{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T02:37:05Z","timestamp":1783478225787,"version":"3.55.0"},"reference-count":58,"publisher":"MDPI AG","issue":"5","license":[{"start":{"date-parts":[[2024,5,15]],"date-time":"2024-05-15T00:00:00Z","timestamp":1715731200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Region of V\u00e4stra G\u00f6taland Sweden","award":["ALFGBG-964986"],"award-info":[{"award-number":["ALFGBG-964986"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["IJERPH"],"abstract":"<jats:p>Spina bifida includes a spectrum of different neural tube defects. Myelomeningocele is the most serious type and is associated with a risk of paralysis and sensory dysfunction below the affected level, bladder\/bowel dysfunction, brain dysmorphology, and impaired health-related quality of life (HRQoL). The aim of this study was to describe the establishment of linguistic, content and face validity of the Swedish version of a Quality-of-Life Assessment for children (QUALAS-C, n = 10 items), teenagers (QUALAS-T, n = 10 items) and adults with spina bifida (QUALAS-A, n = 15 items) based on the original US English versions. The process included close collaboration with the original instrument developer and complied with international standards on patient-reported outcome measurements. The procedure includes forward translation, expert and patient\/parent review and reconciliation, back translation, back translation review and cognitive debriefing interviews with 16 people with spina bifida aged 8 to 33, providing them with the possibility of evaluating the clarity, adequacy, and comprehensiveness of QUALAS-C, QUALAS-T and QUALAS-A, respectively. The interviews lasted a median of 15 min (range 8\u201316) for QUALAS-C, 10 min (range 9\u201315) for QUALAS-T and 24 min (range 9\u201338) for QUALAS-A. Four main issues\/topics needed attention and discussion after both the forward and back translation. Following the back translation review, all issues were resolved. The patient feedback revealed recognition of the HRQoL issues included in QUALAS, and also difficulties in understanding some questions. After the patients\u2019 evaluation, four items were reworded for clarity. No study participant reported a wish to add to or remove questions from QUALAS. Hence, the Swedish versions of QUALAS became conceptually equivalent to the original US English versions and achieved linguistic, content and face validity. While empowering the voices of people with spina bifida, these results also enable their HRQoL to be properly assessed in research and clinical care in Sweden and in international studies.<\/jats:p>","DOI":"10.3390\/ijerph21050624","type":"journal-article","created":{"date-parts":[[2024,5,15]],"date-time":"2024-05-15T06:14:42Z","timestamp":1715753682000},"page":"624","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Linguistic, Content and Face Validity of the Swedish Version of a Quality-of-Life Assessment for Children, Teenagers and Adults with Spina Bifida"],"prefix":"10.3390","volume":"21","author":[{"given":"Michaela","family":"Dellenmark-Blom","sequence":"first","affiliation":[{"name":"Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, 416 85 Gothenburg, Sweden"},{"name":"Department of Pediatric Surgery, Sahlgrenska University Hospital, Queen Silvia Children\u2019s Hospital, 416 85 Gothenburg, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie","family":"Andersson","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, 416 85 Gothenburg, Sweden"},{"name":"Department of Pediatric Surgery, Sahlgrenska University Hospital, Queen Silvia Children\u2019s Hospital, 416 85 Gothenburg, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Konrad M.","family":"Szymanski","sequence":"additional","affiliation":[{"name":"Division of Pediatric Urology, Riley Hospital for Children, Indiana University Health, Indianapolis, IN 