{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,29]],"date-time":"2026-07-29T19:11:45Z","timestamp":1785352305721,"version":"3.55.0"},"reference-count":30,"publisher":"MDPI AG","issue":"6","license":[{"start":{"date-parts":[[2023,3,15]],"date-time":"2023-03-15T00:00:00Z","timestamp":1678838400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"UCB","award":["FND-2018-126806"],"award-info":[{"award-number":["FND-2018-126806"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["IJERPH"],"abstract":"<jats:p>Objective: To assess problems faced by children with type 1 narcolepsy (NT1) at school and obtain insight into potential interventions for these problems. Methods: We recruited children and adolescents with NT1 from three Dutch sleep-wake centers. Children, parents, and teachers completed questionnaires about school functioning, interventions in the classroom, global functioning (DISABKIDS), and depressive symptoms (CDI). Results: Eighteen children (7\u201312 years) and thirty-seven adolescents (13\u201319 years) with NT1 were recruited. Teachers\u2019 most frequently reported school problems were concentration problems and fatigue (reported by about 60% in both children and adolescents). The most common arrangements at school were, for children, discussing school excursions (68%) and taking a nap at school (50%) and, for adolescents, a place to nap at school (75%) and discussing school excursions (71%). Regular naps at home on the weekend (children 71% and adolescents 73%) were more common than regular naps at school (children 24% and adolescents 59%). Only a minority of individuals used other interventions. School support by specialized school workers was associated with significantly more classroom interventions (3.5 versus 1.0 in children and 5.2 versus 4.1 in adolescents) and napping at school, but not with better global functioning, lower depressive symptom levels, or napping during the weekends. Conclusions: Children with NT1 have various problems at school, even after medical treatment. Interventions to help children with NT1 within the classroom do not seem to be fully implemented. School support was associated with the higher implementation of these interventions. Longitudinal studies are warranted to examine how interventions can be better implemented within the school.<\/jats:p>","DOI":"10.3390\/ijerph20065175","type":"journal-article","created":{"date-parts":[[2023,3,15]],"date-time":"2023-03-15T06:36:36Z","timestamp":1678862196000},"page":"5175","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["School Problems and School Support for Children with Narcolepsy: Parent, Teacher, and Child Reports"],"prefix":"10.3390","volume":"20","author":[{"given":"Karin","family":"Janssens","sequence":"first","affiliation":[{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands"},{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 2103 SW Heemstede, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pauline","family":"Amesz","sequence":"additional","affiliation":[{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands"},{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 2103 SW Heemstede, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yvonne","family":"Nuvelstijn","sequence":"additional","affiliation":[{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands"},{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 2103 SW Heemstede, The Netherlands"},{"name":"LWOE, 2142 ED Cruquius, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claire","family":"Donjacour","sequence":"additional","affiliation":[{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands"},{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 2103 SW Heemstede, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Danielle","family":"Hendriks","sequence":"additional","affiliation":[{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands"},{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 2103 SW Heemstede, The Netherlands"},{"name":"Sleeping Center, Medical Centre Haaglanden, 2512 VA The Hague, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-5610-719X","authenticated-orcid":false,"given":"Els","family":"Peeters","sequence":"additional","affiliation":[{"name":"Sleeping Center, Medical Centre Haaglanden, 2512 VA The Hague, The Netherlands"},{"name":"Department of Child Neurology, Juliana Children\u2019s Hospital-Haga Teaching Hospital, 2545 AA The Hague, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laury","family":"Quaedackers","sequence":"additional","affiliation":[{"name":"Center for Sleep Medicine, Kempenhaeghe, 5591 VE Heeze, The Netherlands"},{"name":"Department of Industrial Design, Eindhoven University of Technology, 2612 AZ Eindhoven, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nele","family":"Vandenbussche","sequence":"additional","affiliation":[{"name":"Center for Sleep Medicine, Kempenhaeghe, 5591 VE Heeze, The Netherlands"},{"name":"Noorderhart, Mariaziekenhuis, 3900 Pelt, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sigrid","family":"Pillen","sequence":"additional","affiliation":[{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands"},{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 2103 SW Heemstede, The Netherlands"},{"name":"Kinderslaapexpert BV (Pediatric Sleep Expert Ltd.), 6585 KK Mook, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4755-7060","authenticated-orcid":false,"given":"Gert Jan","family":"Lammers","sequence":"additional","affiliation":[{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 8025 BV Zwolle, The Netherlands"},{"name":"Sleep-Wake Centre, Stichting Epilepsie Instellingen Nederland (SEIN), 2103 SW Heemstede, The Netherlands"},{"name":"Department of Neurology, Leiden University Medical Center, 2333 ZA Leiden, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2023,3,15]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"181","DOI":"10.1055\/s-0035-1550152","article-title":"Narcolepsy during Childhood: An 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