume":"26","author":"Bekhet","year":"2012","journal-title":"Arch. Psychiatr. Nurs."},{"key":"ref_9","doi-asserted-by":"crossref","unstructured":"Follmann, A., Schollemann, F., Arnolds, A., Weismann, P., Laurentius, T., Rossaint, R., and Czaplik, M. (2021). Reducing loneliness in stationary geriatric care with robots and virtual encounters\u2014A contribution to the COVID-19 pandemic. Int. J. Environ. Res. Public Health, 18.","DOI":"10.3390\/ijerph18094846"},{"key":"ref_10","doi-asserted-by":"crossref","first-page":"81","DOI":"10.1590\/S0080-623420140000800013","article-title":"Perceptions and experiences of elderly residents in a nursing home","volume":"48","author":"Evangelista","year":"2014","journal-title":"Rev. Esc. Enferm. USP"},{"key":"ref_11","unstructured":"Tran, L.N., and Puckett, Y. (2022, April 07). Urinary Incontinence, StatPearls, Available online: http:\/\/www.ncbi.nlm.nih.gov\/books\/NBK559095\/."},{"key":"ref_12","unstructured":"Gogniat, V., Rae, A.C., S\u00e9raphin, M.A., De Rosso, A., and Herrmann, F.R. (2022, April 07). 2011\u2014Incontinence Urinaire: Connaissances, Repr\u00e9sentat.pdf. Available online: https:\/\/www.hug.ch\/sites\/interhug\/files\/structures\/programme_resocontinence\/gogniat-rae-seraphin-de-rosso-arsi-dec-2011-incontinence-urinaire.pdf."},{"key":"ref_13","unstructured":"Jodelet, D. (2015). Repr\u00e9sentations Sociales et Mondes de vie, Archives Contemporaines. Psychologie du Social."},{"key":"ref_14","doi-asserted-by":"crossref","unstructured":"Abric, J.C. (2022, May 26). De L\u2019importance des Repr\u00e9sentations Sociales Dans les Probl\u00e8mes de L\u2019exclusion Sociale. \u00c9r\u00e8s. Available online: https:\/\/www.cairn.info\/exclusion-sociale-insertion-et-prevention--9782865864423-page-11.htm.","DOI":"10.3917\/eres.abric.2003.02.0011"},{"key":"ref_15","unstructured":"Abric, J.C. (2022, April 07). M\u00e9thodes D\u2019\u00e9tude des Repr\u00e9sentations Sociales. Er\u00e8s. 2007; 296p. (Questions de Soci\u00e9t\u00e9). Available online: https:\/\/www.editions-eres.com\/ouvrage\/1228\/methodes-d-etude-des-representations-sociales."},{"key":"ref_16","unstructured":"Moscovici, S. (2022, April 07). La Psychanalyse Son Image et Son Public. PUF. 1961; (Biblioth\u00e8que de Psychanalyse). Available online: https:\/\/science-societe.fr\/moscovici-serge-la-psychanalyse-son-image-et-son-public-paris-puf-1961\/."},{"key":"ref_17","first-page":"44","article-title":"Effets de contexte sur la production d\u2019associations verbales. Le cas des repr\u00e9sentations sociales des Gitans","volume":"47","author":"Guimelli","year":"2000","journal-title":"Cah. Int. Psychol. Soc."},{"key":"ref_18","unstructured":"Lo Monaco, G., Delouv\u00e9e, S., and Rateau, P. (2016). Les Repr\u00e9sentations Sociales. Th\u00e9ories, M\u00e9thodes et Applications, De Boeck Sup\u00e9rieur. Ouvertures Psychologiques."},{"key":"ref_19","unstructured":"H\u00fcsserl, E. (2022, April 07). Id\u00e9es Directrices Pour une Ph\u00e9nom\u00e9nologie. Gallimard. 1985; 624p. (Tel Gallimard). Available online: https:\/\/www.gallimard.fr\/Catalogue\/GALLIMARD\/Tel\/Idees-directrices-pour-une-phenomenologie#."},{"key":"ref_20","doi-asserted-by":"crossref","first-page":"237","DOI":"10.3406\/bupsy.2004.15339","article-title":"Qu\u2019est-ce que les focus groups?","volume":"57","author":"Kitzinger","year":"2004","journal-title":"Bull. Psychol."},{"key":"ref_21","doi-asserted-by":"crossref","first-page":"23","DOI":"10.3917\/rsi.083.0023","article-title":"R\u00e9flexion sur les usages de l\u2019entretien collectif","volume":"83","author":"Haegel","year":"2005","journal-title":"Rech. Soins Infirm."},{"key":"ref_22","doi-asserted-by":"crossref","first-page":"293","DOI":"10.1177\/104973200129118453","article-title":"Getting the focus and the group: Enhancing analytical rigor in focus group research","volume":"3","author":"Kidd","year":"2000","journal-title":"Qual. Health Res."},{"key":"ref_23","doi-asserted-by":"crossref","first-page":"231","DOI":"10.1177\/0049124115570065","article-title":"The Pitfalls and Promise of Focus Groups as a Data Collection Method","volume":"45","author":"Cyr","year":"2016","journal-title":"Sociol. Methods Res."