46202, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Charlotta Lev\u00e9n","family":"Andr\u00e9asson","sequence":"additional","affiliation":[{"name":"Department of Pediatric Surgery, Sahlgrenska University Hospital, Queen Silvia Children\u2019s Hospital, 416 85 Gothenburg, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Magdalena","family":"Vu Minh Arnell","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, 416 85 Gothenburg, Sweden"},{"name":"Department of Pediatric Surgery, Sahlgrenska University Hospital, Queen Silvia Children\u2019s Hospital, 416 85 Gothenburg, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1376-9092","authenticated-orcid":false,"given":"Sofia","family":"Sj\u00f6str\u00f6m","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, 416 85 Gothenburg, Sweden"},{"name":"Department of Pediatric Surgery, Sahlgrenska University Hospital, Queen Silvia Children\u2019s Hospital, 416 85 Gothenburg, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kate","family":"Abrahamsson","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, 416 85 Gothenburg, Sweden"},{"name":"Department of Pediatric Surgery, Sahlgrenska University Hospital, Queen Silvia Children\u2019s Hospital, 416 85 Gothenburg, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2024,5,15]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"24","DOI":"10.2105\/AJPH.2015.302902","article-title":"Global Birth Prevalence of Spina Bifida by Folic Acid Fortification Status: A Systematic Review and Meta-Analysis","volume":"106","author":"Atta","year":"2016","journal-title":"Am. J. Public. Health"},{"key":"ref_2","first-page":"15007","article-title":"Spina bifida","volume":"1","author":"Copp","year":"2015","journal-title":"Nat. Rev. Dis."},{"key":"ref_3","doi-asserted-by":"crossref","first-page":"681","DOI":"10.1007\/s00467-023-06067-w","article-title":"Multidisciplinary management of people with spina bifida across the lifespan","volume":"39","author":"Koch","year":"2024","journal-title":"Pediatr. Nephrol."},{"key":"ref_4","doi-asserted-by":"crossref","first-page":"1294","DOI":"10.1111\/dmcn.14792","article-title":"Neurosurgical procedures for children with myelomeningocele after fetal or postnatal surgery: A comparative effectiveness study","volume":"63","author":"Worley","year":"2021","journal-title":"Dev. Med. Child. Neurol."},{"key":"ref_5","doi-asserted-by":"crossref","first-page":"835","DOI":"10.1016\/j.clp.2022.06.004","article-title":"Fetal Repair of Neural Tube Defects","volume":"49","author":"Lee","year":"2022","journal-title":"Clin. Perinatol."},{"key":"ref_6","doi-asserted-by":"crossref","first-page":"267","DOI":"10.1016\/j.clp.2021.11.015","article-title":"Controversies in Fetal Surgery: Prenatal Repair of Myelomeningocele in the Modern Era","volume":"49","author":"Marquart","year":"2022","journal-title":"Clin. Perinatol."},{"key":"ref_7","doi-asserted-by":"crossref","first-page":"181","DOI":"10.1542\/peds.2011-2935","article-title":"Living with spina bifida: A historical perspective","volume":"130","author":"Pruitt","year":"2012","journal-title":"Pediatrics"},{"key":"ref_8","doi-asserted-by":"crossref","first-page":"jrm18244","DOI":"10.2340\/jrm.v55.18244","article-title":"Survival and causes of death in adults with spina bifida in Sweden: A population-based case-control study","volume":"55","author":"Rocchi","year":"2023","journal-title":"J. Rehabil. Med."},{"key":"ref_9","doi-asserted-by":"crossref","first-page":"436","DOI":"10.1111\/ppe.12589","article-title":"Analysis of Mortality among Neonates and Children with Spina Bifida: An International Registry-Based Study, 2001\u20132012","volume":"33","author":"Bakker","year":"2019","journal-title":"Paediatr Perinat Epidemiol"},{"key":"ref_10","doi-asserted-by":"crossref","first-page":"1041","DOI":"10.1016\/S2214-109X(23)00191-2","article-title":"Neural tube defects as a cause of death among stillbirths, infants, and children younger than 5 years in sub-Saharan Africa and southeast Asia: An analysis of the CHAMPS network","volume":"11","author":"Madrid","year":"2023","journal-title":"Lancet Glob. Health"},{"key":"ref_11","doi-asserted-by":"crossref","first-page":"625","DOI":"10.1111\/cch.12367","article-title":"Health-related quality of life in children with myelomeningocele: A systematic review of the literature","volume":"42","author":"Bakaniene","year":"2016","journal-title":"Child. Care Health Dev."