{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,27]],"date-time":"2026-05-27T23:41:19Z","timestamp":1779925279686,"version":"3.53.1"},"reference-count":42,"publisher":"MDPI AG","issue":"21","license":[{"start":{"date-parts":[[2022,10,28]],"date-time":"2022-10-28T00:00:00Z","timestamp":1666915200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["IJERPH"],"abstract":"<jats:p>Celiac disease (CD) is a chronic health condition treated by managing a lifelong, strict, and demanding gluten-free diet. Managing the diet entails effective use of self-management skills. This study aimed to explore self-generated procedures children and adolescents with CD in Israel perform when participating in food-related activities considering their self-management skills and health requirements. Participants included children and adolescents with CD, aged 8 to 18 years, that had been diagnosed more than 6 months prior to the study. Parents completed a demographic questionnaire and reported their child\u2019s constancy in adherence to the diet. Children and adolescents were asked to share the things they do themselves to prepare for participating in the various activities. Responses were qualitatively analyzed, and common themes were identified and categorized using directed analysis. Participants were 126 children and adolescents (Mage = 12.33 yr, SD = 2.85), 67.5% of whom had been diagnosed more than 3 yr prior to the study. Based on parents\u2019 reports, almost all (97.6%) participants \u201calways adhered\u201d to the diet. A total of 10 categories were defined from the qualitative responses describing 125 do and don\u2019t actions used by the children and adolescents to self-manage their diet. The do and don\u2019t actions encompass cognitive planning far beyond the mere act of avoiding gluten. These actions can serve as an initial database of suggested strategies to support acquiring independent self-management. Understanding the cognitive complexity of routinely carrying out the diet while actively participating in everyday activities can assist health professionals in building support and intervention programs, promoting effective self-management, and facilitating optimal adherence to the diet.<\/jats:p>","DOI":"10.3390\/ijerph192114051","type":"journal-article","created":{"date-parts":[[2022,10,30]],"date-time":"2022-10-30T04:57:34Z","timestamp":1667105854000},"page":"14051","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["Promoting Effective Self-Management of the Gluten-Free Diet: Children\u2019s and Adolescents\u2019 Self-Generated Do\u2019s and Don\u2019ts"],"prefix":"10.3390","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0749-4563","authenticated-orcid":false,"given":"Sonya","family":"Meyer","sequence":"first","affiliation":[{"name":"Department of Occupational Therapy, Ariel University, Ariel 4077603, Israel"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2022,10,28]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"63","DOI":"10.1053\/j.gastro.2020.06.098","article-title":"Epidemiology, Presentation, and Diagnosis of Celiac Disease","volume":"160","author":"Lebwohl","year":"2021","journal-title":"Gastroenterology"},{"key":"ref_2","doi-asserted-by":"crossref","first-page":"313","DOI":"10.1038\/s41575-021-00552-z","article-title":"The Global Burden of Coeliac Disease: Opportunities and Challenges","volume":"19","author":"Makharia","year":"2022","journal-title":"Nat. Rev. Gastroenterol. Hepatol."},{"key":"ref_3","doi-asserted-by":"crossref","first-page":"2413","DOI":"10.1016\/S0140-6736(22)00794-2","article-title":"Coeliac Disease","volume":"399","author":"Catassi","year":"2022","journal-title":"Lancet"},{"key":"ref_4","doi-asserted-by":"crossref","first-page":"1785","DOI":"10.1007\/s00431-022-04379-x","article-title":"Review on Pediatric Coeliac Disease from a Clinical Perspective","volume":"181","author":"Wessels","year":"2022","journal-title":"Eur. J. Pediatr."},{"key":"ref_5","doi-asserted-by":"crossref","first-page":"562","DOI":"10.1016\/j.cgh.2019.05.046","article-title":"Rate, Risk Factors, and Outcomes of Nonadherence in Pediatric Patients With Celiac Disease: A Systematic Review","volume":"18","author":"Reilly","year":"2020","journal-title":"Clin. Gastroenterol. Hepatol."},{"key":"ref_6","doi-asserted-by":"crossref","first-page":"580","DOI":"10.1038\/nrgastro.2015.156","article-title":"Practical Insights into Gluten-Free Diets","volume":"12","author":"See","year":"2015","journal-title":"Nat. Rev. Gastroenterol. Hepatol."