{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,21]],"date-time":"2026-09-21T16:45:15Z","timestamp":1790009115373,"version":"4.0.1"},"reference-count":30,"publisher":"MDPI AG","issue":"5","license":[{"start":{"date-parts":[[2022,3,3]],"date-time":"2022-03-03T00:00:00Z","timestamp":1646265600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JCM"],"abstract":"<jats:p>Universal newborn hearing screening (UNHS) facilitates early detection of permanent congenital hearing loss in newborns. In recognition of specific needs among parents, support services have been established within some UNHS programs, including the Victorian Infant Hearing Screening Program (VIHSP). Despite this, there is limited research about how to best support parents in the context of well-established UNHS programs. This project aims to retrospectively explore parental support needs between the newborn hearing screen and enrolment into early intervention services. We used semi-structured interviews with parents three- to- six-months post confirmation of their newborn\u2019s diagnosis of bilateral moderate-profound sensorineural hearing loss. Data were analysed using inductive content analysis. Thirteen parents of ten children were interviewed. Parents described high satisfaction with the support they received. Some parents felt unprepared for a diagnosis of hearing loss, having been reassured that transient causes such as middle ear fluid caused the hearing screen result. Parents reported mixed responses regarding the value of parent-mentor support along the pathway and some parents described needing additional psychological input to adjust to their child\u2019s diagnosis. These findings provide insights into how a well-established UNHS program, VIHSP, supports parents along the hearing diagnosis pathway and how support can be further enriched.<\/jats:p>","DOI":"10.3390\/jcm11051389","type":"journal-article","created":{"date-parts":[[2022,3,3]],"date-time":"2022-03-03T09:24:53Z","timestamp":1646299493000},"page":"1389","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["Exploring Parent Support Needs during the Newborn Hearing Diagnosis Pathway"],"prefix":"10.3390","volume":"11","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1292-6770","authenticated-orcid":false,"given":"Kayla","family":"Elliott","sequence":"first","affiliation":[{"name":"Prevention Innovation Research Group, Murdoch Children\u2019s Research Institute, Parkville 3052, Australia"},{"name":"Department of Paediatrics, University of Melbourne, Parkville 3052, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6290-545X","authenticated-orcid":false,"given":"Danya F.","family":"Vears","sequence":"additional","affiliation":[{"name":"Biomedical Ethics Research Group, Murdoch Children\u2019s Research Institute, Parkville 3052, Australia"},{"name":"Melbourne Law School, University of Melbourne, Carlton 3052, Australia"},{"name":"Centre for Biomedical Ethics and Law, KU Leuven, 3000 Leuven, Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Valerie","family":"Sung","sequence":"additional","affiliation":[{"name":"Prevention Innovation Research Group, Murdoch Children\u2019s Research Institute, Parkville 3052, Australia"},{"name":"Department of Paediatrics, University of Melbourne, Parkville 3052, Australia"},{"name":"Centre for Community Child Health, The Royal Children\u2019s Hospital, Parkville 3052, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Zeffie","family":"Poulakis","sequence":"additional","affiliation":[{"name":"Prevention Innovation Research Group, Murdoch Children\u2019s Research Institute, Parkville 3052, Australia"},{"name":"Department of Paediatrics, University of Melbourne, Parkville 3052, Australia"},{"name":"Centre for Community Child Health, The Royal Children\u2019s Hospital, Parkville 3052, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jane","family":"Sheehan","sequence":"additional","affiliation":[{"name":"Prevention Innovation Research Group, Murdoch Children\u2019s Research Institute, Parkville 3052, Australia"},{"name":"Department of Paediatrics, University of Melbourne, Parkville 3052, Australia"},{"name":"Centre for Community Child Health, The Royal Children\u2019s Hospital, Parkville 3052, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2022,3,3]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","unstructured":"US Preventive Services Task Force (2008). 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