},{"key":"ref_12","first-page":"565","article-title":"Quality of life: Guidelines for the care of people with spina bifida","volume":"13","author":"Sawin","year":"2020","journal-title":"J. Pediatr. Rehabil. Med."},{"key":"ref_13","doi-asserted-by":"crossref","first-page":"393","DOI":"10.1136\/archdischild-2015-310068","article-title":"Paediatric health-related quality of life: What is it and why should we measure it?","volume":"102","author":"Haverman","year":"2017","journal-title":"Arch. Dis. Child."},{"key":"ref_14","unstructured":"U.S. Department of Health and Human Services FDA Center for Drug Evaluation and Research, U.S. Department of Health and Human Services FDA Center for Biologics Evaluation and Research, and U.S. Department of Health and Human Services FDA Center for Devices and Radiological Health (2024, April 07). Guidance for Industry: Patient-Reported Outcome Measures: Use in Medical Product Development to Support Labeling Claims, Available online: https:\/\/www.fda.gov\/media\/77832\/download."},{"key":"ref_15","doi-asserted-by":"crossref","first-page":"137","DOI":"10.31887\/DCNS.2014.16.2\/mbullinger","article-title":"Quality of life as patient-reported outcomes: Principles of assessment","volume":"16","author":"Bullinger","year":"2014","journal-title":"Dialogues Clin. Neurosci."},{"key":"ref_16","doi-asserted-by":"crossref","first-page":"611","DOI":"10.1007\/s00381-019-04348-0","article-title":"Ambulation, lesion level, and health-related quality of life in children with myelomeningocele","volume":"36","year":"2020","journal-title":"Childs Nerv. Syst."},{"key":"ref_17","doi-asserted-by":"crossref","first-page":"3","DOI":"10.3171\/2022.8.PEDS22162","article-title":"Newborns with myelomeningocele: Their health-related quality of life and daily functioning 10 years later","volume":"31","author":"Spoor","year":"2023","journal-title":"J. Neurosurg. Pediatr."},{"key":"ref_18","doi-asserted-by":"crossref","first-page":"5479","DOI":"10.1080\/09638288.2021.1936660","article-title":"Assessment of health status in adolescents with spina bifida in the West Bank, Palestine: Sense of coherence and self-perceived health","volume":"44","author":"Nahal","year":"2022","journal-title":"Disabil. Rehabil."},{"key":"ref_19","doi-asserted-by":"crossref","first-page":"650","DOI":"10.1016\/j.dhjo.2018.03.008","article-title":"Health related quality of life in children with spina bifida in Uganda","volume":"11","author":"Bannink","year":"2018","journal-title":"Disabil. Health J."},{"key":"ref_20","doi-asserted-by":"crossref","first-page":"1997","DOI":"10.1007\/s00381-017-3494-y","article-title":"Health-related quality of life in non-paraplegic (ambulatory) children with myelomeningocele","volume":"33","author":"Canaz","year":"2017","journal-title":"Childs Nerv. Syst."},{"key":"ref_21","doi-asserted-by":"crossref","first-page":"178","DOI":"10.1016\/j.urology.2015.09.027","article-title":"Quality of Life Assessment in Spina Bifida for Children (QUALAS-C): Development and Validation of a Novel Health-related Quality of Life Instrument","volume":"87","author":"Szymanski","year":"2016","journal-title":"Urology"},{"key":"ref_22","doi-asserted-by":"crossref","first-page":"559","DOI":"10.1016\/j.jpurol.2013.05.005","article-title":"Health-related quality of life compared to life situation and incontinence in adults with myelomeningocele: Is SF-36 a reliable tool?","volume":"9","author":"Lindehall","year":"2013","journal-title":"J. Pediatr. Urol."