},{"key":"ref_7","doi-asserted-by":"crossref","unstructured":"Crespo-Escobar, P. (2022). Gluten Free Diet. Advances in Celiac Disease, Springer International Publishing.","DOI":"10.1007\/978-3-030-82401-3_9"},{"key":"ref_8","doi-asserted-by":"crossref","first-page":"1242","DOI":"10.1136\/gutjnl-2016-311574","article-title":"Transition from Childhood to Adulthood in Coeliac Disease: The Prague Consensus Report","volume":"65","author":"Ludvigsson","year":"2016","journal-title":"Gut"},{"key":"ref_9","unstructured":"World Health Organization (2019, January 01). Adolescent Development. Available online: http:\/\/www.who.int\/maternal_child_adolescent\/topics\/adolescence\/dev\/en\/."},{"key":"ref_10","unstructured":"Case-Smith, J., and Clifford O\u2019Brien, J. (2015). Adolescent Development: Transitioning from Child to Adult. Occupational Therapy for Children and Adolescents, Elsevier."},{"key":"ref_11","doi-asserted-by":"crossref","first-page":"e759","DOI":"10.1542\/peds.2005-0904","article-title":"Celiac Disease: Evaluation of the Diagnosis and Dietary Compliance in Canadian Children","volume":"116","author":"Rashid","year":"2005","journal-title":"Pediatrics"},{"key":"ref_12","doi-asserted-by":"crossref","unstructured":"Meyer, S., and Rosenblum, S. (2017). Development and Validation of the Celiac Disease-Children\u2019s Activities Report (CD-Chart) for Promoting Self-Management among Children and Adolescents. Nutrients, 9.","DOI":"10.3390\/nu9101130"},{"key":"ref_13","doi-asserted-by":"crossref","first-page":"e6","DOI":"10.1097\/MPG.0000000000001908","article-title":"Creation of Experience-Based Celiac Benchmarks-The First Step in Pre-Transition Self-Management Assessment","volume":"67","author":"Fishman","year":"2018","journal-title":"J. Pediatr. Gastroenterol. Nutr."},{"key":"ref_14","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1207\/S15324796ABM2601_01","article-title":"Self-Management Education: History, Definition, Outcomes, and Mechanisms","volume":"26","author":"Lorig","year":"2003","journal-title":"Ann. Behav. Med."},{"key":"ref_15","doi-asserted-by":"crossref","first-page":"e485","DOI":"10.1542\/peds.2011-1635","article-title":"Pediatric Self-Management: A Framework for Research, Practice, and Policy","volume":"129","author":"Modi","year":"2012","journal-title":"Pediatrics"},{"key":"ref_16","doi-asserted-by":"crossref","first-page":"2592","DOI":"10.1177\/1359105320922304","article-title":"Examining Core Self-Management Skills among Adolescents with Celiac Disease","volume":"26","author":"Meyer","year":"2020","journal-title":"J. Health Psychol."},{"key":"ref_17","doi-asserted-by":"crossref","first-page":"1438","DOI":"10.1007\/s10620-018-4936-4","article-title":"Hypervigilance to a Gluten-Free Diet and Decreased Quality of Life in Teenagers and Adults with Celiac Disease","volume":"63","author":"Wolf","year":"2018","journal-title":"Dig. Dis. Sci."},{"key":"ref_18","doi-asserted-by":"crossref","first-page":"2469","DOI":"10.1001\/jama.288.19.2469","article-title":"Patient Self-Management of Chronic Disease in Primary Care","volume":"288","author":"Bodenheimer","year":"2002","journal-title":"JAMA"},{"key":"ref_19","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1111\/1440-1630.12032","article-title":"Self-management Interventions: Using an Occupational Lens to Rethink and Refocus","volume":"60","author":"Packer","year":"2013","journal-title":"Aust. Occup. Ther. J."},{"key":"ref_20","doi-asserted-by":"crossref","first-page":"1356","DOI":"10.1177\/2050640618787651","article-title":"Coeliac Disease: Factors Affecting the Transition and a Practical Tool for the Transition to Adult Healthcare","volume":"6","author":"Zingone","year":"2018","journal-title":"United Eur. Gastroenterol. J."},{"key":"ref_21","unstructured":"Toglia, J., and Foster, E.R. (2021). The Multicontext Approach to Cognitive Rehabilitation, Gatekeeper Press."},{"key":"ref_22","doi-asserted-by":"crossref","first-page":"628","DOI":"10.1016\/0020-7489(95)00043-5","article-title":"Self-Management of Chronic Illness: Implications for Nursing","volume":"32","author":"Coates","year":"1995","journal-title":"Int. J. Nurs. Stud."},{"key":"ref_23","doi-asserted-by":"crossref","unstructured":"(2020). American Occupational Therapy Association Occupational Therapy Practice Framework: Domain and Process Fourth Edition. Am. J. Occup. Ther., 74, 7412410010p1\u20137412410010p87.","DOI":"10.5014\/ajot.2020.74S2001"},{"key":"ref_24","unstructured":"Martin, C., and Dovey, T. (2014). Psychological Well-Being of Children and Young People with Coeliac Disease. Paediatric Gastrointestinal Disorders, Radcliffe Publishing Ltd."},{"key":"ref_25","unstructured":"Creswell, J.W. (2013). Qualitative Inquiry and Research Design: Choosing among Five Approaches, SAGE Publications, Incorporated. [3rd ed.]."},{"key":"ref_26","doi-asserted-by":"crossref","unstructured":"Meyer, S., and Naveh, G. (2021). Mobile Application for Promoting Gluten-Free Diet Self-Management in Adolescents with Celiac Disease: Proof-of-Concept Study. Nutrients, 13.","DOI":"10.3390\/nu13051401"},{"key":"ref_27","unstructured":"Munitz, H. (2010). Growth and Development. Selected Chapters in Psychiatry, Dyonon."