{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,27]],"date-time":"2026-07-27T21:15:06Z","timestamp":1785186906982,"version":"3.55.0"},"reference-count":102,"publisher":"MDPI AG","issue":"15","license":[{"start":{"date-parts":[[2023,7,26]],"date-time":"2023-07-26T00:00:00Z","timestamp":1690329600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Dr. Senckenbergische Stiftung\/Clementine Kinderhospital Dr. Christ\u2018sche Stiftungen (Germany)"},{"name":"Uniscientia Stiftung (Switzerland)"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JCM"],"abstract":"<jats:p>The subjective impact of the consequences of pediatric traumatic brain injury (pTBI) on different life dimensions should be assessed multidimensionally and as sensitively as possible using a disease-specific health-related quality of life (HRQoL) instrument. The development and psychometrics of the first such self-report questionnaire for children and adolescents after TBI are reported here. Focus group interviews with children, adolescents, and their parents, cognitive debriefing, item pool generation and reduction using Delphi expert panels were performed. The resulting version was psychometrically tested on 300 individuals aged 8\u201317 years. After item reduction based on factor analyses, differential item functioning, reliability, and validity were investigated. The final 35 items were associated with six scales (Cognition, Self, Daily Life and Autonomy, Social Relationships, Emotions, Physical Problems). Internal consistency and construct validity were satisfactory. Health-related Quality of life (HRQoL) was significantly lower in older and in female participants, as well as those with cognitive disabilities, anxiety, depression and post-concussion symptoms, than in comparative groups. The new QOLIBRI-KID\/ADO is a comprehensive, multidimensional, reliable, and valid instrument, comparable in content and items to the QOLIBRI adult version. Therefore, disease-specific HRQoL can now be measured across the lifespan and may support the amelioration of treatment, care, rehabilitation, and daily life of children and adolescents after TBI.<\/jats:p>","DOI":"10.3390\/jcm12154898","type":"journal-article","created":{"date-parts":[[2023,7,26]],"date-time":"2023-07-26T01:09:01Z","timestamp":1690333741000},"page":"4898","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":17,"title":["Quality of Life after Brain Injury in Children and Adolescents (QOLIBRI-KID\/ADO)\u2014The First Disease-Specific Self-Report Questionnaire after Traumatic Brain Injury"],"prefix":"10.3390","volume":"12","author":[{"given":"Nicole","family":"Von Steinbuechel","sequence":"first","affiliation":[{"name":"Institute of Medical Psychology and Medical Sociology, University Medical Center G\u00f6ttingen, Waldweg 37A, 37073 G\u00f6ttingen, Germany"},{"name":"Institute of Psychology, University Innsbruck, Innrain 52f, 6020 Innsbruck, Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0172-9904","authenticated-orcid":false,"given":"Marina","family":"Zeldovich","sequence":"additional","affiliation":[{"name":"Institute of Medical Psychology and Medical Sociology, University Medical Center G\u00f6ttingen, Waldweg 37A, 37073 G\u00f6ttingen, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5072-6307","authenticated-orcid":false,"given":"Sven","family":"Greving","sequence":"additional","affiliation":[{"name":"Institute of Medical Psychology and Medical Sociology, University Medical Center G\u00f6ttingen, Waldweg 37A, 37073 G\u00f6ttingen, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8305-8720","authenticated-orcid":false,"given":"Laiene","family":"Olabarrieta-Landa","sequence":"additional","affiliation":[{"name":"Departamento de Ciencias de la Salud de la Universidad P\u00fablica de Navarra, Campus de Arrosad\u00eda, 31006 Pamplona, Spain"},{"name":"Instituto de Investigaci\u00f3n Sanitaria de Navarra (IdiSNA), 31008 Pamplona, Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0518-8781","authenticated-orcid":false,"given":"Ugne","family":"Krenz","sequence":"additional","affiliation":[{"name":"Institute of Medical Psychology and Medical Sociology, University Medical Center G\u00f6ttingen, Waldweg 37A, 37073 G\u00f6ttingen, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dagmar","family":"Timmermann","sequence":"additional","affiliation":[{"name":"Institute of Medical Psychology and Medical Sociology, University Medical Center G\u00f6ttingen, Waldweg 37A, 37073 G\u00f6ttingen, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1281-9286","authenticated-orcid":false,"given":"Inga K.","family":"Koerte","sequence":"additional","affiliation":[{"name":"cBRAIN, Department of Child and Adolescent Psychiatry, Psychosomatics, and Psychotherapy, LMU University Hospital, Ludwig-Maximilian University, Nussbaumstrasse 5, 80336 Munich, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0995-9050","authenticated-orcid":false,"given":"Michaela Veronika","family":"Bonfert","sequence":"additional","affiliation":[{"name":"Department of Pediatric Neurology and Developmental Medicine, LMU Center for Development and Children with Medical Complexity, Dr. von Hauner Children\u2019s Hospital, LMU University Hospital, Haydnstr. 5, 80336 Munich, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Steffen","family":"Berweck","sequence":"additional","affiliation":[{"name":"Specialist Center for Paediatric Neurology, Neurorehabilitation and Epileptology, Schoen Klinik, Krankenhausstra\u00dfe 20, 83569 Vogtareuth, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthias","family":"Kieslich","sequence":"additional","affiliation":[{"name":"Department of Paediatric Neurology, Hospital of Goethe University, Theodor-Stern-Kai 7, 60590 Frankfurt am Main, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Knut","family":"Brockmann","sequence":"additional","affiliation":[{"name":"Interdisciplinary Pediatric Center for Children with Developmental Disabilities and Severe Chronic Disorders, Department of Pediatrics and Adolescent Medicine, University Medical Center, Robert-Koch-Str. 40, 37075 G\u00f6ttingen, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1985-9494","authenticated-orcid":false,"given":"Maike","family":"Roediger","sequence":"additional","affiliation":[{"name":"Department of Pediatric Intensive Care Medicine and Neonatology, University Hospital Muenster, Albert-Schweitzer-Campus 1, 48149 Muenster, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael","family":"Lendt","sequence":"additional","affiliation":[{"name":"Neuropediatrics, St. Mauritius Therapeutic Clinic, Str\u00fcmper Stra\u00dfe 111, 40670 Meerbusch, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael","family":"Staebler","sequence":"additional","affiliation":[{"name":"Hegau-Jugendwerk GmbH, Neurological Rehabilitation Center for Children, Adolescents and Young Adults, Kapellenstr. 31, 78262 Gailingen am Hochrhein, 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