},{"key":"ref_23","doi-asserted-by":"crossref","first-page":"8","DOI":"10.1002\/nau.22673","article-title":"Patient reported outcomes measures in neurogenic bladder and bowel: A systematic review of the current literature","volume":"35","author":"Patel","year":"2016","journal-title":"Neurourol. Urodyn."},{"key":"ref_24","first-page":"306","article-title":"Validation of QUALAS-T, a health-related quality of life instrument for teenagers with spina bifida","volume":"70","author":"Szymanski","year":"2017","journal-title":"Cent. Eur. J. Urol."},{"key":"ref_25","doi-asserted-by":"crossref","first-page":"105","DOI":"10.1007\/s00381-015-2903-3","article-title":"Development and validation of a spina bifida-specific pediatric quality of life questionnaire: The Spina Bifida Pediatric Questionnaire, SBPQ","volume":"32","author":"Laridaen","year":"2016","journal-title":"Childs Nerv. Syst."},{"key":"ref_26","doi-asserted-by":"crossref","first-page":"423","DOI":"10.1111\/ped.14416","article-title":"Development and Validation of the Japanese Version of Quality of Life Assessment of Spina Bifida in Children (QUALAS-C-J)","volume":"63","author":"Kawahara","year":"2021","journal-title":"Pediatr. Int."},{"key":"ref_27","doi-asserted-by":"crossref","first-page":"1232","DOI":"10.1111\/ped.14003","article-title":"Development and validation of the Japanese version of the Quality of Life Assessment of Spina Bifida in Teenagers (QUALAS-T-J)","volume":"61","author":"Kawahara","year":"2019","journal-title":"Pediatr. Int."},{"key":"ref_28","doi-asserted-by":"crossref","first-page":"978","DOI":"10.1016\/j.jval.2011.06.013","article-title":"Content validity--Establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO Good Research Practices Task Force report: Part 2\u2014Assessing respondent understanding","volume":"14","author":"Patrick","year":"2011","journal-title":"Value Health"},{"key":"ref_29","doi-asserted-by":"crossref","first-page":"2355","DOI":"10.1007\/s11136-015-0988-5","article-title":"QUAlity of Life Assessment in Spina bifida for Adults (QUALAS-A): Development and international validation of a novel health-related quality of life instrument","volume":"24","author":"Szymanski","year":"2015","journal-title":"Qual. Life Res."},{"key":"ref_30","doi-asserted-by":"crossref","first-page":"279.e1","DOI":"10.1016\/j.jpurol.2018.02.021","article-title":"Incontinence affects health-related quality of life in children and adolescents with spina bifida","volume":"14","author":"Szymanski","year":"2018","journal-title":"J. Ped Urol."},{"key":"ref_31","doi-asserted-by":"crossref","first-page":"94","DOI":"10.1111\/j.1524-4733.2005.04054.x","article-title":"Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: Report of the ISPOR Task Force for Translation and Cultural Adaptation","volume":"8","author":"Wild","year":"2005","journal-title":"Value Health"},{"key":"ref_32","doi-asserted-by":"crossref","first-page":"171","DOI":"10.1186\/s13023-017-0718-x","article-title":"Measuring what matters to rare disease patients\u2014Reflections on the work by the IRDiRC taskforce on patient-centered outcome measures","volume":"12","author":"Morel","year":"2017","journal-title":"Orphanet J. Rare Dis."},{"key":"ref_33","doi-asserted-by":"crossref","unstructured":"Yang, S.H., Ji, Y., Lee, Y.S., Bae, E., Park, J., Yun, H., Szymanski, K.M., Park, C.G., Kim, S.W., and Choi, E.K. (2023). Translation and validation of the Korean version of the QUAlity of Life Assessment in Spina bifida for Teenagers (QUALAS-T-K). Disabil. Rehabil., ahead of print.","DOI":"10.1080\/09638288.2023.2241820"},{"key":"ref_34","doi-asserted-by":"crossref","first-page":"e2019312","DOI":"10.1590\/1984-0462\/2021\/39\/2019312","article-title":"Translation and validation of the brazilian version of the \u201cquality of life assessment in Spina bifida\u201d questionnaire for children and teenagers","volume":"39","author":"Pompermaier","year":"2020","journal-title":"Rev. Paul. Pediatr."