},{"key":"ref_28","unstructured":"(2022, July 22). Central Bureau of Statistics-Israel, Available online: https:\/\/www.cbs.gov.il\/en\/Pages\/default.aspx."},{"key":"ref_29","doi-asserted-by":"crossref","first-page":"449","DOI":"10.1007\/s00394-016-1238-5","article-title":"Celiac Disease: Understanding the Gluten-Free Diet","volume":"56","author":"Vespa","year":"2017","journal-title":"Eur. J. Nutr."},{"key":"ref_30","doi-asserted-by":"crossref","first-page":"392","DOI":"10.1093\/jpepsy\/jsx138","article-title":"Topical Review: Adherence Interventions for Youth on Gluten-Free Diets","volume":"43","author":"Holbein","year":"2018","journal-title":"J. Pediatr. Psychol."},{"key":"ref_31","doi-asserted-by":"crossref","first-page":"S134","DOI":"10.1053\/j.gastro.2005.02.020","article-title":"The Gluten-Free Diet: How to Provide Effective Education and Resources","volume":"128","author":"Case","year":"2005","journal-title":"Gastroenterology"},{"key":"ref_32","doi-asserted-by":"crossref","first-page":"154","DOI":"10.3748\/wjg.v28.i1.154","article-title":"Current Guidelines for the Management of Celiac Disease: A Systematic Review with Comparative Analysis","volume":"28","author":"Raiteri","year":"2022","journal-title":"World J. Gastroenterol."},{"key":"ref_33","doi-asserted-by":"crossref","first-page":"1096","DOI":"10.1016\/j.dld.2019.02.008","article-title":"Sequence of Acquisition of Self-Management Skills to Follow a Gluten-Free Diet by Adults with Celiac Disease","volume":"51","author":"Clerx","year":"2019","journal-title":"Dig. Liver Dis."},{"key":"ref_34","unstructured":"World Health Organization (2007). [WHO] World Health International Classification of Functioning, Disability and Health: Children & Youth Version: ICF-CY, WHO."},{"key":"ref_35","unstructured":"Ronen, G., and Rosenbaum, P. (2013). The Role of Participation in the Lives of Children and Young People with Neurological and Developmental Conditions. Life Quality Outcomes in Children and Young People with Neurological and Developmental Conditions, Mac Keith Press."},{"key":"ref_36","doi-asserted-by":"crossref","first-page":"16","DOI":"10.1111\/dmcn.13237","article-title":"Participation, Both a Means and an End: A Conceptual Analysis of Processes and Outcomes in Childhood Disability","volume":"59","author":"Imms","year":"2017","journal-title":"Dev. Med. Child. Neurol."},{"key":"ref_37","doi-asserted-by":"crossref","first-page":"50","DOI":"10.1177\/1539449219860583","article-title":"Scoping Review of Self-Advocacy Education Interventions to Improve Care","volume":"40","author":"Schmidt","year":"2020","journal-title":"OTJR Occup. Particip. Health"},{"key":"ref_38","doi-asserted-by":"crossref","unstructured":"Schena, D., Rosales, R., and Rowe, E. (2022). Teaching Self-Advocacy Skills: A Review and Call for Research. J. Behav. Educ., 1\u201349.","DOI":"10.1007\/s10864-022-09472-7"},{"key":"ref_39","doi-asserted-by":"crossref","unstructured":"Amil-Dias, J., and Polanco, I. (2022). Quality of Life in Celiac Disease. Advances in Celiac Disease, Springer.","DOI":"10.1007\/978-3-030-82401-3"},{"key":"ref_40","doi-asserted-by":"crossref","first-page":"39","DOI":"10.1097\/MEG.0000000000002051","article-title":"Structural Validation and Dyadic Child-Parent Measurement Invariance of the Celiac Disease Quality of Life Questionnaire","volume":"34","author":"Meyer","year":"2022","journal-title":"Eur. J. Gastroenterol. Hepatol."},{"key":"ref_41","doi-asserted-by":"crossref","first-page":"43","DOI":"10.1177\/07419325050260010601","article-title":"A Conceptual Framework of Self-Advocacy for Students with Disabilities","volume":"26","author":"Test","year":"2005","journal-title":"Remedial Spec. Educ."},{"key":"ref_42","unstructured":"Levush, R. (2022, July 24). Israel: Military Draft Law and Enforcement, Available online: https:\/\/www.loc.gov\/item\/2019713409\/."}],"container-title":["International Journal of Environmental Research and Public Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.mdpi.com\/1660-4601\/19\/21\/14051\/pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,11]],"date-time":"2025-10-11T01:04:50Z","timestamp":1760144690000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.mdpi.com\/1660-4601\/19\/21\/14051"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,10,28]]},"references-count":42,"journal-issue":{"issue":"21","published-online":{"date-parts":[[2022,11]]}},"alternative-id":["ijerph192114051"],"URL":"https:\/\/doi.org\/10.3390\/ijerph192114051","relation":{},"ISSN":["1660-4601"],"issn-type":[{"value":"1660-4601","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,10,28]]}}}