},{"key":"ref_24","unstructured":"Miles, M., Huberman, M., and Saldana, J. (2019). Qualitative Data Analysis, Sage Publications, Inc.. Available online: https:\/\/us.sagepub.com\/en-us\/nam\/qualitative-data-analysis\/book246128."},{"key":"ref_25","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1177\/160940690900800301","article-title":"A Qualitative Framework for Collecting and Analyzing Data in Focus Group Research","volume":"8","author":"Onwuegbuzie","year":"2009","journal-title":"Int. J. Qual. Methods"},{"key":"ref_26","unstructured":"Reidy, M., and Mercier, L. (1996). La triangulation. Le Processus de la Recherche: De la Conception \u00e0 la R\u00e9alisation, D\u00e9carie Editeur. Available online: https:\/\/catalogue.biblio.rinalasnier.qc.ca\/in\/faces\/details.xhtml?id=p::usmarcdef_0000107584."},{"key":"ref_27","unstructured":"Eckman, P. (2003). Emotions Revealed, Times Books."},{"key":"ref_28","doi-asserted-by":"crossref","first-page":"267","DOI":"10.1016\/j.jclinepi.2013.08.015","article-title":"Systematic review of the Hawthorne effect: New concepts are needed to study research participation effects","volume":"67","author":"McCambridge","year":"2014","journal-title":"J. Clin. Epidemiol."},{"key":"ref_29","doi-asserted-by":"crossref","first-page":"62","DOI":"10.1097\/01.NAJ.0000345392.52704.6d","article-title":"How to Try This: Assessment of Transient Urinary Incontinence in Older Adults","volume":"109","author":"Specht","year":"2009","journal-title":"AJN Am. J. Nurs."},{"key":"ref_30","doi-asserted-by":"crossref","first-page":"e12762","DOI":"10.1111\/ijn.12762","article-title":"Investigation of body image, self-esteem, and quality of life in women with urinary incontinence","volume":"25","author":"Kavlak","year":"2019","journal-title":"Int. J. Nurs. Pract."},{"key":"ref_31","unstructured":"Fernandez, L., Thuillet-Lambert, K., Finkelstein-Rossi, J., and Gaucher, J. (2013). Incontinence Urinaire et Image du Corps Chez une Personne Ag\u00e9e: Madame M., 83 ans. Psychologie Clinique du Vieillissement: 15 Etudes de Cas, In Press Eds. Available online: https:\/\/www.researchgate.net\/profile\/Jacqueline-Finkelstein-Rossi\/publication\/256453894_Incontinence_urinaire_et_image_du_corps_Mme_M_83_ans\/links\/00463522b10bc902b5000000\/Incontinence-urinaire-et-image-du-corps-Mme-M-83-ans.pdf."},{"key":"ref_32","doi-asserted-by":"crossref","first-page":"12","DOI":"10.1097\/00012272-200009000-00006","article-title":"Experiencing Transitions: An Emerging Middle-Range Theory","volume":"23","author":"Meleis","year":"2000","journal-title":"Adv. Nurs. Sci."},{"key":"ref_33","doi-asserted-by":"crossref","first-page":"44","DOI":"10.1097\/WON.0000000000000494","article-title":"Where Do Women With Urinary Incontinence Find Information About Absorbent Products and How Useful Do They Find It?","volume":"46","author":"Smith","year":"2019","journal-title":"J. Wound Ostomy Cont. Nurs."},{"key":"ref_34","doi-asserted-by":"crossref","first-page":"1936","DOI":"10.1111\/j.1365-2702.2007.01812.x","article-title":"Absorbent products for incontinence: \u00abtreatment effects\u00bb and impact on quality of life","volume":"16","author":"Getliffe","year":"2007","journal-title":"J. Clin. Nurs."},{"key":"ref_35","doi-asserted-by":"crossref","first-page":"354","DOI":"10.1111\/j.1365-2648.1991.tb01660.x","article-title":"A concept analysis of empowerment","volume":"16","author":"Gibson","year":"1991","journal-title":"J. Adv. Nurs."}],"container-title":["International Journal of Environmental Research and Public Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.mdpi.com\/1660-4601\/19\/19\/12251\/pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,11]],"date-time":"2025-10-11T00:40:22Z","timestamp":1760143222000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.mdpi.com\/1660-4601\/19\/19\/12251"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,9,27]]},"references-count":35,"journal-issue":{"issue":"19","published-online":{"date-parts":[[2022,10]]}},"alternative-id":["ijerph191912251"],"URL":"https:\/\/doi.org\/10.3390\/ijerph191912251","relation":{},"ISSN":["1660-4601"],"issn-type":[{"value":"1660-4601","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,9,27]]}}}