},{"key":"ref_35","doi-asserted-by":"crossref","unstructured":"Fayers, P.M., and Machin, D. (2016). Quality of Life: The Assessment, Analysis, and Reporting of Patient-Reported Outcomes, John Wiley & Sons Inc.. [3rd ed.].","DOI":"10.1002\/9781118758991"},{"key":"ref_36","doi-asserted-by":"crossref","first-page":"181","DOI":"10.1586\/erp.11.103","article-title":"Successful implementation of cognitive interviews in special populations","volume":"12","author":"DeMuro","year":"2012","journal-title":"Expert. Rev. Pharmacoecon Outcomes Res."},{"key":"ref_37","doi-asserted-by":"crossref","first-page":"228","DOI":"10.1016\/j.urology.2023.12.012","article-title":"Association Between Quality of Life and Neurogenic Bowel Symptoms by Bowel Management Program in Spina Bifida","volume":"184","author":"Hirsch","year":"2024","journal-title":"Urology"},{"key":"ref_38","doi-asserted-by":"crossref","first-page":"307","DOI":"10.1177\/0193945903260554","article-title":"Issues and challenges of instrument translation","volume":"26","author":"Yu","year":"2004","journal-title":"West. J. Nurs. Res."},{"key":"ref_39","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1186\/s41687-022-00463-w","article-title":"Patient-reported outcomes and medical device evaluation: From conception to implementation","volume":"6","author":"Webber","year":"2022","journal-title":"J. Patient Rep. Outcomes"},{"key":"ref_40","doi-asserted-by":"crossref","first-page":"37","DOI":"10.5606\/tftrd.2022.6658","article-title":"Psychosocial problems and cognitive functions in children with spina bifida","volume":"68","author":"Bikmazer","year":"2022","journal-title":"Turk. J. Physical Med. Rehabil."},{"key":"ref_41","doi-asserted-by":"crossref","unstructured":"Fagereng, E., Lidal, I.B., Larsen, K.L., L\u00f8vstad, M., Rekand, T., and Hauger, S.L. (2024). Cognition and emotional distress in middle-aged and older adults with spina bifida myelomeningocele. PLoS ONE, 19.","DOI":"10.1371\/journal.pone.0298891"},{"key":"ref_42","doi-asserted-by":"crossref","first-page":"1682","DOI":"10.1111\/apa.16420","article-title":"A scoping review of cognition in spina bifida and its consequences for activity and participation throughout life","volume":"111","author":"Lindquist","year":"2022","journal-title":"Acta Paediatr."},{"key":"ref_43","doi-asserted-by":"crossref","first-page":"1803","DOI":"10.1007\/s11136-021-02814-4","article-title":"Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: A systematic review of recall period, response scale format, and administration modality","volume":"30","author":"Coombes","year":"2021","journal-title":"Qual. Life Res."},{"key":"ref_44","doi-asserted-by":"crossref","first-page":"461","DOI":"10.1016\/j.jval.2013.04.004","article-title":"Pediatric patient-reported outcome instruments for research to support medical product labeling: Report of the ISPOR PRO good research practices for the assessment of children and adolescents task force","volume":"16","author":"Matza","year":"2013","journal-title":"Value Health"},{"key":"ref_45","doi-asserted-by":"crossref","first-page":"33.e1","DOI":"10.1016\/j.jpurol.2018.08.008","article-title":"Urinary continence appears to enhance social participation and intimate relations in adolescents with myelomeningocele","volume":"15","author":"Abrahamsson","year":"2019","journal-title":"J. Pediatr. Urol."},{"key":"ref_46","doi-asserted-by":"crossref","first-page":"10","DOI":"10.1016\/j.pedn.2019.08.004","article-title":"Quality of Life in Adolescents and Young Adults with and Without Spina Bifida: An Exploratory Analysis","volume":"49","author":"Ridosh","year":"2019","journal-title":"J. Pediatr. Nurs."},{"key":"ref_47","doi-asserted-by":"crossref","unstructured":"The International EA-QOL Group (2024). An International Collaborative Initiative to Establish a Quality-of-Life Questionnaire for Children and Adolescents with Repair of Esophageal Atresia in 14 Countries. Children, 11.","DOI":"10.3390\/children11030286"},{"key":"ref_48","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1590\/s1677-5538.ibju.2020.0989","article-title":"Management of neurogenic bladder dysfunction in children update and recommendations on medical treatment","volume":"48","author":"Sager","year":"2022","journal-title":"Int. Braz. J. Urol."},{"key":"ref_49","doi-asserted-by":"crossref","first-page":"979","DOI":"10.1016\/j.apmr.2004.10.042","article-title":"Sex education, relationships, and sexuality in young adults with spina bifida","volume":"86","author":"Verhoef","year":"2005","journal-title":"Arch. Phys. Med. Rehabil."},{"key":"ref_50","doi-asserted-by":"crossref","first-page":"891","DOI":"10.2340\/16501977-1863","article-title":"Spina bifida and sexuality","volume":"46","author":"Liebach","year":"2014","journal-title":"J. Rehabil. Med."},{"key":"ref_51","doi-asserted-by":"crossref","first-page":"840","DOI":"10.1177\/1055665620902877","article-title":"Impact of Completing CLEFT-Q Scales That Ask About Appearance on Children and Young Adults: An International Study","volume":"57","author":"Klassen","year":"2020","journal-title":"Cleft Palate Craniofac. J."},{"key":"ref_52","doi-asserted-by":"crossref","unstructured":"International EA-QOL Group (2023). Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2-7 across 14 countries. Front. Pediatr., 11, 1253892.","DOI":"10.3389\/fped.2023.1253892"},{"key":"ref_53","doi-asserted-by":"crossref","first-page":"364","DOI":"10.3389\/fped.2020.00364","article-title":"Patient-Reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review","volume":"8","author":"Bele","year":"2020","journal-title":"Front. Pediatr."},{"key":"ref_54","first-page":"Cd011589","article-title":"Routine provision of feedback from patient-reported outcome measurements to healthcare providers and patients in clinical practice","volume":"10","author":"Gibbons","year":"2021","journal-title":"Cochrane Database Syst. Rev."},{"key":"ref_55","first-page":"525","article-title":"Mental health guidelines for the care of people with spina bifida","volume":"13","author":"Kritikos","year":"2020","journal-title":"J. Pediatr. Rehabil. Med."},{"key":"ref_56","doi-asserted-by":"crossref","unstructured":"Rozensztrauch, A., Iwanska, M., and Bag\u0142aj, M. (2021). The quality of life of children with myelomeningocele: A cross-sectional preliminary study. Int. J. Environ. Res. Public. Health, 18.","DOI":"10.3390\/ijerph182010756"},{"key":"ref_57","doi-asserted-by":"crossref","first-page":"3359","DOI":"10.1080\/09638288.2022.2118378","article-title":"Cross-cultural adaptation and validation of the Korean modified version of the QUAlity of Life Assessment in Spina bifida for Young Adults (QAULAS-YA-Km)","volume":"45","author":"Yang","year":"2022","journal-title":"Disabil. Rehabil."},{"key":"ref_58","first-page":"517","article-title":"Hydrocephalus and school-age neurodevelopmental outcomes in the management of myelomeningocele prenatal surgery trial: A secondary analysis","volume":"31","author":"Fletcher","year":"2023","journal-title":"J. Neurosurg. Pediatr."}],"container-title":["International Journal of Environmental Research and Public Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.mdpi.com\/1660-4601\/21\/5\/624\/pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,10]],"date-time":"2025-10-10T14:42:40Z","timestamp":1760107360000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.mdpi.com\/1660-4601\/21\/5\/624"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,5,15]]},"references-count":58,"journal-issue":{"issue":"5","published-online":{"date-parts":[[2024,5]]}},"alternative-id":["ijerph21050624"],"URL":"https:\/\/doi.org\/10.3390\/ijerph21050624","relation":{},"ISSN":["1660-4601"],"issn-type":[{"value":"1660-4601","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,5,15]]}}}